In the years following FDA approval of direct-to-consumer, genetic-health-risk/DTCGHR testing, millions of people in the US have sent their DNA to companies to receive personal genome health risk information without physician or other learned medical professional involvement. In Personal Genome Medicine, Michael J. Malinowski examines the ethical, legal, and social implications of this development. Drawing from the past and present of medicine in the US, Malinowski applies law, policy, public and private sector practices, and governing norms to analyze the commercial personal genome sequencing and testing sectors and to assess their impact on the future of US medicine. Written in relatable and accessible language, the book also proposes regulatory reforms for government and medical professionals that will enable technological advancements while maintaining personal and public health standards.

This chapter takes up the haunting of African American lives by examining the role of biomedicine in twentieth- and twenty-first-century African American life writing. For Black people, American biomedicine has always been a haunted house, filled with the ghosts of Black lives lost in the name of racist science and scientific racism. The approach Bailey and Peoples take questions what is knowable under biomedical frameworks. What is prohibited from knowing? What kinds of biographical and historical identities are produced in biomedicine and biomedical narratives? How, if at all, can biomedicine and Black auto/biography produce just and ethical narratives of Black lives and Black futures?