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Chapter 27 - Perinatal Loss

from Part IV - SPECIAL ISSUES

Published online by Cambridge University Press:  07 May 2010

John Patrick O'Grady ,
Martin L. Gimovsky ,
Lucy A. Bayer-Zwirello  and
Kevin Giordano
By
Shanna L. Burke
John Patrick O'Grady
Affiliation:
Tufts University, Massachusetts
Shanna L. Burke
Affiliation:
Social Worker, Florence, Massachusetts
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Summary

Work in recent decades has emphasized the importance of grieving rituals and, in the response to perinatal loss, recent experience favors proactive involvement with affected families, despite the difficulties that this presents for the birth attendants. Recognizing the importance of death and the historical limitations of medical specialists in facing these issues, this chapter explores the literature concerning perinatal losses, grief, and bereavement. Because perinatal loss is often sudden and contrary to the expectations of motherhood, it can have a particularly devastating and traumatic affect on the mother. When there is a miscarriage or a stillborn child, fathers are often overlooked during mourning, even more so than if the death involved an older child. In talking to a grieving family, health practitioners should always be honest, but they must combine this with empathy. Hospital personnel have a special and important role in perinatal grief and mourning.

Keywords

bereavementmiscarriagemotherhoodtraumatic affectperinatal lossperinatal grief
Type
Chapter
Information
Operative Obstetrics , pp. 820 - 830
Publisher: Cambridge University Press
Print publication year: 2008

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References

Canfield, Jack, Hansen, Mark V.Chicken Soup for the Grieving Soul: Stories about Life, Death, and Overcoming the Loss of a Loved One. Deerfield Beach, FL: Health Communications, 2003.Google Scholar
Davis, Deborah. Empty Cradle, Broken Heart. Golden CO: Fulcrum, 1996.Google Scholar
Finkbeiner, Ann. After the Death of a Child: Living with Loss through the Years. Baltimore, MD: John Hopkins University Press, 1998.Google Scholar
Fumia, Molly. A Piece of My Heart: Living through the Grief of Miscarriage, Stillbirth, or Infant Death. Berkley, CA: Conari Press, 2000.Google Scholar
Isle, Sherokee. Empty Arms: Coping with Miscarriage, Stillbirth, and Infant Death. Itasca, IL: Wintergreen Press, 1992.Google Scholar
Kluge-Bell, Kim. Unspeakable Losses: Understanding the Experience of Pregnancy Loss, Miscarriage, and Abortion. New York: W. W. Norton & Co., 1998.Google Scholar
Kohn, Ingrid, Moffit, Perry-Lynn. A Silent Sorrow. New York, NY: Routledge, 2000.Google Scholar
Lafser, Christine O'Keefe. An Empty Cradle, A Full Heart: Reflections for Mothers and Fathers after Miscarriage, Stillbirth, or Infant Death. Chicago: Loyola, 1998.Google Scholar
Lanham, Carol Cirulli. Pregnancy after Loss: A Guide to Pregnancy after Miscarriage, Stillbirth, or Infant Death. New York: Berkley Publishing Group, 1999.Google Scholar
Nelson, James D. (ed). The Rocking Horse is Lonely – and Other Stories of Father's Grief. Wayzata, MN: Pregnancy and Infant Loss Center, 1994.Google Scholar
Schweibert, P, DeKlyen, C, Bills, T.Tear Soup: A Recipe for Healing after Loss (3rd rev ed). Portland, OR: Grief Watch, 2005. http://www.griefwatch.com/detail.aspx?ID=60.Google Scholar
Strommen, Merton P., Strommen, A. Irene. Five Cries of Grief: One Family's Journey to Healing after the Tragic Death of a Son. San Francisco: Harper, 1993.Google Scholar
Chan, MF, Wu, LH, Day, MC, Chan, SH.Attitudes of nurses toward perinatal bereavement: Findings from a study in Hong Kong. J Perinat Neonat Nurs 2005 Jul–Sep;19(3):240–252.CrossRefGoogle Scholar
Rando, TA.Grief, Dying, and Death: Clinical Interventions for Caregivers. Champaign, IL: Research Press Company, 1984.Google Scholar
Grout, , Romanoff, BD.The myth of the replacement child: Parents' stories and practices after perinatal death. Death Studies 2000 Mar;24(2):93–113.Google Scholar
Toedter, LJ, Lasker, JN, Janssen, HJE.International comparison of studies using the perinatal grief scale: A decade of research on pregnancy loss. Death Studies 2001 Apr–May;25(3):208–228.CrossRefGoogle Scholar
Walsh-Burke, K.Grief and Loss: Theories and Skills for Helping Professionals. Boston: Pearson, 2006.Google Scholar
Kübler-Ross, E.On Death and Dying: What the Dying Have to Teach Doctors, Nurses, Clergy and Their Own Families. New York: Macmillan Publishing Co., 1969.Google Scholar
Lifton, RJ.Death in Life: Survivors of Hiroshima. New York: Random House, 1968.Google Scholar
O'Leary, J.Grief and its impact on prenatal attachment in the subsequent pregnancy. Arch Womens Ment Health 2004 Feb;7(1):7–18.CrossRefGoogle Scholar
Kübler-Ross, E, Kessler, D.On Grief and Grieving: Finding the Meaning of Grief through the Five Stages of Loss. New York: Scribner, 2005.Google Scholar
Worden, JW.Grief Counseling and Grief Therapy: A Handbook for the Mental Health Practitioner. New York: Springer Publishing Company, 1982.Google Scholar
Worden, W.Grief Counseling and Grief Therapy: A Handbook for the Mental Health Practitioner (3rd ed). New York: Springer Publishing Company, 2002.Google Scholar
Shaw, CT. Grief over fetal loss. Fam Pract Recert1983;5:129–145.
Professional Desk Reference. PDR Family Guide to Women's Health and Prescription Drugs (vol. 4). Montvale, NJ: Medical Economics Data, 1994.
Peppers, LG, Knapp, RJ.Maternal reactions to involuntary fetal/infant death. Psychiatry 1980 May;43(2):155–159.CrossRefGoogle Scholar
Stack, JM.Spontaneous abortion and grieving. Am Fam Physician 1980 May;21(5):99–102.Google Scholar
Paraclete Video Productions. Footprints on Our Hearts: How to Cope After a Miscarriage, Stillbirth, or Newborn Death [DVD]. Orleans, MA: Paraclete Press and Paraclete Video Productions, 1997.
Seibel, M, Graves, WL.The psychological implications of spontaneous abortions. Reprod Med 1980 Oct;24(4):161–165.Google Scholar
Moulder, C.Towards a preliminary framework for understanding pregnancy loss. J Reprod Infant Psychol 1994;12:65–67.CrossRefGoogle Scholar
Staudacher, C.Men & Grief: A Guide for Men Surviving the Death of a Loved One, A Resource for Caregivers and Mental Health Professionals. Oakland, CA: New Harbinger Publications, 1991.Google Scholar
Gardener, JM.Nursing Interventions Perceived as Helpful by Parents of Stillborns. [unpublished master's thesis]. Minneapolis: University of Minnesota, 1983.Google Scholar
Commonwealth of Massachusetts, General Laws, Chapter 111, Section 202.
Mercy Medical Center, Department of Obstetrical Services/Family Life Center. Fetal Death/Care of Stillborn. Springfield, MA: Mercy Medical Center, 6 June, 2006.
Johnson, MP, Puddifoot, JE.The grief response in the partners of women who miscarry. Br J Med Psych 1996 Dec;63(Pt. 4):313–327.CrossRefGoogle Scholar
Straker, D.The grief cycle [updated 2006; cited 2006 Nov 28]. http://changingminds.org/disciplines/change_ management/kubler_ross/kubler_ross.htm.
Jeffreys, JS.Helping Grieving People When Tears Are Not Enough: A Handbook for Care Providers. New York: Brunner-Routledge, 2005.Google Scholar
Franche, RL.Psychologic and obstetric predictors of couples' grief during pregnancy after miscarriage or perinatal death. Obstet Gynecol 2001 Apr;97(4):597–602.Google Scholar
Swanson, PB, Pearsall-Jones, JG, Hay, DA.How mothers cope with the death of a twin or higher multiple. Twin Research 2002 Jun;5(3):156–164.CrossRefGoogle Scholar
Bryan E. The death of a twin. In Sandbank, A (ed): Twin and Triplet Psychology: A Professional Guide to Working with Multiples. London: Routledge, 1999; pp. 186–200.Google Scholar
Read, B, Bryan, E, Hallett, F.When a Twin or Triplet Dies. London: The Multiple Births Foundation, 1997.Google Scholar
Simpson, L, Paviour, A.More Than One. Taroona, Australia: Do Not Press, 2001.Google Scholar
Kleine, M, Cuisinier, M, Kollee, L, Bethlehem, G, Graauw, K.Guidance after singleton and neonatal death. Arch Dis Child 1995 Mar;36(2):F125–F126.CrossRefGoogle Scholar
Widger, KA, Wilkins, K.What are the key components of quality perinatal and pediatric end-of-life care? A literature review. J Palliat Care 2004 Summer;20(2):105–112.Google Scholar
Wolfe, J, Grier, HE, Klar, N, Levin, SB, Ellenbogen, JM, Salem-Schatz, S, Emmanuel, EJ, Weeks, JC.Symptoms and suffering at the end of life in children. N Engl J Med 2000 Feb;342(5):326–333.CrossRefGoogle Scholar
Sexton, PR, Stephen, SB.Postpartum mothers' perceptions of nursing interventions for perinatal grief. Neonatal Network 1991 Feb;9(5):47–51.Google Scholar
Calhoun, LK.Parents' perceptions of nursing support following neonatal loss. J Perinatal Neonat Nurs 1994 Sep;8(2):57–66.CrossRefGoogle Scholar
Malacrida, CA.Perinatal death: Helping parents find their way. J Fam Nurs 1997;3:130–148.CrossRefGoogle Scholar
Finlay, I, Dallimore, D.Your child is dead. Br Med J. 1991 Jun 22;302(6791):1524–1525.CrossRefGoogle Scholar
Stewart, ES.Family-centered care for the bereaved. Pediatr Nurs 1995 Mar–Apr;21(2):181–187.Google Scholar
Papadatou, D, Yfantopoulous, J, Kosmidis, HV.Death of a child at home or in hospital: Experiences of Greek mothers. Death Studies 1996 May–Jun;20(3):215–235.CrossRefGoogle Scholar
While, A, Citrone, C, Cornish, J.Bereaved parents' views of caring for a child with a life-limiting disorder. London: King's College, 1996.Google Scholar
Contro, N, Larson, J, Scofield, S, Sourkes, B, Cohen, H.Family perspectives on the quality of palliative pediatric care. Arch Pediatr Adolesc Med 2002 Jan;156(1):14–19.CrossRefGoogle Scholar
American Academy of Pediatrics, Committee on Pediatric Emergency Medicine. Death of a child in the emergency department. Pediatrics 1994;93:861–862.
Primeau, MR, Lamb, JM.When a baby dies: Rights of the baby and parents. J Obstet Gynecol Neonatal Nurs 1995 Mar–Apr;24(3):206–208.CrossRefGoogle Scholar
Masera, G, Spinetta, JJ, Jankovic, M, Ablin, AR, D'Angio, GJ, Van, Dongen-Melman J, Eden, T, Martins, AG, Mulhern, RK, Oppenheim, D, Topf, R, Chesler, MA.Guidelines for assistance to terminally ill children with cancer: A report of the SIOP working committee on psychosocial issues in pediatric oncology. Med Pediatr Oncol 1999 Oct;32(4):44–48.3.0.CO;2-P>CrossRefGoogle Scholar
American Academy of Pediatrics, Committee on Bioethics and Committee on Hospital Care. Palliative care for children. Pediatrics 2000;106:351–357.CrossRef
Armstrong, D.Exploring fathers' experiences of pregnancy after a prior perinatal loss. MCN Am J Matern Child Nurs 2001 May–Jun;26(3):147–153.CrossRefGoogle Scholar
Wing, DG, Clance, PR, Burge-Callaway, K, Armistead, L.Understanding gender differences in bereavement following the death of an infant: Implications for treatment. Psychotherapy 2001;38:60–73.CrossRefGoogle Scholar

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