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Priorities and satisfaction on the help needed and provided in a first episode of psychosis. A survey in five European Family Associations☆

Published online by Cambridge University Press:  16 April 2020

L. de Haan ,
L. Kramer ,
B. van Raay ,
M. Weir ,
J. Gardner ,
S. Akselson ,
E. Ladinser ,
S. McDaid ,
S. Hernández Dols  and
L. Wouters
L. de Haan*
Affiliation:
Adolescent Clinic, Academic Medical Center/de Meren, University of Amsterdam, Department of Psychiatry, Postbox 22700 1100 DE, Amsterdam, The Netherlands
L. Kramer
Affiliation:
Adolescents with Psychotic Disorders, Psychiatric Spectrum Gelderland-Oost, Warnsveld, The Netherlands
B. van Raay
Affiliation:
EUFAMI, The European Federation of Associations of Families of Mentally III People, Heverlee, Belgium
M. Weir
Affiliation:
National Schizophrenia Fellowship (Scotland), [NSF (Scotland)], UK
J. Gardner
Affiliation:
National Schizophrenia Fellowship (Scotland), [NSF (Scotland)], UK
S. Akselson
Affiliation:
Swedish Schizophrenia Fellowship, Riks-IFS, Sweden
E. Ladinser
Affiliation:
H.P.E. Hilfe fur Angehorige psychisch Erkrankter, Austria
S. McDaid
Affiliation:
Schizophrenia Ireland (SI), Ireland
S. Hernández Dols
Affiliation:
Confederacion Espanola de Agrupaciones de Familiares y Enfermos Mentales FEAFES, Spain
L. Wouters
Affiliation:
Adolescent Clinic, Academic Medical Center/de Meren, University of Amsterdam, Department of Psychiatry, Postbox 22700 1100 DE, Amsterdam, The Netherlands
*
*Corresponding author. E-mail address:[email protected] (L. de Haan).
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Summary

In the case of a first episode of psychosis among members of different associations of families of mentally ill people, little is known about their priorities and how satisfied they are with the help provided to them. A survey was conducted in five European family associations. Respondents emphasized the need for early (ambulant) intervention through outreach with very practical goals directed at creating stability and social functioning. About one-third of the respondents are unsatisfied or very unsatisfied. The highest percentage of unsatisfied respondents was in the following five areas of care: advice on how to handle specific problems; help with preserving or regaining social functioning; help with regaining structure and routine; information; prompt assistance preferably in patientˈs own environment. The agreement of these findings with findings from earlier studies underlines the importance of suggesting specific changes in the delivery of care.

Keywords

First episodePriorities for treatmentFamily membersPsychotic disorderSchizophrenia
Type
Original Article
Information
European Psychiatry , Volume 17 , Issue 8 , December 2002 , pp. 425 - 433
Copyright
Copyright © Éditions scientifiques et médicales Elsevier SAS 2002

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Footnotes

☆

In this survey, the person who experiences the first psychotic episode has been referred to as the ‘patient’. This word is used for solely practical reasons and is not intended to reflect any specific perception by the researchers of the person with the psychosis.

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