Hostname: page-component-cd9895bd7-gbm5v Total loading time: 0 Render date: 2024-12-21T02:28:05.510Z Has data issue: false hasContentIssue false
  • English
  • Français

Navigating unknown terrain: decision aids in dementia care

Published online by Cambridge University Press:  28 October 2019

Kyle S. Page  and
Nabeel T. Yehyawi
Kyle S. Page*
Affiliation:
VA Central Iowa Health Care System, Des Moines, Iowa, USA Email: [email protected]
Nabeel T. Yehyawi
Affiliation:
VA Central Iowa Health Care System, Des Moines, Iowa, USA Email: [email protected]
Get access

Abstract

An abstract is not available for this content so a preview has been provided. Please use the Get access link above for information on how to access this content.
Image of the first page of this content. For PDF version, please use the ‘Save PDF’ preceeding this image.'
Type
Commentary
Information
International Psychogeriatrics , Volume 31 , Issue 10: Issue Theme: Dementia and the Society , October 2019 , pp. 1383 - 1385
Copyright
© International Psychogeriatric Association 2019 

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Bilodeau, G. et al. (2019). Reducing complexity of patient decision aids for community-based older adults with dementia and their caregivers: multiple case study of decision boxes. BMJ Open, 9(5), e027727.CrossRefGoogle ScholarPubMed
Davies, N., Schiowitz, B., Rait, G., Vickerstaff, V. and Sampson, E. (2019). Decision aids to support decision-making in dementia care: a systematic review. International Psychogeriatrics, 31, 1403–1419.CrossRefGoogle ScholarPubMed
Elwyn, G. et al. (2006). Developing a quality criteria framework for patient decision aids: online international Delphi consensus process. British Medical Journal, 333(7565), 417.CrossRefGoogle ScholarPubMed
Fetherstonhaugh, D., McAuliffe, L., Bauer, M. and Shanley, C. (2017). Decision-making on behalf of people living with dementia: how do surrogate decision-makers decide? Journal of Medical Ethics, 43, 35–40.CrossRefGoogle Scholar
Givens, J.L., Kiely, D.K., Carey, K., and Mitchell, S.L. (2009). Healthcare proxies of nursing home residents with advanced dementia: decisions they confront and their satisfaction with decision-making. Journal of the American Geriatrics Society, 57, 1149–1155.CrossRefGoogle ScholarPubMed
Hanson, L.C. et al. (2011). Improving decision-making for feeding options in advanced dementia: a randomized, controlled trial. Journal of the American Geriatrics Society, 59(11), 2009–2016.CrossRefGoogle ScholarPubMed
Miller, L.M., Whitlach, C.J. and Lyons, K.S. (2016). Shared decision-making in dementia: a review of patient and family carer involvement. Dementia, 15, 1141–1157.CrossRefGoogle ScholarPubMed
Moye, J., Karel, M.J., Azar, A.R. and Gurrera, R.J. (2004). Capacity to consent to treatment: empirical comparison of three instruments in older adults with and without dementia. The Gerontologist, 44, 166–175.CrossRefGoogle ScholarPubMed
Moye, J., Karel, M.J., Gurrera, R.J. and Azar, A.R. (2006). Neuropsychological predictors of decision-making capacity over 9 months in mild-to-moderate dementia. Journal of General Internal Medicine, 21(1), 78–83.CrossRefGoogle ScholarPubMed
Mueller, S.M., Arias, M.G., Mejuto Vázquez, G., Schiebener, J., Brand, M. and Wegmann, E. (2019). Decision support in patients with mild Alzheimer’s disease. Journal of Clinical and Experimental Neuropsychology, 41(5), 484–496.CrossRefGoogle ScholarPubMed
National Council on Disabilities. (2018). Beyond Guardianship: Toward Alternatives That Promote Greater Self-determination. Washington, DC: National Council on Disabilities.Google Scholar
Okonkwo, O.C. et al. (2008). Cognitive models of medical decision-making capacity in patients with mild cognitive impairment. Journal of the International Neuropsychological Society, 14(2), 297–308.CrossRefGoogle ScholarPubMed
Patterson, C. (2018). World Alzheimer Report 2018: The State of the Art of Dementia Research: New Frontiers. London, UK: Alzheimer’s Disease International (ADI).Google Scholar
Read, S.T., Toye, C. and Wynaden, D. (2018). The participation of people with dementia in the planning of their care and support: an integrative literature review. Dementia. Advanced online publication. doi: 10.1177/1471301218784806CrossRefGoogle Scholar
Shalowitz, D.I., Garrett-Mayer, E. and Wendler, D. (2006). The accuracy of surrogate decision-makers: a systematic review. Archives of Internal Medicine, 166, 493–497.CrossRefGoogle ScholarPubMed
van Weert, J.C.M., van Munster, B.C., Sanders, R., Spijker, R., Hooft, L. and Jansen, J. (2016). Decision aids to help older people make health decisions: a systematic review and meta-analysis. BMC Medical Informatics and Decision Making, 16, 45.CrossRefGoogle ScholarPubMed
Wood, S. and Tanius, B.E. (2007). Impact of Dementia on Decision-Making Abilities. Changes in Decision-Making Capacity in Older Adults: Assessment and Intervention. Hoboken, NJ: John Wiley and Sons.Google Scholar
Xie, B., Berkley, A.S., Kwak, J., Fleischmann, K.R., Champion, J.D. and Koltai, K.S. (2018). End-of-life decision-making by family caregivers of persons with advanced dementia: a literature review of decision aids. SAGE Open Medicine, 6, 2050312118777517.CrossRefGoogle ScholarPubMed