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Older People with Learning Difficulties Leaving Institutional Care—A Case of Double Jeopardy1

Published online by Cambridge University Press:  14 November 2008

Alan Walker
Affiliation:
Department of Sociological Studies, University of Sheffield, Sheffield S102TU, U.K.
Carol Walker
Affiliation:
School of Health and Community Studies, Sheffield Hallam University, 36 Collegiate Crescent, Sheffield S102BP, U.K.
Tony Ryan
Affiliation:
School of Health and Community Studies, Sheffield Hallam University, 36 Collegiate Crescent, Sheffield S102BP, U.K.

Abstract

People with learning difficulties are now surviving into old age and more and more of them are being resettled from long-stay hospitals. The main purpose of this article is to examine some of the key barriers facing, and dilemmas involved in, the provision of community-based services to this newly emerging user group. The findings of some recent field research on older people with learning difficulties who have been resettled into the community are used to illustrate the challenges facing service providers. Particular reference is made to the impact of age discrimination and traditional differences between service specialisms. The article shows that both official definitions of need in old age and the aspirations of the service responses to those needs have been artificially constructed in very narrow terms, especially when compared with the principled approach to service provision for younger people with learning difficulties. In conclusion, therefore, it is argued that the principles underpinning services for people with learning difficulties, such as normalisation, should be applied to older people as well.

Type
Research Article
Copyright
Copyright Cambridge University Press 1996

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References

Anderson, D. 1993. Health issues. In Sutton, E., Factor, A., Hawkins, B., Heller, T. and Seltzer, G. (eds), Older Adults with Developmental Disabilities. Paul Brookes, Baltimore, 2948.Google Scholar
Booth, T., Simons, K. and Booth, W. 1990. Outward Bound. Open University Press, Milton Keynes.Google Scholar
Brown, H. and Smith, S. 1992. Normalisation: A Reader for the Nineties. Routledge, London.CrossRefGoogle Scholar
CMH. 1985. Planning for Change. CMH.Google Scholar
Collins, J. 1993. The Resettlement Game. Values into Action.Google Scholar
Dybwad, G. 1962. Administrative and legislative problems in the care of the adult and aged mental retarded. American Journal of Mental Deficiency, 66, 716722.Google Scholar
Emerson, E. 1992. In Brown, and Smith, , 1962. Administrative and legislative problems in the care of the adult and aged mental retarded. American Journal of Mental Deficiency, 66, 716722.Google Scholar
Eyman, R., Grossman, H., Tarjan, G. and Miller, C. 1987. Life Expectancy and Mental Retardation: A Longitudinal Study in a State Residential Facility. American Association on Mental Deficiency, Washington, D.C.Google Scholar
Farnham-Diggory, S. 1978. Learning Disabilities. Fontana, London.Google Scholar
Henwood, M. 1990. No sense of urgency. In McEwan, E. (ed.), Age: The Unrecognised Discrimination. ACE Books, London, 4357.Google Scholar
Hogg, J., Moss, S. and Horne, M. 1989. Residential Provision and Service Patterns in a Population of People Over the Age of 50 Years and with Severe Intellectual Impairment. Hester Adrian Research Centre, Manchester.Google Scholar
Hogg, J., Moss, S. and Cooke, D. 1988. Ageing and Mental Handicap. Croom Helm, London.Google Scholar
Jacobson, J., Sutton, M. and Janicki, M. 1985. Demography and characteristics of ageing and aged mentally retarded persons. In Janicki, M. and Wisniewski, H. (eds), Aging and Developmental Disabilities: Issues and Approaches. Paul Brookes, Baltimore, 1832.Google Scholar
Janicki, M. and Jacobson, J. 1986. Generational trends in sensory, physical and behavioural abilities among older mentally retarded persons. American Journal of Mental Deficiency, 19, 490500.Google Scholar
Janicki, M. and MacEachron, A. 1984. Residential, health and social service needs of elderly developmentally disabled persons. The Gerontologist, 84, 128–37.Google Scholar
Janicki, M. and Wisniewski, H. (eds). 1985. Aging and Developmental Disabilities: Issues and Approaches. Paul Brookes, Baltimore.Google Scholar
Janicki, M., Ackerman, L. and Jacobson, J. 1985. State developmental disabilities/aging plans and planning for an older developmentally disabled population. Mental Retardation, 23 (6), 297301.Google ScholarPubMed
King's Fund. 1982. An Ordinary Life: Comprehensive Locally-Based Residential Services for Mentally Handicapped People, 2nd edition. King's Fund, London.Google Scholar
Korman, N. and Glennerster, H. 1990. Hospital Closure. Open University Press, Milton Keynes.Google Scholar
Laucht Kuehn, M. and Imm-Thomas, P. 1993. A multicultural context. In Sutton, E., Factor, A., Hawkins, B., Heller, T. and Seltzer, G. (eds), Older Adults with Developmental Disabilities. Paul Brookes, Baltimore, 327343.Google Scholar
Martin, J., Meltzer, H. and Eliot, D. 1988. Prevalence of Disability Among Adults. HMSO, London.Google Scholar
Means, R. 1986. The development of social services for elderly people: historical perspectives. In Phillipson, C. and Walker, A. (eds), Ageing and Social Policy. Gower, Aldershot, 87108.Google Scholar
National Institute on Aging. 1987. Personnel for the Health Needs of the Elderly. National Institute on Aging, Washington, D.C.Google Scholar
NWRHA. 1982. A Model District Service. NWRHA, Manchester.Google Scholar
NWRHA. 1985. Run-Down of Hospitals for People with Mental Handicap in the N.W. Region: A Consultative Document. NWRHA, Manchester.Google Scholar
O'Brien, J. 1986. A Guide to Personal Futures Planning. Responsive Systems Associates, Atlanta.Google Scholar
Oliver, M. 1990. The Politics of Disablement. Macmillan, London.CrossRefGoogle Scholar
Qureshi, H. and Walker, A. 1989. The Caring Relationship. Macmillan, London.CrossRefGoogle Scholar
Roberto, K. (ed). 1993. The Elderly Caregiver. Sage, Newbury Park, Cal.Google Scholar
Ryan, J. and Thomas, F. 1980. The Politics of Mental Handicap. Penguin Books, Harmondsworth.Google Scholar
Schorr, A. 1992. The Personal Social Services: An Outside View. Joseph Rowntree Foundation, York.Google Scholar
Seltzer, M. 1985. Informal supports for elderly mentally retarded persons. American Journal of Mental Deficiency, 89, 257266.Google Scholar
Seltzer, M. and Janicki, M. 1991. Commentary and recommendations. In Janicki, M. and Seltzer, M. (eds), Aging and Developmental Disabilities: Challenges for the 1990s. American Association on Mental Retardation, Washington, D.C., 101104.Google Scholar
Seltzer, M. and Seltzer, G. 1985. The elderly mentally retarded: A group in need of service. Journal of Gerontological Social Work, 8, 99119.CrossRefGoogle Scholar
Social Services Committee 1985. Community Care. HC-1, HMSO, London.Google Scholar
Sutton, E., Factor, A., Hawkins, B., Heller, T. and Seltzer, G. (eds) 1993. Older Adults with Developmental Disabilities. Paul Brookes, Baltimore.Google Scholar
Sutton, E., Sterns, H. and Schwartz Park, L. 1993. Realities of retirement and pre-retirement planning. In Sutton, E., Factor, A., Hawkins, B., Heller, T. and Seltzer, G. (eds), Older Adults with Developmental Disabilities. Paul Brookes, Baltimore, 95106.Google Scholar
Towell, D. (ed). 1985. An Ordinary Life in Practice: Developing Community-Based Services for People with Learning Disabilities. King Edward's Hospital Fund for London, London.Google Scholar
Townsend, P. 1981. Elderly people with disabilities. In Walker, A. with Townsend, P. (eds), Disability in Britain. Martin Robertson, Oxford, 91118.Google Scholar
Townsend, P. 1986. Ageism and social policy. In Phillipson, C. and Walker, A. (eds), Ageing and Social Policy. Gower, Aldershot, 1544.Google Scholar
Values into Action. 1993. The Resettlement Game: Policy and Procrastination in the Closure of Mental Handicap Hospitals. Joseph Rowntree Foundation, York.Google Scholar
Walker, A. 1980. The social creation of poverty and dependency in old age. Journal of Social Policy, 9 (1), 4975.CrossRefGoogle Scholar
Walker, A. 1985. The Care Gap. Local Government Information Unit, London.Google Scholar
Walker, A. 1989. Community care. In McCarthy, M. (ed), The New Politics of Welfare. Macmillan, London, 205225.Google Scholar
Walker, A. 1993. Community care policy: From consensus to conflict. In Bornat, J., Pereira, C., Pilgrim, D. and Williams, F. (eds), Community Care—A Reader. Macmillan, London, 204226.Google Scholar
Walker, C., Ryan, T. and Walker, A. 1993. Quality of Life after Resettlement for People with Learning Disabilities. School of Health and Community Studies, Sheffield Hallam University.Google Scholar
Walz, T., Harper, D. and Wilson, J. 1986. The aging developmentally disabled person: A review. The Gerontologist, 26 (6), 622629.Google Scholar
Wisniewski, K. and Hill, A. 1985. Clinical aspects of dementia in mental retardation and developmental disabilities. In Janicki, M. and Wisniewski, H. (eds), Aging and Developmental Disabilities: Issues and Approaches. Paul Brookes, Baltimore, 195206.Google Scholar
Wolfensberger, W. 1972. The Principle of Normalisation in Human Services. National Institute on Mental Retardation, Toronto.Google Scholar
Zarb, G. 1991. Creating a supportive environment: Meeting the needs of people who are ageing with a disability. In Oliver, M. (ed), Social Work: Disabled People and Disabling Environments. Jessica Kingsley, London.Google Scholar
Zarb, G. and Oliver, M. 1993. Ageing with a Disability: What Do They Expect After All These Tears? Joseph Rowntree Foundation, York.Google Scholar