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Chapter 13 - Technology-Aided Programs to Support Leisure, Communication, and Daily Activities in People with Intellectual and Multiple Disabilities

Published online by Cambridge University Press:  14 November 2024

By
Giulio E. Lancioni ,
Nirbhay N. Singh ,
Mark F. O’Reilly ,
Jeff Sigafoos  and
Gloria Alberti
Edited by
Paul M.W. Hackett ,
Christopher M. Hayre ,
Dave Muller ,
Marcia Scherer  and
Ava Gordley-Smith
Paul M.W. Hackett
Affiliation:
Emerson College, Boston
Christopher M. Hayre
Affiliation:
The University of Canberra
Dave Muller
Affiliation:
Suffolk University, Massachusetts
Marcia Scherer
Affiliation:
University of Rochester Medical Center, New York
Ava Gordley-Smith
Affiliation:
University of Suffolk
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Summary

Due to the COVID-19 pandemic, it has become essential for qualitative researchers to adopt online interviews for data collection. However, ensuring the validity of the interview protocol is no easy task, especially when the research involves people with intellectual disabilities. With these unique challenges, we attempted to validate the interview protocol to ensure the trustworthiness of the data. An online semi-structured interview protocol was developed and refined by integrating the Interview Protocol Refinement (IPR) Framework into a seven-step refinement process. A pilot test was conducted via video conference with five participants across five different groups. From the current pilot test, insights gained include (1) rephrasing the interview questions to assume casual conversation; (2) having a contingency plan in case of technical failure; (3) refining probes and follow-up questions; and (4) enhancing the reliability of proxy in interviewing person with Down syndrome. It is essential to develop a valid and reliable interview protocol to ensure a trustworthy qualitative finding. The process should be reflective and reiterative and should always be done in such a manner.

Keywords

leisurecommunicationdaily activitiestechnologyintellectual disabilitysensory impairmentmotor impairment
Type
Chapter
Information
The Future of Qualitative Research in Healthcare
The Role and Management of Digital Methods
 , pp. 218 - 237
Publisher: Cambridge University Press
Print publication year: 2024

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