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Giving support and getting help: Informal caregivers' experiences with palliative care services

Published online by Cambridge University Press:  12 May 2005

ROY CAIN ,
MICHAEL MACLEAN  and
SCOTT SELLICK
ROY CAIN
Affiliation:
School of Social Work, McMaster University, Hamilton, Ontario, Canada
MICHAEL MACLEAN
Affiliation:
Faculty of Social Work, University of Regina, Regina, Saskatchewan, Canada
SCOTT SELLICK
Affiliation:
Northwestern Ontario Regional Cancer Centre, Thunder Bay, Ontario, Canada
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Abstract

Objective: Palliative care services have made significant contributions to those needing end-of-life care, but the effect of these services on informal caregivers is less clear. This article reviews the literature and examines the influences of palliative care services on caregivers of people who are dying of cancer, HIV-related illnesses, and illnesses of later life.

Methods: Based on questions that we developed from the literature review, we conducted six focus groups in Toronto, Thunder Bay, and Ottawa, Canada, with informal caregivers about their experiences with caregiving and with palliative care services.

Results: We outline the major themes relating to the 42 focus group participants' experiences of giving support and getting help.

Significance of results: Our findings help us better understand the common concerns of caregivers of terminally ill seniors, people with HIV/AIDS, and people with cancer. The article discusses the implications of participants' experiences for palliative care service providers.

Keywords

CaregiversSupportPalliative care
Type
Research Article
Information
Palliative & Supportive Care , Volume 2 , Issue 3 , September 2004 , pp. 265 - 272
Copyright
© 2004 Cambridge University Press

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