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17 - An Ethical Framework for Genetic Counseling in the Genomic Era

from Part V - The Impact of Genetic Information

Published online by Cambridge University Press:  27 August 2021

I. Glenn Cohen
Affiliation:
Harvard Law School, Massachusetts
Nita A. Farahany
Affiliation:
Duke University School of Law
Henry T. Greely
Affiliation:
Stanford University School of Law
Carmel Shachar
Affiliation:
Harvard Law School, Massachusetts
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Summary

Since the inception of their profession, genetic counselors have helped patients and families make decisions influenced by powerful emotions and varied circumstances. In doing so, they have had to reconcile ethical principles with the value pluralism of their patients. While this challenge is not unique in medicine, it has preoccupied genetic counselors disproportionately because such a large share of genetic counseling work involves nuanced discussions about reproductive choices and the impact of difference and disability on people’s lives.

Type
Chapter
Information
Consumer Genetic Technologies
Ethical and Legal Considerations
, pp. 233 - 245
Publisher: Cambridge University Press
Print publication year: 2021

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