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Professional discipline and support recommendations for family caregivers of persons with dementia

Published online by Cambridge University Press:  07 January 2016

Joseph E. Gaugler ,
Bonnie L. Westra  and
Robert L. Kane
Joseph E. Gaugler*
Affiliation:
Center on Aging, School of Nursing, University of Minnesota, Minneapolis, Minnesota, USA
Bonnie L. Westra
Affiliation:
School of Nursing, University of Minnesota, Minneapolis, Minnesota, USA
Robert L. Kane
Affiliation:
Center on Aging, School of Public Health, University of Minnesota, Minneapolis, Minnesota, USA
*
Correspondence should be addressed to: Joseph E. Gaugler, PhD, Center on Aging, School of Nursing, University of Minnesota, 6-153 Weaver-Densford Hall, 1331, 308 Harvard Street S.E., Minneapolis, MN 55455, USA. Phone: 612-626-2485; Fax: 612-625-7180. Email: [email protected].
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Abstract

Background:

Family caregivers of persons with dementia often require support services to help ease the challenges of providing care. Although the efficacy of some dementia caregiver interventions seems apparent, evidence indicating which types of protocols can best meet the diverse needs of individual families is not yet available. Because of this gap, families must often turn to professionals for such guidance, but it remains unknown whether professionals from different disciplines are more inclined to recommend particular types of services than others. This study assessed whether recommendations of supportive interventions to hypothetical dementia family caregivers differed by professional discipline.

Methods:

In a cross-sectional survey design, a convenience sample of 422 dementia care professionals across the USA viewed up to 24 randomly selected, hypothetical scenarios that systematically varied characteristics of persons with dementia and their caregivers. For each scenario, 7 possible intervention recommendations were rated. A total of 6,890 scenarios were rated and served as the unit of analysis.

Results:

General linear models revealed that discipline was often a stronger predictor of how likely professionals were to recommend dementia caregiver interventions than caregiver, care recipient, or other professional characteristics. Psychotherapists tended to recommend psychoeducation more than other professionals, while those in medicine were more likely to recommend training of the person with dementia and psychotherapy.

Conclusions:

The heterogeneity in recommendations suggests that the professional source of information influences the types of support families are directed toward. Empirical evidence should inform these professional judgments to better achieve person-centered care for families.

Keywords

Alzheimer’s diseasedementiacaregivinginterventions
Type
Research Article
Information
International Psychogeriatrics , Volume 28 , Issue 6 , June 2016 , pp. 1029 - 1040
Copyright
Copyright © International Psychogeriatric Association 2016 

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References

Anderson, K. A., Dabelko-Schoeny, H. and Johnson, T. D. (2013). The state of adult day services: findings and implications from the MetLife national study of adult day services. Journal of Applied Gerontology, 32, 729–748.Google Scholar
Anderson, K. A., Nikzad-Terhune, K. A. and Gaugler, J. E. (2009). A systematic evaluation of online resources for dementia caregivers. Journal of Consumer Health on the Internet, 13, 1–13.Google Scholar
Brody, A. A. and Galvin, J. E. (2013). A review of interprofessional dissemination and education interventions for recognizing and managing dementia. Gerontology & Geriatrics Education, 34, 225–256. doi:10.1080/02701960.2013.801342.Google Scholar
Burgio, L. D., Gaugler, J. E. and Hilgeman, M. (2016). Family Caregiving for Adults and Elders with Chronic Conditions. New York, NY: Oxford University Press.Google Scholar
Czaja, S. J. et al. (2009). Development of the risk appraisal measure: a brief screen to identify risk areas and guide interventions for dementia caregivers. Journal of the American Geriatrics Society, 57, 1064–1072. doi:10.1111/j.1532-5415.2009.02260.x.Google Scholar
Doty, P. and Spillman, B. (2015). Help for family caregivers available from government programs and policies. In Gaugler, J. E. and Kane, R. L. (eds.), Family Caregiving in the New Normal (pp. 153–190). San Diego, CA: Elsevier, Inc.CrossRefGoogle Scholar
Downs, M., Capstick, A., Baldwin, P. C., Surr, C. and Bruce, E. (2009). The role of higher education in transforming the quality of dementia care: dementia studies at the University of Bradford. International Psychogeriatrics, 21 (Suppl. 1), S3–S15. doi:10.1017/S1041610209008837.CrossRefGoogle ScholarPubMed
Gaugler, J. E., Potter, T. and Pruinelli, L. (2014). Partnering with caregivers. Clinics in Geriatric Medicine, 30, 493–515. doi:S0749-0690(14)00038-X [pii].Google Scholar
Gaugler, J. E., Yu, F., Krichbaum, K. and Wyman, J. F. (2009). Predictors of nursing home admission for persons with dementia. Medical Care, 47, 191–198. doi:10.1097/MLR.0b013e31818457ce.Google Scholar
Gitlin, L. N. and Hodgson, N. (2015). Caregivers as therapeutic agents in dementia care: the evidence-base for interventions supporting their role. In Gaugler, J. E. and Kane, R. L. (eds.), Family Caregiving in the New Normal (pp. 305–356). San Diego, CA: Elsevier, Inc.Google Scholar
Gould, E. and Reed, P. (2009). Alzheimer's association quality care campaign and professional training initiatives: improving hands-on care for people with dementia in the USA. International Psychogeriatrics, 21 (Suppl. 1), S25–S33. doi:10.1017/S1041610209008758.Google Scholar
IBM Corporation (2012). IBM SPSS Statistics for Windows. Armonk, NY: IBM Corporation.Google Scholar
Jones, C., Edwards, R. T. and Hounsome, B. (2012). A systematic review of the cost-effectiveness of interventions for supporting informal caregivers of people with dementia residing in the community. International Psychogeriatrics, 24, 6–18. doi:10.1017/S1041610211001207.Google Scholar
Kane, R. L., Bershadsky, B. and Bershadsky, J. (2006). Who recommends long-term care matters. The Gerontologist, 46, 474–482.Google Scholar
Nichols, L. O., Martindale-Adams, J., Burns, R., Zuber, J. and Graney, M. J. (2014). REACH VA: moving from translation to system implementation. The Gerontologist. doi:gnu112 [pii].Google Scholar
Pinquart, M. and Sörensen, S. (2006). Helping caregivers of persons with dementia: which interventions work and how large are their effects? International Psychogeriatrics, 18, 577–595.CrossRefGoogle ScholarPubMed
Rampatige, R., Dunt, D., Doyle, C., Day, S. and van Dort, P. (2009). The effect of continuing professional education on health care outcomes: lessons for dementia care. International Psychogeriatrics, 21 (Suppl. 1), S34–S43. doi:10.1017/S1041610209008746.Google Scholar
Schoenmakers, B., Buntinx, F. and DeLepeleire, J. (2010). Supporting the dementia family caregiver: the effect of home care intervention on general well-being. Aging & Mental Health, 14, 44–56.Google Scholar
The Alzheimer's Association (2015). 2015 Alzheimer's disease facts and figures. Alzheimer's & Dementia, 11, 332–384. doi:10.1016/j.jalz.2015.02.003.CrossRefGoogle Scholar
Thompson, C. A., Spilsbury, K., Hall, J., Birks, Y., Barnes, C. and Adamson, J. (2007). Systematic review of information and support interventions for caregivers of people with dementia. BMC Geriatrics, 7, 18.Google Scholar
Van Mierlo, L. D., Meiland, F. J., Van der Roest, H. G. and Droes, R. M. (2012). Personalised caregiver support: effectiveness of psychosocial interventions in subgroups of caregivers of people with dementia. International Journal of Geriatric Psychiatry, 27, 1–14. doi:http://dx.doi.org/ 10.1002/gps.2694.CrossRefGoogle ScholarPubMed
Wethington, E. and Burgio, L. D. (2015). Translational research on caregiving: missing links in the translation process. In Gaugler, J. E. and Kane, R. L. (eds.), Family Caregiving in the New Normal (pp. 193–210). San Diego, CA: Elsevier, Inc.Google Scholar
Zarit, S. H. (2009). Empirically supported treatment for family caregivers. In Qualls, S. H. and Zarit, S. H. (eds.), Aging Families and Caregiving (pp. 131–154). Hoboken, NJ: John Wiley & Sons, Inc.Google Scholar