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Chapter 13 - DNA and the End of Anonymity: Disclosure, Donor-Linkage and Fertility Counseling

from III - Third Party Reproduction: Assessment and Preparation

Published online by Cambridge University Press:  24 November 2022

By
Kate Bourne
Edited by
Sharon N. Covington
Sharon N. Covington
Affiliation:
Shady Grove Fertility, Rockville, MD
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Summary

Direct-to-consumer (DTC) DNA testing has had a major impact on people affected by donor conception, including donor-conceived people, their parents, and donors. It has enabled people to discover their conception status and to identify the donor. Donors who were assured of anonymity and their extended families are being contacted by their donor offspring and recipient parents. Consequently, it is now impossible to assure donors they will be anonymous, and parents can no longer consider that nondisclosure of donor treatment to their children is a viable option. Fertility counselors need to prepare their clients for the implications of DTC DNA testing, be fully informed of the repercussions faced by donor-conceived adults, especially those finding out their conception status past childhood, and also to have donor-linking skills as part of their counseling tool kit.

Keywords

donor-conceived peopledonor conceptiondonorsdonor siblingdirect-to-consumer (DTC) DNA testinginformation exchange/contactgamete donationdonor-assisted conceptionfertility counselorcounseling practicedisclosure
Type
Chapter
Information
Fertility Counseling: Clinical Guide , pp. 134 - 143
Publisher: Cambridge University Press
Print publication year: 2022

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References

Harper, JC, Kennett, D, Reisel, D. The end of donor anonymity: how genetic testing is likely to drive anonymous gamete donation out of business. Hum Reprod 2016;31:1135–1140.Google Scholar
Regalado, A. More than 26 million people have taken an at-home ancestry test, MIT Technology Review. Available from: www.technologyreview.com/2019/02/11/103446/more-than-26-million-people-have-taken-an-at-home-ancestry-test/ [last accessed June 16, 2022].Google Scholar
Ancestry.com. Privacy statement. Available from: www.ancestry.com/cs/legal/privacystatement [last accessed June 16, 2022].Google Scholar
Vanish Voice. Autumn 2019, pp. 5–7. Available from: https://vanish.org.au/media/95986/vanish-autumn-voice-newsletter-2019.pdf [last accessed June 16, 2022].Google Scholar
Shapiro, D. Inheritance, Memoir of Genealogy, Paternity, and Love. New York, NY: Alfred A. Knopf, 2019.Google Scholar
Sarles, P. Assisted reproduction: books for parents to help explain assisted reproduction to their children. Available from: https://donorgroupsnyc.blogspot.com/2011/07/patricia-sarles-blogspot-about-books.html [last accessed June 16, 2022].Google Scholar
Donor Conception Network. Available from: www.dcnetwork.org/ [last accessed June 16, 2022].Google Scholar
Victorian Assisted Reproductive Treatment Authority. Available from: www.varta.org.au/after-donor-conception/telling-children-family-and-others [last accessed June 16, 2022].Google Scholar
Golombok, S. We Are Family. London: Scribe publications, 2020, p. 261.Google Scholar
DNA Detectives Facebook group, hosted by CeCe Moore – Genetic Genealogist. Available from: www.facebook.com/groups/DNADetectives/ [last accessed June 16, 2022].Google Scholar
Leetz, K. An unanticipated outcome of a DNA test. Am J Psychiatry 2018;175(12):1167–1168.Google Scholar
Jadva, V. Sperm and egg donors’ experiences of anonymous donation subsequent contact with their donor offspring. Hum Reprod 2011;26:638–645.Google Scholar
Victorian Assisted Reproductive Treatment Authority. March 2017. Available from: www.varta.org.au/resources/personal-stories/we-were-sperm-donors [last accessed June 16, 2022].Google Scholar
Dempsey, D, Kelly, F, Horsfall, B, Hammarberg, K, Bourne, K, Johnson, L. Applications to statutory donor registers in Victoria, Australia: information sought and expectations of contact. Reprod Biomed Soc Online 2019;9:28–36.Google Scholar
Scheib, J, McCormick, E, Benward, J. Finding people like me: contact among young adults who share an open-identity sperm donor, Hum Reprod Open 2020;4:hoaa057.Google Scholar
Jadva, V, Freeman, T, Kramer, W, Golombok, S. Experiences of offspring searching for and contacting their donor siblings and donor. Reprod BioMed Online 2010;20(4):523–532.Google Scholar
Hertz, R, Nelson, M. Random Families, Genetic Strangers, Sperm Donor Siblings, and the Creation of New Kin. Oxford: Oxford University Press, 2018.Google Scholar
Kelly, F, Dempsey, D, Power, J, Bourne, K, Hammarberg, K, Johnson, L. From stranger to family or something in between: donor linking in an era of retrospective access to anonymous sperm donor records in Victoria, Australia. Int J Law Policy Family 2019;33:277–297.Google Scholar
Victorian Assisted Reproductive Treatment Authority. Available from: www.varta.org.au/resources/information-sheets/navigating-donor-linking [last accessed June 16, 2022].Google Scholar

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