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The purpose of this study is to examine traits of hospice volunteers that facilitate their success in this informal caregiving role, with the larger goal of alleviating the family caregiver burden and providing additional support to the hospice patient. To achieve this goal, a new scale was developed to tap into how hospice volunteers view their patient advocacy role.
Method:
Participants were 136 trained hospice volunteers from the Midwest who had direct contact with hospice patients. Volunteers mailed anonymous surveys that included measures of argumentativeness, locus of control, attitudes toward patient advocacy, and key demographic items. A new scale was developed to measure patient advocacy by hospice volunteers called the Hospice Volunteer as Patient Advocate.
Results:
Submitting this scale to exploratory factor analysis, two factors emerged: duty as patient advocate and support of patient rights. After performing a multiple regression analysis, results showed that female volunteers who were high in internal locus of control were more likely to perceive that volunteers have a duty as patient advocates. Younger volunteers with more years of volunteer experience, higher levels of internal locus of control, and lower external locus of control were more likely to support patient rights.
Significance of results:
The findings of this study could be used to formalize hospice volunteers' role as patient advocates, thus better utilizing them as committed, caring communicators and improving patient-centered care at end-of-life.
This chapter explores some issues surrounding multidisciplinary care and considers the future development of high-quality services for cancer patients. Multidisciplinary care has focused on the multidisciplinary team (MDT) and their functioning in a multidisciplinary meeting (MDM). The key benefits of multidisciplinary care for people with cancer hinge around team working to provide a rounded and coordinated approach to diagnosis, treatment, continuing care and survivorship. The primary aim of multidisciplinary care is to improve the diagnosis and treatment for individual patients. The role of the nurse as patient advocate has developed within the cancer MDT, with nurses participating in treatment decisions and negotiating the cancer experience. Considering the needs of the woman regarding fertility, sexual function and sexuality, hormonal function and psychological wellbeing is an essential part of high-quality health care. The MDT can help, guide and protect the cancer patient on the journey for survival.
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