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Educational needs in adults with congenitally malformed hearts

Published online by Cambridge University Press:  18 July 2008

Helén Rönning ,
Niels Erik Nielsen ,
Eva Swahn  and
Anna Strömberg
Helén Rönning*
Affiliation:
Department of Medical and Health Sciences, Division of Nursing Science, Linköping University, Sweden
Niels Erik Nielsen
Affiliation:
Department of Cardiology, Linköping University Hospital, Linköping, Sweden
Eva Swahn
Affiliation:
Department of Medical and Health Sciences, Division of Cardiovascular Medicine, Linköping University, Sweden
Anna Strömberg
Affiliation:
Department of Medical and Health Sciences, Division of Nursing Science, Linköping University, Sweden
*
Correspondence to: Helén Rönning RN, Department of Cardiology, Linköping University Hospital, S-581 85 Linköping, Sweden. Tel: +46 1322 87 79; Fax: +46 13 22 22 24; E-mail: [email protected]
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Abstract

Background and aim

The number of adults with congenitally malformed hearts is growing, and there is an increasing demand for their continuous follow-up. At present, different programmes have been established for adults with congenital cardiac disease, but there is a lack of knowledge regarding how education and psychosocial support should be given to achieve effects. Before developing educational programmes, it is necessary to be aware of the perspective of the patients. The aim of our study, therefore, was to describe how adults with congenitally malformed hearts experience their educational needs.

Methods

The study had a qualitative design. We interviewed 16 adults, aged from 19 to 55 years, with congenitally malformed hearts.

Results

Two-way communication emerged as crucial to individualising education. Without good communication, those with congenitally malformed hearts, receiving information from providers of healthcare, are unable to transfer the information received. Thus, individualised education gives access to knowledge and the tools required to manage important areas in life, such as the congenital cardiac malformation, physical activity, the situation of life, treatment, and resources available for healthcare. The information given should provide easy access to knowledge through proper educational materials and methods, and be given with respect for the individual. This is facilitated if the education is tailored to the requirements of the individual in a holistic approach, and is provided through good communication.

Conclusion

Our investigation shows that a structured educational programme needs to start from the perspective of the individual patient, and that two-way communication needs to be taken into consideration to enhance knowledge.

Keywords

Patient' experiencespatient informationphenomenographicsqualitative studypatient educationcongenital heart disease
Type
Original Article
Information
Cardiology in the Young , Volume 18 , Issue 5 , October 2008 , pp. 473 - 479
Copyright
Copyright © Cambridge University Press 2008

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