The REDATAM (retrieval of data for small areas by microcomputer) statistical package and format, developed by ECLAC, has been a critical tool for disseminating census data across Latin America since the 1990s. However, significant limitations persist, including its proprietary nature, lack of documentation, and restricted flexibility for advanced data analysis. These challenges hinder the transformation of raw census data into actionable information for policymakers, researchers, and advocacy groups. To address these issues, we developed Open REDATAM, an open-source and multiplatform tool that converts REDATAM data into widely supported CSV files and native R and Python data structures. By providing integration with R and Python, Open REDATAM empowers users to work with the tools they already know and perform data analyses without leaving their R or Python window. Our work emphasizes the need for a REDATAM official format specification to further enable informed policy debates that can improve policy processes’ implementation and feedback.

The Belt and Road Initiative (BRI) is a Chinese infrastructure and investment project launched in 2013 that seeks to link China with over 70 countries through transport, communication, and trading networks. The BRI consists of building and construction projects including railways, ports, roads, and other vital trade infrastructure. Importantly, the BRI also includes the establishment of a new “Digital Silk Road” (DSR) enhancing digital connectivity using the latest 5G high bandwidth, low latency mobile and satellite technology. In 2019, several Western states (notably USA, Australia, Canada, and the UK) banned Chinese telecommunications technology companies, such as Huawei, from rolling out 5G networks in their respective jurisdictions. The purported basis for the bans were security concerns over the ability of the Chinese government to control and potentially intercept communications over the Huawei systems. In the MENA region, no such bans have been adopted and the DSR is proceeding to connect MENA economies to China at a rapid pace. This places MENA countries in a precarious position between strategic links with the US as the global hegemon with a strategic interest in the region, and the emerging Chinese global political and economic order. The regulation of digital communication technologies is one dimension where legal frameworks must be designed with care and discernment to balance competing geopolitical forces. This article seeks to answer the question of how best to understand the legal regulation of new technologies in the MENA region and argues that the conceptual lens of “Tech-diplomacy” helps to provide such an understanding. In addition to privacy-centric, security-centric, and growth-centric philosophical and jurisprudential approaches to understanding data regulation, the predicament of the MENA region is a case study in how geopolitics can also inform our understanding of tech regulation.

Some observers of the data economy have proposed that we treat data as labor. But are data contributions labor? Our folk conception of work emphasizes its importance and effort, such that work has a special interpersonal priority and deserves appreciation and compensation. The folk conception does not generally favor counting data as work, and so it serves as an error theory for reluctance to regulate data as labor. In contrast, labor regulation and policy focus on the political economy of labor, and in particular the bargaining dynamics that participants in a labor market face. Labor regulation aims to protect workers against the threats characteristically posed by such bargaining dynamics. Data-transferring interactions between internet platforms and users share similar bargaining dynamics, and so there is a promising functional similarity between labor regulation and proposals for data regulation that would facilitate data strikes and data unions.

The COVID-19 pandemic underscored the critical need for timely data and information to aid interventions and decision-making. Efforts by different actors resulted in various data-driven initiatives, constituting experiences of deploying data in the COVID-19 response and valuable lessons that can advance the sharing and use of data for social good beyond COVID-19. This commentary highlights key case studies detailing the experiences and lessons of those who implemented data science solutions for the COVID-19 response, as well as findings from 74 data-centric COVID-19 interventions. These interventions demonstrated successful data access strategies, productive intervention processes, and effective stakeholder engagement, all of which present potential pathways to overcoming data access obstacles across Africa. Additionally, this study also briefly explores three areas for action (i.e., institutions, people, and platforms) that can inform future policy development to increase data sharing for societal benefit in the long term.

Public agencies routinely collect administrative data that, when shared and integrated, can form a rich picture of the health and well-being of the communities they serve. One major challenge is that these datasets are often siloed within individual agencies or programs and using them effectively presents legal, technical, and cultural obstacles. This article describes work led by the North Carolina Department of Health and Human Services (NCDHHS) with support from university-based researchers to establish enterprise-wide data governance and a legal framework for routine data sharing, toward the goal of increased capacity for integrated data analysis, improved policy and practice, and better health outcomes for North Carolinians. We relied on participatory action research (PAR) methods and Deliberative Dialogue to engage a diverse range of stakeholders in the co-creation of a data governance process and legal framework for routine data sharing in NCDHHS. Four key actions were taken as a result of the participatory research process: NCDHHS developed a data strategy road map, created a data sharing guidebook to operationalize legal and ethical review of requests, staffed the Data Office, and implemented a legal framework. In addition to describing how these ongoing streams of work support data use across a large state health and human services agency, we provide three use cases demonstrating the impact of this work. This research presents a successful, actionable, and replicable framework for developing and implementing processes to support intradepartmental data access, integration, and use.

Enabling private sector trust stands as a critical policy challenge for the success of the EU Data Governance Act and Data Act in promoting data sharing to address societal challenges. This paper attributes the widespread trust deficit to the unmanageable uncertainty that arises from businesses’ limited usage control to protect their interests in the face of unacceptable perceived risks. For example, a firm may hesitate to share its data with others in case it is leaked and falls into the hands of business competitors. To illustrate this impasse, competition, privacy, and reputational risks are introduced, respectively, in the context of three suboptimal approaches to data sharing: data marketplaces, data collaboratives, and data philanthropy. The paper proceeds by analyzing seven trust-enabling mechanisms comprised of technological, legal, and organizational elements to balance trust, risk, and control and assessing their capacity to operate in a fair, equitable, and transparent manner. Finally, the paper examines the regulatory context in the EU and the advantages and limitations of voluntary and mandatory data sharing, concluding that an approach that effectively balances the two should be pursued.

A number of data governance policies have recently been introduced or revised by the Indian Government with the stated goal of unlocking the developmental and economic potential of data. The policies seek to implement standardized frameworks for public data management and establish platforms for data exchange. However, India has a longstanding history of record-keeping and information transparency practices, which are crucial in the context of data management. These connections have not been explicitly addressed in recent policies like the Draft National Data Governance Framework, 2022. To understand if record management has a role to play in modern public data governance, we analyze the key new data governance framework and the associated Indian Urban Data Exchange platform as a case study. The study examines the exchange where public records serve as a potential source of data. It evaluates the coverage and the actors involved in the creation of this data to understand the impact of records management on government departments’ ability to publish datasets. We conclude that while India recognizes the importance of data as a public good, it needs to integrate digital records management practices more effectively into its policies to ensure accurate, up-to-date, and accessible data for public benefit.

Recent studies highlight the need for ethical and equitable digital health research that protects the rights and interests of racialized communities. We argue for practices in digital health that promote data self-determination for these communities, especially in data collection and management. We suggest that researchers partner with racialized communities to curate data that reflects their wellness understandings and health priorities, and respects their consent over data use for policy and other outcomes. These data governance approach honors and builds on Indigenous Data Sovereignty (IDS) decolonial scholarship by Indigenous and non-indigenous researchers and its adaptations to health research involving racialized communities from former European colonies in the global South. We discuss strategies to practice equity, diversity, inclusion, accessibility and decolonization (EDIAD) principles in digital health. We draw upon and adapt the concept of Precision Health Equity (PHE) to emphasize models of data sharing that are co-defined by racialized communities and researchers, and stress their shared governance and stewardship of data that is generated from digital health research. This paper contributes to an emerging research on equity issues in digital health and reducing health, institutional, and technological disparities. It also promotes the self-determination of racialized peoples through ethical data management.

As the world has become more digitally dependent, questions of data governance, such as ethics, institutional arrangements, and statistical protection measures, have increased in significance. Understanding the economic contribution of investments in data sharing and data governance is highly problematic: outputs and outcomes are often widely dispersed and hard to measure, and the value of those investments is very context-dependent. The “Five Safes” is a popular data governance framework. It is used to design and critique data management strategies across the world and has also been used as a performance framework to measure the effectiveness of data access operations. We report on a novel application of the Five Safes framework to structure the economic evaluation of data governance. The Five Safes was designed to allow structured investigation into data governance. Combining this with more traditional logic models can provide an evaluation methodology that is practical, reproducible, and comparable. We illustrate this by considering the application of the combined logic model-Five Safes framework to data governance for agronomy investments in Ethiopia. We demonstrate how the Five Safes was used to generate the necessary context for a more traditional quantitative study, and consider lessons learned for the wider evaluation of data and data governance investments.

The National COVID Cohort Collaborative (N3C) is a public–private–government partnership established during the Coronavirus pandemic to create a centralized data resource called the “N3C data enclave.” This resource contains individual-level health data from participating healthcare sites nationwide to support rapid collaborative analytics. N3C has enabled analytics within a cloud-based enclave of data from electronic health records from over 17 million people (with and without COVID-19) in the USA. To achieve this goal of a shared data resource, N3C implemented a shared governance strategy involving stakeholders in decision-making. The approach leveraged best practices in data stewardship and team science to rapidly enable COVID-19-related research at scale while respecting the privacy of data subjects and participating institutions. N3C balanced equitable access to data, team-based scientific productivity, and individual professional recognition – a key incentive for academic researchers. This governance approach makes N3C research sustainable and effective beyond the initial days of the pandemic. N3C demonstrated that shared governance can overcome traditional barriers to data sharing without compromising data security and trust. The governance innovations described herein are a helpful framework for other privacy-preserving data infrastructure programs and provide a working model for effective team science beyond COVID-19.

Data has become a critical trans-national and cross-border resource. Yet, the lack of a well-defined approach to using it poses challenges to harnessing its value. This article explores the increasing importance of global data governance due to the rapid growth of data, and the need for responsible data practices. The purpose of this paper is to compare approaches and identify patterns in the emergent data governance ecosystem within sectors close to the international development field, ultimately presenting key takeaways and reflections on when and why a global data governance framework may be needed. Overall, the paper provides information about the conditions when a more holistic, coordinated transnational approach to data governance may be needed to responsibly manage the global flow of data. The report does this by (a) considering conditions specified by the literature that may be conducive to global data governance, and (b) analyzing and comparing existing frameworks, specifically investigating six key elements: purpose, principles, anchoring documents, data description and lifecycle, processes, and practices. The article closes with a series of final recommendations, which include adopting a broader concept of data stewardship to reconcile data protection and promotion, focusing on responsible reuse of data to unlock socioeconomic value, harmonizing meanings to operationalize principles, incorporating global human rights frameworks to provide common North Stars, unifying key definitions of data, adopting a data lifecycle approach, incorporating participatory processes and collective agency, investing in new professions with specific roles, improving accountability through oversight and compliance mechanisms, and translating recommendations into practical tools.

The use of artificial intelligence and algorithmic decision-making in public policy processes is influenced by a range of diverse drivers. This article provides a comprehensive view of 13 drivers and their interrelationships, identified through empirical findings from the taxation and social security domains in Belgium. These drivers are organized into five hierarchical layers that policy designers need to focus on when introducing advanced analytics in fraud detection: (a) trust layer, (b) interoperability layer, (c) perceived benefits layer, (d) data governance layer, and (e) digital governance layer. The layered approach enables a holistic view of assessing adoption challenges concerning new digital technologies. The research uses thematic analysis and interpretive structural modeling.

To harness the promises of digital transformation, different players take different paths. Departing from corporate-driven (e.g., the United States) and state-led (e.g., China) approaches, in various documents, the European Union states its goal to establish a citizen-centric data ecosystem. However, it remains contentious the extent to which the envisioned digital single market can enable the creation of public value and empower citizens. As an alternative, in this article, we argue in favor of a fair data ecosystem, defined as an approach capable of representing and keep in balance the data interests of all actors, while maintain a collective outlook. We build such ecosystem around data commons—as a third path to market and state approaches to the managing of resources—coupled with open data (OD) frameworks and spatial data infrastructures (SDIs). Indeed, based on literature, we claim that these three regimes complement each other, with OD and SDIs supplying infrastructures and institutionalization to data commons’ limited replicability and scalability. This creates the preconditions for designing the main roles, rules, and mechanisms of a data republic, as a possible enactment of a fair data ecosystem. While outlining here its main traits, the testing of the data republic model is open for further research.

A proliferation of data-generating devices, sensors, and applications has led to unprecedented amounts of digital data. We live in an era of datafication, one in which life is increasingly quantified and transformed into intelligence for private or public benefit. When used responsibly, this offers new opportunities for public good. The potential of data is evident in the possibilities offered by open data and data collaboratives—both instances of how wider access to data can lead to positive and often dramatic social transformation. However, three key forms of asymmetry currently limit this potential, especially for already vulnerable and marginalized groups: data asymmetries, information asymmetries, and agency asymmetries. These asymmetries limit human potential, both in a practical and psychological sense, leading to feelings of disempowerment and eroding public trust in technology. Existing methods to limit asymmetries (such as open data or consent) as well as some alternatives under consideration (data ownership, collective ownership, personal information management systems) have limitations to adequately address the challenges at hand. A new principle and practice of digital self-determination (DSD) is therefore required. The study and practice of DSD remain in its infancy. The characteristics we have outlined here are only exploratory, and much work remains to be done so as to better understand what works and what does not. We suggest the need for a new research framework or agenda to explore DSD and how it can address the asymmetries, imbalances, and inequalities—both in data and society more generally—that are emerging as key public policy challenges of our era.

Innovative, responsible data use is a critical need in the global response to the coronavirus disease-2019 (COVID-19) pandemic. Yet potentially impactful data are often unavailable to those who could utilize it, particularly in data-poor settings, posing a serious barrier to effective pandemic mitigation. Data challenges, a public call-to-action for innovative data use projects, can identify and address these specific barriers. To understand gaps and progress relevant to effective data use in this context, this study thematically analyses three sets of qualitative data focused on/based in low/middle-income countries: (a) a survey of innovators responding to a data challenge, (b) a survey of organizers of data challenges, and (c) a focus group discussion with professionals using COVID-19 data for evidence-based decision-making. Data quality and accessibility and human resources/institutional capacity were frequently reported limitations to effective data use among innovators. New fit-for-purpose tools and the expansion of partnerships were the most frequently noted areas of progress. Discussion participants identified building capacity for external/national actors to understand the needs of local communities can address a lack of partnerships while de-siloing information. A synthesis of themes demonstrated that gaps, progress, and needs commonly identified by these groups are relevant beyond COVID-19, highlighting the importance of a healthy data ecosystem to address emerging threats. This is supported by data holders prioritizing the availability and accessibility of their data without causing harm; funders and policymakers committed to integrating innovations with existing physical, data, and policy infrastructure; and innovators designing sustainable, multi-use solutions based on principles of good data governance.