Book contents
- Frontmatter
- Contents
- Contributors
- Preface
- Section 1 Core issues in clinical pediatric ethics
- Pediatric decision-making: informed consent, parental permission, and child assent
- 2 Pediatric decision-making: adolescent patients
- 3 Parental refusals of recommended medical interventions
- 4 Adolescent confidentiality
- 5 Refusals of treatment in adolescents and young adults
- 6 Family beliefs and the medical care of children
- 7 Fidelity and truthfulness in the pediatric setting: withholding information from children and adolescents
- 8 Fidelity and truthfulness: disclosure of errors
- 9 Requests for “non-therapeutic” interventions in children: male circumcision
- Section 2 Ethical issues at the beginning of life: perinatology and neonatology
- Section 3 When a child dies: ethical issues at the end of life
- Section 4 Ethical issues posed by advances in medical technology and science
- Section 5 Children, public health, and justice
- Section 6 Special topics in pediatric ethics
- Index
- References
7 - Fidelity and truthfulness in the pediatric setting: withholding information from children and adolescents
from Section 1 - Core issues in clinical pediatric ethics
Published online by Cambridge University Press: 07 October 2011
Book contents
- Frontmatter
- Contents
- Contributors
- Preface
- Section 1 Core issues in clinical pediatric ethics
- Pediatric decision-making: informed consent, parental permission, and child assent
- 2 Pediatric decision-making: adolescent patients
- 3 Parental refusals of recommended medical interventions
- 4 Adolescent confidentiality
- 5 Refusals of treatment in adolescents and young adults
- 6 Family beliefs and the medical care of children
- 7 Fidelity and truthfulness in the pediatric setting: withholding information from children and adolescents
- 8 Fidelity and truthfulness: disclosure of errors
- 9 Requests for “non-therapeutic” interventions in children: male circumcision
- Section 2 Ethical issues at the beginning of life: perinatology and neonatology
- Section 3 When a child dies: ethical issues at the end of life
- Section 4 Ethical issues posed by advances in medical technology and science
- Section 5 Children, public health, and justice
- Section 6 Special topics in pediatric ethics
- Index
- References
Summary
Case narrative
Amanda is a bright, active 12-year-old, who has been experiencing some shortness of breath and taking naps after school, something she has never done even as a toddler. After fainting during a track and field meet, her physician ordered a number of tests and diagnosed Amanda with dilated cardiomyopathy. Amanda’s father died of a drug overdose before she was born. Amanda’s mother, Lynn, hoping to protect Amanda from knowledge of her father’s lifestyle, has told her that he died of a sudden heart attack. She is raising Amanda on her own, without family or community to support her.
At the time of Amanda’s diagnosis, her pediatric cardiologist advises Lynn that Amanda will likely need a heart transplant. He suggests that the pediatric cardiology fellow, advance practice nurse, and child life specialist meet with Amanda and her mother to explain Amanda’s condition, the medication she will have to take, and the likely need for surgery, in a developmentally appropriate way.
- Type
- Chapter
- Information
- Clinical Ethics in PediatricsA Case-Based Textbook, pp. 32 - 36Publisher: Cambridge University PressPrint publication year: 2011
References
2005 Silence is not golden: communicating with children dying from cancerJournal of Clinical Oncology 23 3629Google Scholar
2009 Principles of Biomedical EthicsNew YorkOxford University Press
1978 The Private Worlds of Dying ChildrenPrinceton, NJPrinceton University Press
2001 Consent, Rights and Choices in Health Care for Children and Young PeopleLondonBMJ Books
2004 Treatment decisions regarding infants, children and adolescents. Canadian Paediatric Society Reference Number B04–01Paediatrics and Child Health 9 99Google Scholar
1993 Information needs and decision-making preferences of children with cancerPsycho-Oncology 2 277Google Scholar
2005 Whose information is it anyway? Informing a 12-year-old patient of her terminal prognosisJournal of Medical Ethics 31 427Google Scholar
2008 When disclosing a serious diagnosis to a minor conflicts with family valuesJournal of Developmental & Behavioral Pediatrics 29 231Google Scholar
2008 Ethics By Committee: A Textbook on Consultation, Organization, and Education for Hospital Ethics CommitteesLanham, MARowman & Littlefield Publishers, Inc
1984 The Silent World of Doctor and PatientNew YorkThe Free Press
2008 Communicating with children and families: from everyday interactions to skill in conveying distressing informationPediatrics 121 E1441Google Scholar
2004 What do adolescents want? An exploratory study regarding end-of-life decision-makingJournal of Adolescent Health 35 529Google Scholar
1995
2007 Disclosing HIV diagnosis to infected children: a health care team’s approachVulnerable Children and Youth Studies 2 12Google Scholar
2006 DetroitMacmillan Reference USA
2001 Cultural assessment in bioethical advocacy – toward cultural competency in bioethical practiceBioethics Forum 17 15Google Scholar
2002 Caring for children with advanced cancer integrating palliative carePediatric Clinics of North America 49 1043Google Scholar
2004 Should parents speak with a dying child about impending death? [Comment]New England Journal of Medicine 351 1251Google Scholar
1978 Lying: Moral Choice in Public and Private LifeNew YorkPantheon Books
1996 Pediatric Ethics: From Principles to PracticeAmsterdamHarwood Academic Publishers
2010 Pediatric BioethicsNew YorkCambridge University Press
2003 Medical decision-making and minors: issues of consent and assentAdolescence 38 343Google Scholar
2006 The health literacy environment of hospitals and health centers. Partners for action: Making your healthcare facility literacy-friendlyBostonHarvard School of Public Health
- 2
- Cited by