Book contents
- Frontmatter
- Contents
- Foreword
- List of Contributors
- Section 1 Introduction to ART Surveillance
- Section 2 General Principles of ART Surveillance
- Section 3 Using ART Surveillance Data
- 5 Reporting ART Success Rates
- 6 Using ART Surveillance Data in Clinical Research
- 7 Monitoring ART Safety and Biovigilance
- 8 Quality Assurance of ART Practice: Using Data to Improve Clinical Care
- 9 Monitoring Long-Term Outcomes of ART: Linking ART Surveillance Data with Other Datasets
- 10 Use of ART Surveillance by People Experiencing Infertility
- Section 4 Global Variations in ART Surveillance
- Section 5 Surveillance of Non-ART Fertility Treatments
- Appendix A ART Surveillance System Variables and Definitions
- Appendix B International Glossary on Infertility and Fertility Care
- Appendix C ICMART Data Collection Form
- Index
- Plates
10 - Use of ART Surveillance by People Experiencing Infertility
from Section 3 - Using ART Surveillance Data
Published online by Cambridge University Press: 14 June 2019
- Frontmatter
- Contents
- Foreword
- List of Contributors
- Section 1 Introduction to ART Surveillance
- Section 2 General Principles of ART Surveillance
- Section 3 Using ART Surveillance Data
- 5 Reporting ART Success Rates
- 6 Using ART Surveillance Data in Clinical Research
- 7 Monitoring ART Safety and Biovigilance
- 8 Quality Assurance of ART Practice: Using Data to Improve Clinical Care
- 9 Monitoring Long-Term Outcomes of ART: Linking ART Surveillance Data with Other Datasets
- 10 Use of ART Surveillance by People Experiencing Infertility
- Section 4 Global Variations in ART Surveillance
- Section 5 Surveillance of Non-ART Fertility Treatments
- Appendix A ART Surveillance System Variables and Definitions
- Appendix B International Glossary on Infertility and Fertility Care
- Appendix C ICMART Data Collection Form
- Index
- Plates
Summary
Choosing ART treatment is a major life decision. Patients have a fundamental right to patient-centered healthcare that respects their unique needs, preferences and values.
At the heart of a patient’s question about success rates is the need to know whether they can be assured of the best chance of taking home a healthy baby.However, choosing a clinic based solely on reported success rates can create unrealistic expectations, as pregnancy rates vary tremendously, depending on the type of treatment, the age and cause of infertility. ‘League Tables’ comparing the performance of one clinic to another can be misleading.More than 25 years’ experience from patients’ organizations suggest that many pursue ART without fully understanding the risks and potential complications. The format of ART surveillance reports varies considerably and are usually written for a scientific audience.
Therefore, ART surveillance data should be available in a format that is unbiased, understandable and meaningful.
- Type
- Chapter
- Information
- Assisted Reproductive Technology Surveillance , pp. 93 - 100Publisher: Cambridge University PressPrint publication year: 2019