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What do autistic people want from autism research?

Published online by Cambridge University Press:  23 July 2019

Chloe Silverman*
Affiliation:
Center for Science, Technology, & Society and Department of Politics, Drexel University, Philadelphia, PA 19104. [email protected]://drexel.edu/coas/faculty-research/faculty-directory/Chloe-Silverman/

Abstract

Research that engages the experiences and insights of autistics and their caregivers can be more ethical, less stigmatizing, and innovative. To avoid reproducing established assumptions, researchers should learn how autistics and their caregivers understand behavioral and communicative differences, and how they prioritize interventions and accommodations. Fostering “autistic flourishing” requires that researchers focus on similarities between autistics and neurotypical people while allowing for autistic differences. Consulting autistics helps ensure that their personhood is acknowledged.

Type
Open Peer Commentary
Copyright
Copyright © Cambridge University Press 2019 

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References

Ashcroft, R. (2012) Autism and well-being. Post on the Neuroethics Blog, January 7, 2014. Available at: http://www.theneuroethicsblog.com/2014/01/autism-and-well-being.html.Google Scholar
Barnbaum, D. (2008) The ethics of autism: Among them but not of them. Indiana University Press.Google Scholar
Brownlow, C., Rosqvist, H. B. & O'Dell, L. (2013) Exploring the potential for social networking among people with autism: Challenging dominant ideas of “friendship.” Scandinavian Journal of Disability Research 17(2):188–93. Available at: https://doi.org/10.1080/15017419.2013.859174.Google Scholar
Calder, L., Hill, V. & Pellicano, E. (2013) ‘Sometimes I want to play by myself:’ Understanding what friendship means to children with autism in mainstream primary schools. Autism 17(3):296316. Available at: http://dx.doi.org/10.1177/1362361312467866.Google Scholar
Chamak, B., Bonniau, B., Jaunay, E. & Cohen, D. (2008) What can we learn about autism from autistic persons? Psychotherapy and Psychosomatics 77(5):271–79.Google Scholar
Mazurek, M. O. (2014) Loneliness, friendship and well-being in adults with autism spectrum disorders. Autism 18(3):223–32.Google Scholar
Nicolaidis, C. (2012) What can physicians learn from the neurodiversity movement? American Medical Association Journal of Ethics 14(6):503–10.Google Scholar
Rodogno, R., Krause-Jensen, K. & Ashcroft, R. E. 2016. “Autism and the good life”: A new approach to the study of well-being. Journal of Medical Ethics 42:401408.Google Scholar
Rosqvist, H. B., Brownlow, C. & O'Dell, L. (2015) “What's the point of having friends?”: Reformulating notions of the meaning of friends and friendship among autistic people. Disability Studies Quarterly 35(4). Available at: http://dsq-sds.org/article/view/3254/4109.Google Scholar
Sasson, N. J., Faso, D. J., Nugent, J., Lovell, S., Kennedy, D. P. & Grossman, R. B. (2017) Neurotypical peers are less willing to interact with those with autism based on thin slice judgments. Scientific Reports 7:40700. Available at: http://www.nature.com/articles/srep40700.Google Scholar
Sosnowy, C., Silverman, C., Shattuck, P. & Garfield, T. (2018) Setbacks and successes: How young adults on the autism spectrum seek friendship. Autism in Adulthood 1(1). Available at: https://doi.org/10.1089/aut.2018.0009.Google Scholar