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Chapter 3 - Working in Partnership with People with Lived Experience

An Inclusive Methodology

Published online by Cambridge University Press:  06 February 2025

Kathy Ellem ,
Paul Harpur ,
Fotina Hardy ,
Michael Ashley Stein  and
Ann Fudge Schormans
Kathy Ellem
Affiliation:
University of Queensland
Paul Harpur
Affiliation:
University of Queensland
Fotina Hardy
Affiliation:
Central Queensland University
Michael Ashley Stein
Affiliation:
Harvard Law School, Massachusetts
Ann Fudge Schormans
Affiliation:
McMaster University, Ontario
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Summary

This chapter explains how the researchers talked to young people with cognitive disability, their families, and practitioners. The researchers included people with disability on the research team. The researchers wanted to know what was happening for young people with cognitive disability. They wanted to know about the world in which young people with cognitive disability lived. There was much to be learnt about working well with people with disability in research. It’s important that people with cognitive disability have a voice in the research that is about them.

Keywords

cognitive disabilityyoung peopleinclusive researchConvention on the Rights of Persons with Disabilities (CRPD)
Type
Chapter
Information
Young People with Cognitive Disability in Transition to Adulthood , pp. 40 - 66
Publisher: Cambridge University Press
Print publication year: 2025

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