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Behavior and Evolution of Young ONset Dementia part 2 (BEYOND-II) study: an intervention study aimed at improvement in the management of neuropsychiatric symptoms in institutionalized people with young onset dementia

Published online by Cambridge University Press:  09 June 2017

J. C. L. van Duinen-van den IJssel ,
B. Appelhof ,
S. A. Zwijsen ,
M. Smalbrugge ,
F. R. J. Verhey ,
M. E. de Vugt ,
S. U. Zuidema ,
R.T.C.M Koopmans  and
C. Bakker
J. C. L. van Duinen-van den IJssel
Affiliation:
Department of Primary and Community Care, Centre for Family Medicine, Geriatric Care and Public Health, Radboud University Nijmegen, Medical Centre, Nijmegen, the Netherlands Radboud Alzheimer Centre, Nijmegen, the Netherlands
B. Appelhof
Affiliation:
Department of Primary and Community Care, Centre for Family Medicine, Geriatric Care and Public Health, Radboud University Nijmegen, Medical Centre, Nijmegen, the Netherlands Radboud Alzheimer Centre, Nijmegen, the Netherlands Archipel, Landrijt, Knowledge Centre for Specialized Care, Eindhoven, the Netherlands
S. A. Zwijsen
Affiliation:
Department of General Practice and Elderly Care Medicine, Amsterdam Public Health research institute, VU University Medical Center, Amsterdam, the Netherlands
M. Smalbrugge
Affiliation:
Department of General Practice and Elderly Care Medicine, Amsterdam Public Health research institute, VU University Medical Center, Amsterdam, the Netherlands
F. R. J. Verhey
Affiliation:
School for Mental Health and Neuroscience, Alzheimer Centre Limburg, Maastricht University Medical Centre+, Maastricht, the Netherlands
M. E. de Vugt
Affiliation:
School for Mental Health and Neuroscience, Alzheimer Centre Limburg, Maastricht University Medical Centre+, Maastricht, the Netherlands
S. U. Zuidema
Affiliation:
Department of General Practice and Elderly Care Medicine, University of Groningen, University Medical Centre Groningen, Groningen, the Netherlands
R.T.C.M Koopmans
Affiliation:
Department of Primary and Community Care, Centre for Family Medicine, Geriatric Care and Public Health, Radboud University Nijmegen, Medical Centre, Nijmegen, the Netherlands Radboud Alzheimer Centre, Nijmegen, the Netherlands De Waalboog “Joachim en Anna”, Centre for Specialized Geriatric Care, Nijmegen, the Netherlands
C. Bakker*
Affiliation:
Department of Primary and Community Care, Centre for Family Medicine, Geriatric Care and Public Health, Radboud University Nijmegen, Medical Centre, Nijmegen, the Netherlands Radboud Alzheimer Centre, Nijmegen, the Netherlands Centre for Specialized Care in Young Onset Dementia, Florence, Mariahoeve, the Hague, the Netherlands
*
Correspondence should be addressed to: Christian Bakker, PhD, MSc, Department of Primary and Community Care, Centre for Family Medicine, Geriatric Care and Public Health, Radboud University Medical Centre, Nijmegen, P.O. Box 9101, 6500 HB Nijmegen, theNetherlands. Phone: 024-3655307. Email: [email protected].
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Abstract

Background:

Both neuropsychiatric symptoms (NPS) and psychotropic drug use (PDU) are common in institutionalized People with Young Onset Dementia (PwYOD) and can produce negative outcomes such as reduced quality of life and high workload. In community-dwelling PwYOD, NPS are found to be associated with unmet care needs. This emphasizes the importance of a care program for the management of NPS in institutionalized PwYOD that also addresses unmet care needs and PDU. The objectives of the Behavior and Evolution of Young ONset Dementia part 2 (BEYOND-II) study are to develop a care program for the management of NPS in institutionalized PwYOD and to evaluate its effectiveness.

Methods:

The care program consists of an educational program combined with an intervention to manage NPS with the following five steps: the evaluation of psychotropic drug prescription, detection, analysis (including the detection of unmet needs), treatment and the evaluation of NPS. A stepped wedge design will be used to evaluate its effectiveness. The primary outcomes are agitation and aggression and other NPS. The secondary outcomes are PDU, quality of life, the workload of nursing staff and job satisfaction. Additionally, a process analysis and a cost-consequence analysis will be conducted.

Conclusions:

The study protocol of the Beyond-II study describes the development, implementation and evaluation of a care program for the management of NPS in institutionalized PwYOD. This care program provides a structured method for the management of NPS, in which unmet needs and PDU are also addressed.

Keywords

young onset dementiaNPScare programnursing homenursing staff
Type
Protocol-only paper
Information
International Psychogeriatrics , Volume 30 , Issue 3: Issue Theme: Psychosocial Interventions for Dementia , March 2018 , pp. 437 - 446
Copyright
Copyright © International Psychogeriatric Association 2017 

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Footnotes

Trial Registration: Netherlands Trial Register (NTR): NTR5018

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