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1 results

  • Parenting in the face of childhood life-threatening conditions: The ordinary in the context of the extraordinary

  • Kim Mooney-Doyle, Janet A. Deatrick
  • Journal:
    Palliative & Supportive Care / Volume 14 / Issue 3 / June 2016
    Published online by Cambridge University Press:
    14 October 2015, pp. 187-198
  • Objective:

    Uncovering what it means to be a parent during the extraordinary time of a child's life-threatening condition (LTC) is important for understanding family goals, decision making, and the work of parenting within this context.

    Method:

    Qualitative descriptive methods were employed to describe the everyday experience of parenting both children who have an LTC and their healthy siblings.

    Results:

    Some 31 parents of 28 children with an LTC who have healthy siblings participated in our study. Four themes emerged from the data that describe a parental desire to maintain emotional connection with all of their children, how parents use cues from their children to know them better and develop parenting strategies, how parents change as a result of caring for a child with an LTC, and how they strive to decrease suffering for all of their children.

    Significance of results:

    The findings of our study have implications for clinical practice, family-focused research, and health policy pertaining to families of children with life-threatening conditions.