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Can linking databases answer questions about paediatric heart failure?*

Published online by Cambridge University Press:  17 September 2015

Sara K. Pasquali*
Affiliation:
Department of Pediatrics, University of Michigan C.S. Mott Children’s Hospital, Ann Arbor, Michigan, United States of America
Kurt R. Schumacher
Affiliation:
Department of Pediatrics, University of Michigan C.S. Mott Children’s Hospital, Ann Arbor, Michigan, United States of America
Ryan R. Davies
Affiliation:
Nemours Cardiac Center, Nemours/A.I. duPont Hospital for Children, Wilmington, Delaware, United States of America
*
Correspondence to: S. K. Pasquali, MD MHS, Associate Professor of Pediatrics, University of Michigan Congenital Heart Center, C.S. Mott Children’s Hospital, 1540 E. Hospital Drive 11-715z, Ann Arbor, Michigan 48109, United States of America. Tel: (734) 232-8594; Fax: (734) 936-9470; E-mail: [email protected]

Abstract

Numerous data sets collect information on patients with paediatric cardiovascular disease, including paediatric heart failure and transplant patients. This review discusses methodologies available for linking and integrating information across data sets, which may help facilitate answering important questions in the field of paediatric heart failure and transplant that cannot be answered with individual data sets or single-centre data alone.

Type
Original Articles
Copyright
© Cambridge University Press 2015 

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Footnotes

*

Presented at Johns Hopkins All Children’s Heart Institute, International Pediatric Heart Failure Summit, Saint Petersburg, Florida, United States of America, 4–5 February, 2015.

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