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  • 11 - Governing Nontraditional Gene Editing

  • from Part III - Tinkering with Ourselves: The Law and Ethics of DIY Genomics
  • Edited by I. Glenn Cohen, Harvard Law School, Massachusetts, Nita A. Farahany, Henry T. Greely, Carmel Shachar, Harvard Law School, Massachusetts
  • Book:
    Consumer Genetic Technologies
    Published online:
    27 August 2021
    Print publication:
    16 September 2021, pp 145-156

  • Summary

    A large and highly heterogeneous group of individuals conducts genetic and genomic research outside of traditional corporate and academic settings. They can be an important source of innovation, but their activities largely take place beyond the purview of existing regulatory systems for promoting safe and ethical practices. Historically the gene-targeting technology available for non-traditional biology (NTB) experiments has been limited, and therefore they have attracted little regulatory attention. New techniques such as CRISPR-cas9, however, may create a need for alternate governance approaches. This chapter explores whether alternate governance approaches might be needed and, if so, what governance approaches would be most likely to enable non-traditional experiments to be conducted safely and ethically.