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Chapter 4 - Working with Adolescents with Medical Concerns

Published online by Cambridge University Press:  18 January 2020

Kristin H. Kroll
Kristin H. Kroll
Affiliation:
Medical College of Wisconsin
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Summary

This chapter focuses on empirically supported interventions for common problems that may arise during clinical work with adolescents presenting with medical problems. The reader will be introduced to a review of the current research literature regarding psychological interventions for adolescents, with specific emphasis on evidence-based interventions for treatment adherence and assisting patients and their families in transitioning from pediatric to adult care. The reader will then be provided with an example behavior contract for adherence and empirically supported assessments for adherence. Beneficial resources are identified that can be utilized to assist with treatment adherence and the transition of medical care from the pediatric to adult clinic.

Keywords

adolescentteenagertreatment adherencetransitionmedical
Type
Chapter
Information
Pediatric Psychology in Clinical Practice
Empirically Supported Interventions
 , pp. 53 - 82
Publisher: Cambridge University Press
Print publication year: 2020

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References

Abraham, C. & Michie, S. (2008). A taxonomy of behavior change techniques used in interventions. Health Psychology, 27, 379–387.CrossRefGoogle ScholarPubMed
Adherium. (2015). Devices. Retrieved November 17, 2017, from www.smartinhaler.com/devices/.Google Scholar
American Academy of Pediatrics, American Academy of Family Physicians, & American College of Physicians. (2011). Supporting the health care transition from adolescence to adulthood in the medical home. Pediatrics, 128(1), 182–202.CrossRefGoogle Scholar
Aubin, S. & Perez, S. (2015). The clinician’s toolbox: assessing the sexual impacts of cancer on adolescents and young adults with cancer (AYAC). The Journal of Sexual Medicine, 3(3), 198–212.CrossRefGoogle Scholar
Bakker, D., Kazantzis, N., Rickwood, D., & Rickard, N. (2016). Mental health smartphone apps: review and evidence-based recommendations for future developments. JMIR Mental Health, 3(1), e7. doi: 10.2196/mental.4984.Google Scholar
BC Children’s Hospital. (2017). Transition to Adult Care. Retrieved November 17, 2017, from www.bcchildrens.ca/our-services/support-services/transition-to-adult-care.Google Scholar
Bernard, R. & Cohen, L. (2004). Increasing adherence to cystic fibrosis treatment: a systematic review of behavioral techniques. Pediatric Pulmonology, 37, 8–16.Google Scholar
Bishay, L. & Sawicki, G. (2016). Strategies to optimize treatment adherence in adolescent patients with cystic fibrosis. Adolescent Health, Medicine, and Therapeutics, 7, 117–124.Google Scholar
Bouchery, E., Harwood, H., Sacks, J., Simon, C., & Brewer, R. (2011). Economic costs of excessive alcohol consumption in the U.S., 2006. American Journal of Preventative Medicine, 41(5), 516–524.Google Scholar
Brannon, E. & Cushing, C. (2014). A systematic review: is there an app for that? Translational science of pediatric behavior change for physical activity and dietary interventions. Journal of Pediatric Psychology, 40(4), 373–384.CrossRefGoogle ScholarPubMed
Brown, R., Ramsey, S. Strong, D., Myers, M., Kahler, C., Niaura, R., Pallonen, U., Kazura, A., Goldstein, M., & Abrams, D. (2003). Effects of motivational interviewing on smoking cessation in adolescents with psychiatric disorders. Tobacco Control, 12, iv3–iv10.Google Scholar
Burcu, E. (2014). Disability and youth suicide: a focus group study of disabled university students. Review of Disability Studies: An International Journal, 3(1), 33–48.Google Scholar
Canadian Pediatric Society. (2007). Transition to adult care for youth with special health care needs. Paediatrics and Child Health, 12(9), 785–788.CrossRefGoogle Scholar
Case Western Reserve University. (2011). Resources. Retrieved November 17, 2017, from www.centerforebp.case.edu/resources/tools/product=5&category=47.Google Scholar
Cohen, S., Hooper, S., Javalkar, K., Haberman, C., Fenton, N., Lai, H., Mahan, J., Massengill, S., Phillips, A., Sawicki, G., Wood, D., Johnson, M., Benton, M., & Ferris, M. (2015). Self-management and transition readiness assessment: concurrent, predictive and discriminate validation of the Starx Questionnaire. Journal of Pediatric Nursing, 30, 668–676.Google Scholar
Collins, A., Laursen, B., Mortenson, N., Luebker, C., & Ferreira, M. (1997). Conflict processes and transitions in parent and peer relationships: implications for autonomy and regulation. Journal of Adolescent Research, 12, 178–198.Google Scholar
Collins, W., Welsh, D., & Furman, W. (2009). Adolescent romantic relationships. Annual Review of Psychology, 60, 631–652.Google Scholar
Columbia Lighthouse Project. (2016). C-SSRS for Communities and Healthcare. Retrieved December 4, 2017, from http://cssrs.columbia.edu/the-columbia-scale-c-ssrs/cssrs-for-communities-and-healthcare/#filter=.general-use.english.Google Scholar
Degotardi, P., Klass, E., Rosenberg, B., Fox, D., Gallelli, K., & Gottlieb, B. (2006). Development and evaluation of a cognitive-behavioral interventionfor juvenile fibromyalgia. Journal of Pediatric Psychology, 31(7), 714–723.Google Scholar
DiMatteo, M., Lepper, H., & Croghan, T. (2000). Depression is a risk factor for noncompliance with medical treatment: a meta-analysis of the effects of anxiety and depression in patient adherence. Archives of Internal Medicine, 160, 2101–2107.Google Scholar
Dryfoos, J. (1993). Common components of successful interventions with high-risk youth. In Bell, N. & Bell, R. (eds.), Adolescent Risk-Taking (pp. 131–147). Newbury Park, CA: Sage.Google Scholar
East Tennessee State University. (2017). Transition Readiness Assessment Questionnaire. Retrieved November 17, 2017, from www.etsu.edu/com/pediatrics/traq/.Google Scholar
Ellis, D., Frey, M., Naar-King, S., et al. (2005). Use of multisystemic therapy to improve regimen adherence among adolescents with type 1 diabetes in chronic poor metabolic control: a randomized controlled trial. Diabetes Care, 28, 1604–1610.Google Scholar
Equal Employment Opportunity Commission. (2008). ADA Amendments Act of 2008. Retrieved December 1, 2017, from www.eeoc.gov/laws/statutes/adaaa.cfm.Google Scholar
Erickson, S., Gerstle, M., & Feldstein, S. (2005). Brief interventions and motivational interviewing with children, adolescents, and their parents in pediatric health settings. Archives of Pediatrics and Adolescent Medicine, 159, 1173–1180.CrossRefGoogle Scholar
Family Voice. (n.d.). Kids as Self Advocates. Retrieved November 17, 2017, from www.fvkasa.org/index.php.Google Scholar
Gold, M. & Kokotailo, P. (2007). Motivational interviewing strategies to facilitate adolescent behavior change. Adolescent Health Update, 20(1), 1–10.Google Scholar
Got Transition. (2014). The Six Core Elements of Health Care Transition (2.0). Retrieved from http://gottransition.org/resourceGet.cfm?id=206.Google Scholar
Gurvitz, M., Inkelas, M., Lee, M., Stout, K., Escarce, J., & Chang, R. (2007). Changes in hospitalization patterns among patients with congenital heart disease during the transition from adolescence to adulthood. Journal of the American College of Cardiology, 49, 875–882.Google Scholar
Hackworth, N., Hamilton, V., Moore, S., Northam, E., Bucalo, Z., & Cameron, F. (2013). Predictors of diabetes self-care, metabolic control, and mental health in youth with type 1 diabetes. Australian Psychologist, 48, 360–369.Google Scholar
Hanghoj, S. & Boisen, K. (2014). Self-reported barriers to medication adherence among chronically ill adolescents: a systematic review. Journal of Adolescent Health, 54, 121–138.Google Scholar
Harter, S. (1986). Processes underlying the construction, maintenance, and enhancement of the self-concept in children. In Suls, J. & Greenwald, A. (eds.), Psychological Perspectives on the Self (vol. 3, pp. 136–182). Hillsdale, NJ: Erlbaum.Google Scholar
Horwitz, R. & Horwitz, S. (1993). Adherence to treatment and health outcomes. Archives of Internal Medicine, 153(16), 1863–1868.Google Scholar
Houman, K. & Stapley, J. (2013). The college experience for students with chronic illness: implications for academic advising. NACADA Journal, 33(1), 61–69.Google Scholar
Kann, L., McManus, T., Harris, W., Shanklin, S., Flint, K., Hawkins, J., Queen, B., Lowry, R., Olsen, E., Chyen, D., Whittle, L., Thornton, J., Lim, C., Yamakawa, Y., Brener, N., & Zaza, S. (2016). Youth risk behavior surveillance – United States, 2015. MMWR Surveillance Summaries, 65, 1–174.Google Scholar
Knight, A., Weiss, P., Morales, K., Gerdes, M., Rearson, M., Vickery, M., & Keren, R. (2015). Identifying differences in risk factors for depression and anxiety in pediatric chronic disease: a matched cross-sectional study of youth with lupus/mixed connective tissue disease and their peers with diabetes. Journal of Pediatrics, 167(6), 1397–1403.Google Scholar
La Greca, A. & Bearman, K. (2003). Adherence to pediatric regimens. In Roberts, M. (ed.), Handbook of Pediatric Psychology, 3rd ed. (pp. 119–140). New York: Guilford Press.Google Scholar
Lam, W. & Fresco, P. (2015). Medication Adherence Measures: An Overview. BioMed Research International. doi: 10.1155/2015/217047.Google Scholar
LeBovidge, J., Lavigne, J., Donenberg, G., & Miller, M. (2003). Psychological adjustment of children and adolescents with chronic arthritis: a meta-analytic review. Journal of Pediatric Psychology, 28, 29–39.Google Scholar
Lemanek, K., Kamps, J., & Chung, N. (2001). Empirically supported treatments in pediatric psychology: regimen adherence. Journal of Pediatric Psychology, 26(5), 253–275.Google Scholar
Levy, S., Dedeoglu, F., Gaffin, J., Garvey, K., Harstad, E., MacGinnitie, A., Rufo, P., Huang, Q., Ziemnik, R., Wisk, L., & Weitzman, E. (2016). A screening tool for assessing alcohol use risk among medically vulnerable youth. PLOS One, 11(5), e0156240.Google Scholar
Lotstein, D., McPherson, M., Strickland, B., & Newacheck, P. (2005). Transition planning for youth with special health care needs: results from the National Survey of Children with Special Health Care Needs. Pediatrics, 115(6), 1562–1568.Google Scholar
Madden, M., Lenhart, A., Cortesi, S., & Gasser, V. (2013). Teens and Mobile Apps Privacy. Pew Internet and American Life Project. Retrieved November 20, 2017, from www.pewinternet.org/2013/08/22/main-findings-3/.Google Scholar
Martinez, W., Smith, J., & Legato, L. (2011). Social competence in children with chronic illness: a meta-analytic review. Journal of Pediatric Psychology, 36(8), 878–890.Google Scholar
McManus, M., White, P., Pirtle, R., Hancock, C., Ablan, M., & Corona-Parra, R. (2015). Incorporating the six core elements of health care transition into a Medicaid managed care plan: lessons learned from a pilot project. Journal of Pediatric Nursing, 30, 700–713.Google Scholar
MINT. (2017). Welcome to the Motivational Interviewing Website! Retrieved November 17, 2017, from http://motivationalinterviewing.org/.Google Scholar
Modi, A., Guilfoyle, S., & Rausch, J. (2013). Preliminary feasibility, acceptability, and efficacy of an innovative adherence intervention for children with newly diagnosed epilepsy. Journal of Pediatric Psychology, 38(6), 605–616.Google Scholar
Naspitz, C. & Tinkelman, D. (2001). Barriers to measuring and achieving optimal outcomes in pediatric asthma. Journal of Asthma and Immunology, 107, S482–S484.Google Scholar
National Alliance on Mental Illness. (2017). Managing a Mental Health Condition in College. Retrieved December 1, 2017, from www.nami.org/Find-Support/Teens-Young-Adults/Managing-a-Mental-Health-Condition-in-College.Google Scholar
National Institute on Alcoholism and Alcohol Abuse. (2015). A Screening Tool for Assessing Alcohol Use among Medically Vulnerable Youth. Retrieved November 20, 2017, from https://pubs.niaaa.nih.gov/publications/Practitioner/YouthGuide/YouthGuide.pdf.Google Scholar
Neinstein, L. (2001). The treatment of adolescents with a chronic illness. The Western Journal of Medicine, 175(5), 293–295.Google Scholar
Nguyen, A., Caze, A., & Cottrell, N. (2014). What are validated self-report adherence scales really measuring? A systematic review. British Journal of Clinical Pharmacology, 77(3), 427–445.Google Scholar
Pai, A., Drotar, D., & Kodish, E. (2008). Correspondence between objective and subjective reports of adherence among adolescents with acute lymphoblastic leukemia. Child Health Care, 37, 225–235.Google Scholar
Patenaude, A. & Kupst, J. (2005). Psychosocial functioning in pediatric cancer. Journal of Pediatric Psychology, 30, 9–27.Google Scholar
Pinquart, M. (2014). Achievement of developmental milestones in young adults with and without pediatric chronic illness – a meta-analysis. Journal of Pediatric Psychology, 39(6), 577–587.Google Scholar
Posner, K., Brent, D., Lucas, C, Gould, M., Stanley, B, Brown, G., Fisher, P., Zelazny, J., Burke, A., Oquendo, M., & Mann, J. (2009, January). Columbia-Suicide Severity Rating Scale. http://cssrs.columbia.edu/the-columbia-scale-c-ssrs/cssrs-for-communities-and-healthcare/#filter=.general-use.english.Google Scholar
Posner, K., Brown, G., Stanley, B., Brent, D., Yershova, K., Oquendo, M., Currier, G., Melvin, G., Greenhill, L., Shen, S., & Mann, J. J. (2011). The Columbia- Suicide Severity Rating Scale (C-SSRS): initial validity and internal consistency findings from three multi-site studies with adolescents and adults. American Journal of Psychiatry, 168(12), 1266–1277.Google Scholar
Quittner, A., Assael, B., Bregenballe, V., Goldbeck, L., Hug, M., & Pypops, U. (n.d.). Aim: Identify and Evaluate Tools to Measure Adherence [scholarly project]. Retrieved September 25, 2017, from www.ecfs.eu/sites/default/files/general-content- files/working-groups/ahp-.Google Scholar
Quittner, A., Modi, A., Lemanek, K., Ievers-Landis, C., & Rapoff, M. (2007). Evidence-based assessment of adherence to medical treatments in pediatric psychology. Journal of Pediatric Psychology, 33(9), 916–936.Google Scholar
Rapoff, M. (2011). Adherence to Pediatric Medical Regimens, 2nd ed. New York: Springer.Google Scholar
Riekert, K., Eakin, M., Bilderback, A., Ridge, A., & Marshall, B. (2015). Opportunities for cystic fibrosis care teams to support treatment adherence. Journal of Cystic Fibrosis, 14(1), 142–148.Google Scholar
Rothstein, L. (2013). Getting Practical: ADA and Accommodation Issues on Campus. Retrieved December 1, 2017, from www.higheredcompliance.org/resources/resources/Practical-Tips-Managing-Disabiilty-Related-Issues1.pdf.Google Scholar
Sawicki, G., Lukens-Bull, K., Yon, X., Demars, N., Huang, I., Livingood, W., Reiss, J., & Wood, D. (2009). Measuring the transition readiness of youth with special healthcare needs: validation of the TRAQ-Transition Readiness Assessment Questionnaire. Journal of Pediatric Psychology, 36(2), 160–171.Google Scholar
Schwartz, L., Daniel, L., Brumley, L., Barakat, L., Wesley, K., & Tuchman, L. (2014). Measures of readiness to transition to adult health care for youth with chronic physical health conditions: a systematic review for measurement testing and development. Journal of Pediatric Psychology, 39(6), 588–601.Google Scholar
SickKids. (2014). Good 2 Go Transition Program. Retrieved November 17, 2017, from www.sickkids.ca/good2go.Google Scholar
Society of Pediatric Psychology. (2016). Assessment Resource Sheet: Measures of Adherence to Medical Treatments. Retrieved November 17, 2017, from www.societyofpediatricpsychology.org/measures_of_adherence.Google Scholar
Stark, L., Janicke, D., McGrath, A., et al. (2005). Prevention of osteoporosis: a randomized clinical trial to increase calcium intake in children with juvenile rheumatoid arthritis. Journal of Pediatric Psychology, 30, 377–386.Google Scholar
Stark, L., Mackner, L., Patton, S., & Acton, J. (2003). Cystic fibrosis. In Roberts, M. C. (ed.), Handbook of Pediatric Psychology, 3rd ed. (pp. 286–303). New York: Guilford Press.Google Scholar
Suris, J., Michaud, P., & Viner, R. (2004). The adolescent with a chronic condition: part 1: developmental issues. Archives of Disease in Childhood, 89, 938–942.Google Scholar
Taylor, T. & Montgomery, P. (2007). Can cognitive-behavioral therapy increase self-esteem among depressed adolescents? A systematic review. Children and Youth Services Review, 29(7), 823–839.Google Scholar
UNC Starx Program. (2016, June 28). Retrieved October 9, 2017, from www.med.unc.edu/transition/transition-tools/trxansition-scale.Google Scholar
University of Washington. (2012). Adolescent Health Transition Project. Retrieved November 17, 2017, from http://depts.washington.edu/healthtr/.Google Scholar
Wamboldt, M. & Wamboldt, F. (2000). Role of the family in the onset and outcome of childhood disorders: selected research findings. Journal of the American Academy of Child and Adolescent Psychiatry, 39, 1212–1219.Google Scholar
Weitzman, E., Ziemnik, R., Huang, Q., & Levy, S. (2015). Alcohol and marijuana use and treatment adherence among medically vulnerable youth. Pediatrics, 136, 450–457.Google Scholar
West Rock Company. (2016). MEMS® Cap Versatile Adherence Monitoring Cap. Retrieved November 17, 2017, from www.medamigo.com/products/mems-cap.Google Scholar
Wodka, E. & Barakat, L. (2007). An exploratory study of the relationship of family support and coping with adjustment: implications for college students with a chronic illness. Journal of Adolescence, 30, 366–376.Google Scholar
Wolfstadt, J., Kaufman, A., Levitin, J., & Kaufman, M. (2001). The use and usefulness of MyHealth Passport: an online tool for the creation of a portable health summary. International Journal of Child and Adolescent Health, 3, 499–506.Google Scholar
Wood, D., Sawicki, G., Miller, M., Smotherman, C., Lukens, B., Livingwood, W., Ferris, M, & Kraemer, D. (2014). The Transition Readiness Assessment Questionnaire (TRAQ): its factor structure, reliability, and validity. Academic Pediatrics, 14(4), 415–422.Google Scholar
Wysocki, T., Green, L., & Huxtable, K. (1989). Blood glucose monitoring by diabetic adolescents: compliance and metabolic control. Health Psychology, 8(3), 267–284.Google Scholar
Yeo, M. & Sawyer, S. (2005). Chronic illness and disability. BMJ, 330(7493), 721–723.Google Scholar
Zuckerman, J., Devine, K., & Holmbeck, G. (2010). Adolescent predictors of emerging adulthood milestones in youth with spina bifida. Journal of Pediatric Psychology, 36(3), 265–276.Google Scholar
American Psychological Association. (2002). Developing Adolescents: A Reference for Professionals. Retrieved December 1, 2017, from www.apa.org/pi/families/resources/develop.pdf.Google Scholar
Erickson, S., Gerstle, M., & Feldstein, S. (2005). Brief interventions and motivational interviewing with children, adolescents, and their parents in pediatric health settings. Archives of Pediatrics and Adolescent Medicine, 159, 1173–1180.CrossRefGoogle Scholar
Gold, M. & Kokotailo, P. (2007). Motivational interviewing strategies to facilitate adolescent behavior change. Adolescent Health Update, 20(1), 1–10.Google Scholar
Rapoff, M. (2011). Adherence to Pediatric Medical Regimens, 2nd ed. New York: Springer.Google Scholar

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