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Section 4 - Best Practices Protocols of Investigation of Sudden Unexpected Death in Infancy and Childhood

Published online by Cambridge University Press:  04 June 2019

Marta C. Cohen
Affiliation:
Sheffield Children’s Hospital
Irene B. Scheimberg
Affiliation:
Royal London Hospital
J. Bruce Beckwith
Affiliation:
Loma Linda University School of Medicine
Fern R. Hauck
Affiliation:
University of Virginia
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Publisher: Cambridge University Press
Print publication year: 2019

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References

References

Byard, RW, Jensen, LL. How reliable is reported sleeping position in cases of unexpected infant death? J Forensic Sci, 2008; 53:1169–71.Google Scholar
Centers for Disease Control and Prevention. Guidelines for death scene investigation of sudden, unexplained infant deaths: recommendations of the Interagency Panel on Sudden Infant Death Syndrome. Morb Mortal Wkly Rep, 1996; 45:122.Google Scholar
Shapiro-Mendoza, CK. Sudden Unexplained Infant Deaths in the Sudden, Unexplained Infant Death Investigation Training Manual: A Systematic Training Program for the Professional Infant Death Investigation Specialist. Centers for Disease Control and Prevention, Department of Health and Human Services, 2007. https://www.cdc.gov/sids/pdf/suidmanual/Chapter1_tag508.pdf (accessed 28 October 2018).Google Scholar

References

Carpenter, RG, Gardner, A, McWeeny, PMEmery, JL. Multistage scoring system for identifying infants at risk of unexpected death. Arch Dis Child1977; 52:606–12.CrossRefGoogle ScholarPubMed
Fleming, P, Blair, P, Bacon, CJ, Berry, P. Sudden Unexpected Deaths in Infancy: the CESDI SUDI Studies 1993–1996. London: The Stationery Office; 2000.Google Scholar
Sudden Unexpected Death in Infancy; A Multi-agency Protocol for Care and Investigation. London: Royal College of Pathologists, Royal College of Paediatrics, and Child Health. 2004; https://www.rcpath.org and https://www.rcpch.ac.uk/ (accessed 31 October 2018).Google Scholar
Garstang, J, Ellis, C, Sidebotham, P. An evidence-based guide to the investigation of sudden unexpected death in infancy. Forensic Sci Med Pathol, 2015; 11:345–57.Google Scholar

References

Sethuraman, C, Coombs, R, Cohen, MC. Sudden unexpected death in infancy (SUDI). In: Cohen, MC, Scheimberg, I, eds. The Pediatric and Perinatal Autopsy Manual. Cambridge University Press, 2014: 319–29.Google Scholar
Dorries, C. Coroners’ Courts: A Guide to Law and Practice. Oxford University Press, 2014.Google Scholar
Byard, RW. Sudden Infant Death Syndrome. In: Byard, , Sudden Death in the Young. Cambridge University Press, 2010; 555630.CrossRefGoogle Scholar
Cohen, MC. Fetal, perinatal, and infant autopsies. In: Burton, J, Rutty, G, eds. The Hospital Autopsy. A Manual of Fundamental Autopsy Practice. London: Hodder Arnold, 2010:184202.Google Scholar
Cohen, MC, Molina, P, Scheimberg, I. Paediatric and perinatal post-mortem techniques. In: Delgado, S, Bandrés, F, eds. Legal Medicine, vol. 3. Barcelona: Bosch, 2011: 642–57.Google Scholar
Cohen, MC. Sudden Infant Death Syndrome: post-mortem investigation and risk factors. In: Jamieson, A, Moenssens, A, eds. Wiley Encyclopaedia in Forensic Sciences. Published online, 15 December 2011; https://onlinelibrary.wiley.com/doi/abs/10.1002/9780470061589.fsa1058 (accessed 30 October 2018).Google Scholar
Sidebotham, P, Fleming, P. Unexpected Death in Childhood; A Handbook for Practitioners. Chichester: John Wiley & Sons, 2007:347.CrossRefGoogle Scholar
Sudden Unexpected Death in Infancy and Childhood: Multi-agency Guidelines for Care and Investigation, 2nd edn, London: The Royal College of Pathologists, 2016.Google Scholar
Scheimberg, I, Ashal, H, Kotiloglu-Karaa, E, et al. Weight charts of infants dying of sudden infant death in England. PDP, 2014; 204(17):271–7.Google Scholar
Gilbert-Barness, E, Debich-Spicer, DE. Pediatric autopsy. In: Gilbert-Barness, , Debich-Spicer, , Handbook of Pediatric Autopsy Pathology. New Jersey: Humana Press, 2005:774.Google Scholar
Squier, W, Encha-Razavi, F. Central nervous system. In: Cohen, MC, Scheimberg, I, eds. The Pediatric and Perinatal Autopsy Manual. Cambridge University Press, 2014:173204.Google Scholar
Willinger, M, James, LS, Catz, C. Defining the Sudden Infant Death Syndrome (SIDS): deliberations of an expert panel convened by the National Institute of Child Health and Human Development. Pediatr Pathol, 1991; 11:677–84.Google Scholar

References

Sudden Unexpected Death in Infancy and Childhood: Multi-agency Guidelines for Care and Investigation, 2nd edn. London: The Royal College of Pathologists, 2016.Google Scholar
Office of the Chief Coroner for Ontario. Paediatric Death Review Committee and Deaths Under Five Committee Annual Report, 2013; www.mcscs.jus.gov.on.ca/sites/default/files/content/mcscs/docs/ec163306.pdf (accessed 30 October 2018).Google Scholar
Diebold, K. Conducting the doll re-enactment in sudden unexplained infant death investigation. In: Centers for Disease Control and Prevention, Sudden, Unexplained Infant Death Investigation, 2007: 170–85. https://www.cdc.gov/sids/pdf/suidmanual/chapter7_tag508.pdf (accessed 30 October 2018).Google Scholar
Pollanen, MS. Forensic pathology and the miscarriage of justice. Forensic Sci Med Pathol, 2012; 8(3):285–9.CrossRefGoogle ScholarPubMed
Matshes, EW, Evans, RM, Pinckard, KJ, Joseph, JT, Lew, EO. Shaken infants die of neck trauma; not of brain trauma. Acad For Path, 2011; 1(1):8291.Google Scholar
Rossa, CG, Langlois, NEI, Heath, K, Byard, RW. Further evidence for a lack of reliability in the histologic ageing of bruises – an autopsy study. Aust J Forensic Sci, 2015; 47(2):224–9,Google Scholar
Rutty, GN, Burton, JL. The evisceration. In: Burton, J, Rutty, G, eds. The Hospital Autopsy: A Manual of Fundamental Autopsy Practice, London: Hodder Arnold, 2010: 132–4,Google Scholar
Rouse, C, Schmidt, L, Brock, L, Fagiana, A. Congenital diaphragmatic hernia presenting in a 7-day-old infant. Case Rep Emerg Med, 2017 Article ID 9175710; https://www.hindawi.com/journals/criem/2017/9175710/ (accessed 30 October 2018).Google Scholar
Vanezis, P. Techniques used in evaluation of vertebral artery trauma at postmortem. Forensic Sci Int, 1979; 13:159–65.Google Scholar
Matshes, E, Joseph, J. Pathological evaluation of the cervical spine following neurosurgical or chiropractic interventions. J Forensic Sci, 2010.57(1):113–19.Google Scholar

References

Ruegger, CM, Bartsch, C, Martinez, RM et al. Minimally invasive, imaging guided virtual autopsy compared to conventional autopsy in foetal, newborn and infant cases: study protocol for the paediatric virtual autopsy trial. BMC Pediatr, 2014; 14:15.CrossRefGoogle ScholarPubMed
Roberts, IS, Benbow, EW, Bisset, R, Jenkins, JP, Lee, SH, Reid, H, Jackson, A. Accuracy of magnetic resonance imaging in determining cause of sudden death in adults: comparison with conventional autopsy. Histopathol, 2003; 42:424–30.CrossRefGoogle ScholarPubMed
Whitby, EH, Offiah, AC, Cohen, MC. Initial experience of a minimally invasive autopsy service. A report of the techniques and observations in the first 11 cases. Pediatr Dev Pathol, 2015; 18:24–9.Google Scholar
Personal communication: K Reed and J Ellis, Faculty of Social Sciences, University of Sheffield, May 2017.Google Scholar
Kang, X, Cos, T, Guizani, M, Cannie, MM, Segers, V, Jani, JC. Parental acceptance of minimally invasive fetal and neonatal autopsy compared with conventional autopsy. Prenat Diagn, 2014; 34:1106–10.CrossRefGoogle ScholarPubMed
Standards for Radiological Investigations of Suspected Non-Accidental Injury. London: RCR/RCPCH, 2008; https://www.rcr.ac.uk/publication/standards-radiological-investigations-suspected-non-accidental-injury (accessed 31 October 2018).Google Scholar
Calder, AD, Offiah, AC. Fetal radiography for suspected skeletal dysplasia: technique, normal appearances, diagnostic approach. Pediatr Radiol, 2015; 45:536–48.Google Scholar
Le Blanc-Louvry, I, Thureau, S, Duval, C et al. Post-mortem computed tomography compared to forensic autopsy findings: a French experience. Eur Radiol, 2013; 23:1829–35.Google Scholar
Roberts, IS, Benamore, RE, Benbow, EW et al. Post-mortem imaging as an alternative to autopsy in the diagnosis of adult deaths: a validation study. Lancet, 2012; 379:136–42.Google Scholar
Thayyil, S, Sebire, NJ, Chitty, LS et al. Post-mortem MRI versus conventional autopsy in fetuses and children: a prospective validation study. Lancet, 2013; 382:1980.Google Scholar
Shruthi, M, Gupta, N, Jana, M et al. Comparative study of conventional and virtual autopsy using postmortem MRI in the phenotypic characterization of stillbirths and malformed foetuses. Ultrasound Obstet Gynecol, 2017; 51(2):236–45.Google Scholar
Vullo, A, Panebianco, V, Cannavale, G et al. Post-mortem magnetic resonance foetal imaging: a study of morphological correlation with conventional autopsy and histopathological findings. Radiol Med, 2016; 121:847–56.Google Scholar

References

Durfee, M, Gellert, A, Tilton-Durfee, D. Origins and clinical relevance of child death review teams. JAMA, 1992; 267(23):3172–5.Google Scholar
Covington, T, Wirtz, S. The power of child death review to prevent maltreatment. In: Alexander, A ed., Research and Practices in Child Maltreatment Prevention. St Louis: STM Learning, 2017:1734.Google Scholar
For All Our Children. Washington State Child Death Review Committee Recomendations: Preventing SIDS and Motor Vehicle Crashes. Washington, DC, 2003; https://www.nwsids.org/documents/WashingtonStateChildDeathReview.pdf (accessed 30 October 2018).Google Scholar
Fraser, J, Sidebotham, P, Frederick, J, et al. Learning from child death review in the USA, England, Australia, and New Zealand. Lancet, 2014; 384:894903.Google Scholar
Vincent, S. Preventing Child Deaths: Learning from Review. Edinburgh: Dunedin Academic Press, 2013.Google Scholar
National Center for Fatality Review and Prevention. Keeping Kids Alive: A Report on the Status of Child Death Review in the United States, 2016; https://www.ncfrp.org/wp-content/uploads/NCRPCD-Docs/CDRinUS_2016.pdf (accessed 1 November 2018).Google Scholar
Office of Disease Prevention and Health Promotion. Healthy People 2020. US Department of Health and Human Services, n.d.: www.healthypeople.gov/2020/topics-objectives/topic/injury-and-violence-prevention/objectives (accessed 1 November 2018).Google Scholar
Office of Disease Prevention and Health Promotion. Maternal, Infant and Child Health, n.d. https://www.healthypeople.gov/2020/topics-objectives/topic/maternal-infant-and-child-health (accessed 30 October 2018).Google Scholar
Bowman, L, Hargroves, T, Hoffman, L. Saving babies: exposing Sudden Infant Death. Scripps Howard News Service, 9 October 2007; http://www.editorandpublisher.com/news/scripps-wire-offers-saving-babies-investigative-report/ (accessed 30 October 2018).Google Scholar
Shapiro-Mendoza, C, Kimball, M, Tomashek, K, et al. US infant mortality trends attributable to accidental suffocation and strangulation in bed from 1984 through 2004: are rates increasing? J Pediatr, 2009; 123(2):533–9.Google Scholar
Palusci, V, Yager, S, Covington, T. Effects of a citizen’s review panel in preventing child maltreatment. Child Abuse Negl, 2010; 34:324–31.CrossRefGoogle ScholarPubMed
Carlin, R, Moon, R. Risk factors, protective factors and current recommendations to reduce Sudden Infant Death Syndrome: a review. JAMA Pediatr, 2017; 171 (2):175–80.Google Scholar
National Center for Fatality Review and Prevention. Saving Lives Together! A Sampler of Prevention Outcomes from State and Community Child Death Review Teams, 2016; https://www.ncfrp.org/wp-content/uploads/NCRPCD-Docs/OutcomesBrochure2016.pdf (accessed 1 November 2018).Google Scholar
Shapiro-Mendoza, C, Tomashek, K, Anderson, R, et al. Recent national trends in sudden, unexpected infant deaths: more evidence supporting a change in classification or reporting. Am J Epidemiol, 2006; 163 (8):762–9.Google Scholar
Malloy, M, MacDorman, M. Changes in the classification of sudden unexpected infant deaths: United States, 1992–2001. J Pediatr, 2005;115 (5):1247–53.Google Scholar
Shapiro-Mendoza, C, Kim, S, Chu, S, et al. Using death certificates to characterize Sudden Infant Death Syndrome (SIDS): opportunities and limitations. J Pediatr, 2010; 156 (1):3843.Google Scholar
Covington, T. The US National Child Death Review Case Reporting System. Inj Prev, 2011; 17(Supplement 1):34–7.Google Scholar
Moon, R. SIDS and other sleep-related deaths: updated 2016 recommendations for a safe infant sleeping environment. J Pediatr, 2016; 138(5); http://pediatrics.aappublications.org/content/138/5/e20162938 (accessed 30 October 2018).CrossRefGoogle ScholarPubMed
National Center for Fatality Review and Prevention. National CDR Case Reporting System Case Report Form Version 4.1; https://www.ncfrp.org/wp-content/uploads/NCRPCD-Docs/CDR_CRS_v5.pdf (accessed 30 October 2018).Google Scholar
Schnitzer, P, Covington, T, Dykstra, H. Sudden Unexpected Infant Deaths: sleep environment and circumstances. Am J Public Health, 2012; 102 (6):1204–12.CrossRefGoogle ScholarPubMed
Brixey, B, Kopp, L, Schlotthauer, A, et al. Use of child death review to inform sudden unexplained infant deaths occurring in a large urban setting. Inj Prev, 2011; 17 (Supplement 1):23–7.Google Scholar
Scheers, N, Woodard, D, Thach, B. Crib bumpers continue to cause infant deaths: a need for a new preventive approach. J Pediatr, 2016; 169:93–7.CrossRefGoogle ScholarPubMed
Consumer Product Safety Commission. Joint Statement…Recommending Parents and Caregivers Not Use Padded Crib Bumpers, 3 November 2016; www.cpsc.gov/s3fs-public/Joint%20Statement%20on%20Padded%20Crib%20Bumpers%20FINAL%2011.3.16.pdf (accessed 1 November 2018).Google Scholar
Colvin, J, Collie-Akers, V, Schunn, C, et al. Sleep environment risks for younger and older Infants. J Pediatr, 2014; 134 (2): e406e412; https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4187235/ (accessed 30 October 2018).Google Scholar
Rechtman, LR, Colvin, JD, Blair, PS, Moon, RY. Sofas and infant mortality. J Pediatr, 2014; 134: e1293e1300; http://pediatrics.aappublications.org/content/pediatrics/early/2014/10/08/peds.2014-1543.full.pdf (accessed 30 October 2018).Google Scholar
Kassa, H, Moon, R, Colvin, J. Risk factors for sleep-related infant deaths in in-home and out-of-home settings. J Pediatr, 2016; 138 (5): http://pediatrics.aappublications.org/content/138/5/e20161124 (accessed 30 October 2018).Google Scholar
Shapiro-Mendoza, CK, Camperlengo, L, Kim, SY, Covington, T. The Sudden Unexpected Infant Death case registry: a method to improve surveillance. J Pediatr, 2012; 129(2)e486–93; http://aaspp.net/wp-content/uploads/2015/01/Shapiro-Mendoza-Camperlengo-Kim-Covington-2012-SUID-Case-Registry.pdf (accessed 30 October 2018).Google Scholar
Burns, K, Bienemann, L, Camperlengo, L, et al. The sudden death in the young case registry: collaborating to understand and reduce mortality. J Pediatr, 2017; 139(3); http://pediatrics.aappublications.org/content/139/3/e20162757 (accessed 30 October 2018).Google Scholar
Shapiro-Mendoza, C, Camperlengo, L, Ludvigsen, R, et al. Classification system for the sudden unexpected infant death case registry and its application. J Pediatr, 2014; 134 (1):e210e219; http://pediatrics.aappublications.org/content/134/1/e210.long (accessed 30 October 2018).Google Scholar

References

HM Government. Working Together to Safeguard Children: A Guide to Inter-Agency Working to Safeguard and Promote the Welfare of Children. 2015, London: Department for Education.Google Scholar
Bajanowski, T, Vege, A, Byard, RW, Krous, HF, Arnestad, M et al. Sudden Infant Death Syndrome (SIDS) – standardised investigations and classification: recommendations. Forensic Sci Int, 2007: 165:129–43.Google Scholar
Sudden Unexpected Death in Infancy and Childhood: Multi-agency Guidelines for Care and Investigation, 2nd edn. London: The Royal College of Pathologists, 2016,Google Scholar
Garstang, J, Ellis, C, Sidebotham, P. An evidence-based guide to the investigation of sudden unexpected death in infancy. Forensic Sci Med Pathol, 2015: 11:345–57.Google Scholar
Platt, MW. Learning lessons: reviewing child deaths. In: Sidebotham, P, Fleming, P. Unexpected Death in Childhood: A Handbook for Practitioners, Chichester, John Wiley & Sons Ltd. 2007: 205–31.Google Scholar
Garstang, J, Griffiths, F, Sidebotham, P. What do bereaved parents want from professionals after the sudden death of their child? A systematic review of the literature. BMC Pediatr, 2014; 14:269; https://bmcpediatr.biomedcentral.com/articles/10.1186/1471-2431-14-269 (accessed 30 October 2018).Google Scholar
Garstang, J, Griffiths, F, Sidebotham, P. Parental understanding and self-blame following sudden infant death: a mixed-methods study of bereaved parents’ and professionals’ experiences. BMJ Open, 2016: 6:e011323.CrossRefGoogle ScholarPubMed
Garstang, J, Griffiths, F, Sidebotham, P. Rigour and rapport: a qualitative study of parents’ and professionals’ experiences of joint agency infant death investigation. BMC Pediatr, 2017: 17:48.Google Scholar
Wood, A. Wood Report: Review of the Role and Functions of Local Safeguarding Children Boards. Department for Education, 2016; https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/526329/Alan_Wood_review.pdf (accessed 31 October 2018).Google Scholar
Garstang, J, Ellis, C, Griffiths, F, Sidebotham, P. Unintentional asphyxia, SIDS, and medically explained deaths: a descriptive study of outcomes of child death review (CDR) investigations following sudden unexpected death in infancy. Forensic Sci Med Pathol, 2016: 12:407–15.Google Scholar

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