Book contents
- Frontmatter
- Contents
- List of contributors
- Preface
- Section 1 History and general issues
- Section 2 Cell biology and pathobiology
- Section 3 Evaluation and treatment
- Section 4 Complications and supportive care
- 29 Acute complications
- 30 Late complications after leukemia therapy
- 31 Therapy-related leukemias
- 32 Infectious complications in leukemia
- 33 Hematologic supportive care
- 34 Pain management
- 35 Psychosocial issues
- 36 Nursing care
- Index
- Plate Section
- References
36 - Nursing care
from Section 4 - Complications and supportive care
Published online by Cambridge University Press: 05 April 2013
Edited by
Book contents
- Frontmatter
- Contents
- List of contributors
- Preface
- Section 1 History and general issues
- Section 2 Cell biology and pathobiology
- Section 3 Evaluation and treatment
- Section 4 Complications and supportive care
- 29 Acute complications
- 30 Late complications after leukemia therapy
- 31 Therapy-related leukemias
- 32 Infectious complications in leukemia
- 33 Hematologic supportive care
- 34 Pain management
- 35 Psychosocial issues
- 36 Nursing care
- Index
- Plate Section
- References
Summary
Introduction
In the treatment of children and adolescents with leukemia, nursing care complements and extends the efforts of other members of the healthcare team. The focus of nursing care is on the long-term as well as immediate needs of patients and their families and, therefore, includes strategies to prevent or manage complications and sequelae of the disease and its treatment. Another integral aspect of nursing care is assisting individual patients and families in achieving their developmental goals during treatment and follow-up.
This chapter, in addition to describing some of the challenges of nursing care of the child or adolescent with leukemia and providing practice recommendations specific to selected aspects of their care, offers a framework within which these aspects can be addressed and applies this framework to several practice examples. The supportive care framework includes six categories of needs and nine possible treatment phases in the spectrum of the cancer experience, as well as influencing factors that should be taken into consideration for each individual patient and family. The relationships between nursing strategies and both the identified supportive care needs and the phase of care are illustrated in examples of several major concerns that can arise in the treatment of childhood leukemia. For convenience, the examples are based primarily on the treatment of childhood acute lymphoblastic leukemia (ALL), but the same principles apply to acute myeloid leukemia (AML) and other leukemias in children. Whenever possible, the focus is on evidence-based practice.
- Type
- Chapter
- Information
- Childhood Leukemias , pp. 839 - 850Publisher: Cambridge University PressPrint publication year: 2012
References
. Providing Supportive Care for Individuals Living with CancerToronto: Ontario Cancer Treatment and Research Foundation, 1994.Google Scholar
. Major stressors and their effects on the well-being of children with cancer. J Pediatr Nurs 2006;21:59–66.CrossRefGoogle ScholarPubMed
, , , von . Distressing events for children and adolescents with cancer: child, parent, and nurse perceptions. J Pediatr Oncol Nurs 2003;20:120–132.CrossRefGoogle ScholarPubMed
, . Hopefulness and the self-sustaining process in adolescents with cancer. Nurs Res 1988;37:336–340.CrossRefGoogle ScholarPubMed
. Beginning treatment for childhood acute lymphoblastic leukemia: insights from the parents' perspective. Oncol Nurs Forum 2002:29; 988–996.CrossRefGoogle ScholarPubMed
, . Living with hope and fear: the uncertainty of childhood cancer after relapse. Cancer Nurs 2008;31:292–301.CrossRefGoogle Scholar
, . Acute lymphoblastic leukemia. In , , , (eds.) Nursing Care of Children and Adolescents with Cancer, 3rd edn. Philadelphia, PA: Saunders, 2002: 466–490.Google Scholar
, . Understanding the clinical implications of minimal residual disease in childhood leukemia. J Pediatr Oncol Nurs 2006;23:38–44.CrossRefGoogle ScholarPubMed
. Leukemia. In (ed.) Essentials of Pediatric Oncology Nursing: A Core Curriculum, 3rd edn. Glenview, IL: Association of Pediatric Hematology Oncology Nurses, 2007: 15–20.Google Scholar
, , , et al. Measuring pain in pediatric oncology ICU patients. J Pediatr Oncol Nurs 1994;11:64–68.CrossRefGoogle ScholarPubMed
, , , . Atraumatic lumbar puncture needles: after all these years, are we still missing the point?Neurologist 2009;15:17–20.CrossRefGoogle ScholarPubMed
, , . Randomised controlled trial of atraumatic versus standard needles for diagnostic lumbar punctures. BMJ 2000;321:986–990.CrossRefGoogle Scholar
, , , et al. Reducing incidence of headache after lumbar puncture and intrathecal cytotoxics. Lancet 1999;353:2038–2039.Google ScholarPubMed
. A rational approach to the cause, prevention, and treatment of postdural puncture headache. CMAJ 1993;149:1087–1093.Google ScholarPubMed
, , , . The relation between nonessential touch and children's distress during lumbar punctures. Children's Health Care 2004;33:299–315.CrossRefGoogle Scholar
, , , et al. An investigation of the safety of the blood reinfusion step used with tunneled venous access devices in children with cancer. J Pediatr Oncol Nurs 1991;8:159–164.CrossRefGoogle ScholarPubMed
, , , . A comparison of calorie and protein intake in hospitalized pediatric oncology patients dining with a caregiver versus patients dining alone: a randomized, prospective clinical trial. J Pediatr Oncol Nurs 2004;21: 223–232.CrossRefGoogle ScholarPubMed
. Supportive Care of Children with Cancer: Current Therapy and Guidelines from the Children's Cancer Group, 3rd edn. Baltimore, MD: Johns Hopkins University Press, 2004.Google Scholar
. Effective Patient Education: A Guide to Increased Compliance. Rockville, MD: Aspen Publications, 1985.Google Scholar
, , . Teaching Patients with Low Literacy Skills, 2nd edn. Philadelphia, PA: Lippincott, 1996.Google Scholar
, , , et al. Congenital leukemia: comprehensive nursing care for a rare disease: a case study. Neonatal Netw 1995;14:7–14.Google ScholarPubMed
, , , et al. Fatigue in children and adolescents with cancer. J Assoc Pediatr Oncol Nurs 1998;15:172–182.CrossRefGoogle ScholarPubMed
, , , et al. Fatigue in 7- to 12-year-old patients with cancer from the staff perspective: an exploratory study. Oncol Nurs Forum 1999;26:37–45.Google ScholarPubMed
, , , et al. Comparing patient, parent, and staff descriptions of fatigue in pediatric oncology patients. Cancer Nurs 1999;22:277–289.CrossRefGoogle ScholarPubMed
, , , et al. Developing a conceptual model for fatigue in children. Eur J Oncol Nurs 1999;3:5–11.CrossRefGoogle Scholar
, . Fatigue in children and adolescents with cancer: evolution of a program of study. Semin Oncol Nurse 2000;16:261–272.CrossRefGoogle Scholar
. Childhood acute lymphoblastic leukemia: current perspectives. Oncol Nurs Forum 2001; 28:824–833.Google ScholarPubMed
. Promoting health in pediatric oncology patients. J Pediatr Oncol Nurs 1994;11:91.CrossRefGoogle ScholarPubMed
, . The Damocles Syndrome: Psychosocial Consequences of Surviving Childhood Cancer. New York: McGraw-Hill, 1981.Google Scholar
. Psychosocial aspects of leukemia and other cancers during childhood. In , (eds.) The Quality of Life of Cancer Patients. New York: Raven Press, 1987:135–140.Google Scholar
. Childhood Leukemia: A Guide for Families, Friends and Caregivers. Sebastopol, CA: O'Reilly, 2002.Google Scholar
. Quality of life in children and adolescents with cancer. Semin Oncol Nurs 1990;6:285–291.CrossRefGoogle ScholarPubMed
, , , et al. Family influences on hopefulness among children early in the cancer experience. J Pediatr Psychol 1985;10:479–493.CrossRefGoogle Scholar
, . Acute lymphoblastic leukemia. In , , , (eds.) Nursing Care of Children and Adolescents with Cancer, 3rd edn. Philadelphia, PA: Saunders, 2002: 466–490.Google Scholar
. Primary nursing in childhood cancer as applied in Israel. Cancer Nurs 1985;8:89–95.CrossRefGoogle ScholarPubMed
. Strategies for managing cancer-related fatigue syndrome. Cancer 2001;92(Suppl): 988–997.3.0.CO;2-O>CrossRefGoogle ScholarPubMed
, , , et al. Falling asleep: the determinants of sleep latency. Arch Dis Child 2009;94:686–689.CrossRefGoogle ScholarPubMed
. Mouth Care for Children and Young People with Cancer: Evidence-based Guidelines, 2nd edn. Manchester, UK: Children's Cancer and Leukemia Group, 2006 (, accessed January 2012).Google Scholar
. Oral Mucositis. Bethesda, MD: National Cancer Institute, 2008 (, accessed January 2012).Google Scholar
, , , . Quality of life among childhood leukemia patients. J Pediatr Oncol Nurs 2003;20:192–200.CrossRefGoogle ScholarPubMed
, (eds.). Pediatric Oncology and Hematology: Perspectives on Care. St. Louis, MO: Mosby, 1986.Google Scholar
, , , et al. The effects of infusion methods on platelet count, morphology, and corrected count increment in children with cancer: in vitro and in vivo studies. Oncol Nurs Forum 1994;21:1669–1673.Google ScholarPubMed
, , , et al. The effects of infusion rates on platelet outcomes and patient responses in children with cancer. Oncol Nurs Forum 1997;24:179–193.Google ScholarPubMed
, , , . Supportive care needs of parents of children with cancer: transition from diagnosis to treatment. Oncol Nurs Forum 2004;31:E116–E126.CrossRefGoogle ScholarPubMed
Childhood Cancer Survivor Care. Glenview, IL: Association of Pediatric Oncology Nurses, 2003 (, accessed January 2012).Google Scholar
, , , et al. Multi-component behavioral intervention to promote health protective behaviors in childhood cancer survivors. Med Pediatr Oncol 2002;39:2–11.CrossRefGoogle ScholarPubMed
. Crisis points in cancer. In , (eds.) Pediatric Oncology and Hematology: Perspectives on Care. St. Louis, MO: Mosby, 1986:432–449.Google Scholar
, . Health-related worries, self-image, and life outlooks of long-term survivors of childhood cancer. Health Social Work 2001;26:245–256.CrossRefGoogle ScholarPubMed
, , , et al. Extended follow-up of long-term survivors of childhood acute lymphoblastic leukemia. N Engl J Med 2003;349:640–649.CrossRefGoogle ScholarPubMed
, , , . Long-term health status among survivors of childhood cancer: does sex matter?J Clin Oncol 2007;25:4477–4489.CrossRefGoogle ScholarPubMed
. Long-term Follow-up Guidelines for Survivors of Childhood, Adolescent, and Young Adult Cancers, version 3. Bethesda, MD: Children's Oncology Group, 2008 (, accessed January 2012).Google Scholar
. When Cancer Returns [NIH Publication P129]. Bethesda, MD: National Cancer Institute, 2006.Google Scholar
. The diagnosis and management of Wilms tumor. Pediatr Clin North Am 1985;32:735–754.CrossRefGoogle ScholarPubMed
, . Acute nonlymphocytic leukemia. Pediatr Clin North Am 1985;32:653–667.CrossRefGoogle ScholarPubMed
. Acute lymphoblastic leukemia in childhood. Pediatr Clin North Am 1985;32:669–697.CrossRefGoogle ScholarPubMed
, , , et al. Coming to terms: parent's response to a first cancer recurrence in their child. Nurs Res 1996;45:148–153.CrossRefGoogle Scholar
, , , . Guidelines for the recurrence of pediatric cancer. Sem Oncol Nurs 2002;18:50–59.CrossRefGoogle ScholarPubMed
, . Hopefulness and the self-sustaining process in adolescents with cancer. Nurs Res 1988;37:336–340.CrossRefGoogle ScholarPubMed
, , , et al. Experimental chemotherapy in children with cancer: a parent's view. Pediatr Hematol Oncol 1987;4:117–124.CrossRefGoogle ScholarPubMed
, , , . Pain management for the child with cancer in end of life care. J Pediatr Oncol Nurs 2002;19:43–47.CrossRefGoogle Scholar
. Guidelines for Palliative Care. Fort Washington, PA: National Comprehensive Cancer Network, 2010.Google Scholar
. Providing pediatric palliative care through a pediatric supportive care team. Pediatr Nurs 2005;31:195–200.Google ScholarPubMed
, , , et al. Symptoms and suffering at the end of life in children with cancer. N Engl J Med 2000;342:326–333.CrossRefGoogle ScholarPubMed
, . Pain assessment and management in palliative care. In , (eds.) Palliative Care Nursing: Quality Care to the End of Life. New York: Springer, 2001:362–486.Google Scholar
, . Palliative care in pediatrics. In , , (eds.) Principles and Practice of Palliative Care and Supportive Oncology, 2nd edn. Philadelphia, PA: Lippincott, Williams & Wilkins, 2002:1044–1059.Google Scholar
, , , et al. Cancer-related symptoms most concerning to parents during the last week and last day of their child's life. Pediatrics 2008;121:1301–1309.CrossRefGoogle ScholarPubMed
, , , et al. Decision making by parents and healthcare professionals when considering continued care for pediatric patients with cancer. Oncol Nurs Forum 1997;24:1523–1528.Google ScholarPubMed
, , , et al. End-of-life care preferences of pediatric patients with cancer. J Clinl Oncol 2005;23:9146–9154.CrossRefGoogle ScholarPubMed
, , . Nursing support of the child with cancer. In , (eds.) Principles and Practice of Pediatric Oncology, 2nd edn. Philadelphia, PA: Lippincott, 1993: 1059–1078.Google Scholar
, , , et al. Bereavement support for families following the death of a child from cancer: experience of bereaved parents. J Psychosoc Oncol 2006;24:65–83.CrossRefGoogle Scholar
, , , et al. Perceptions of inadequate health care and feelings of guilt in parents after the death of a child to a malignancy: a population-based long-term follow-up. J Palliat Med 2006;9:317–331.CrossRefGoogle ScholarPubMed
, . Psychosocial management in pediatric oncology. In (ed.) Supportive Care Manual. St. Louis, MO: Pediatric Oncology Group, 1996.Google Scholar
, (eds.). When Children Die: Improving Palliative and End-of-life Care for Children and their Families. Washington, DC: National Academies Press, 2003.Google Scholar
, , , , . Anxiety and depression in parents 4–9 years after the loss of a child owing to a malignancy: a population-based follow-up. Psychol Med 2004;34:1431–1441.CrossRefGoogle ScholarPubMed