Hostname: page-component-669899f699-qzcqf Total loading time: 0 Render date: 2025-04-25T05:43:35.271Z Has data issue: false hasContentIssue false
  • English
  • Français

Understanding the influence of culture on caregiving process for people affected by dementia: an urgent call to end exclusion in mental health service delivery in the United Kingdom

Commentary on “Equity in care and support provision for people affected by dementia: experiences of people from UK South Asian and White British background”. By James et al.

Published online by Cambridge University Press:  24 March 2023

Oládayò Bífárìn Open the ORCID record for Oládayò Bífárìn [Opens in a new window]  and
Zalihe Kamil-Thomas
Oládayò Bífárìn*
Affiliation:
School of Nursing and Advanced Practice, Faculty of Health, Liverpool John Moores University, Liverpool, UK Mersey Care NHS FT, Liverpool, UK
Zalihe Kamil-Thomas
Affiliation:
School of Nursing and Advanced Practice, Faculty of Health, Liverpool John Moores University, Liverpool, UK
*
Email: [email protected]
Get access

Abstract

An abstract is not available for this content so a preview has been provided. Please use the Get access link above for information on how to access this content.
Image of the first page of this content. For PDF version, please use the ‘Save PDF’ preceeding this image.'
Type
Commentary
Information
International Psychogeriatrics , Volume 36 , Special Issue 7: Issue Theme: Health inequities in health and social care in geriatric psychiatry , July 2024 , pp. 525 - 528
Copyright
© The Author(s), 2023. Published by Cambridge University Press on behalf of International Psychogeriatric Association

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

Article purchase

Temporarily unavailable

References

Al-Janabi, H., Carmichael, F. and Oyebode, J. (2018). Informal care: choice or constraint? Scandinavian Journal of Caring Sciences, 32, 157–167.Google Scholar
Baghirathan, S., Cheston, R., Hui, R., Chacon, A., Shears, P. and Currie, K. (2018). A grounded theory analysis of the experiences of carers for people living with dementia from three BAME communities: balancing the need for support against fears of being diminished. Dementia, 19, 1672–1691.Google Scholar
Bansal, N., Karlsen, S., Sashidharan, S. P., Cohen, R., Chew-Graham, C. A. and Malpass, A. (2022). Understanding ethnic inequalities in mental healthcare in the UK: a meta-ethnography. PLoS Medicine, 19, e1004139.Google Scholar
Beale, C. (2021). Magical thinking and moral injury: exclusion culture in psychiatry. BJPsych Bulletin, 46, 16–19.Google Scholar
Bífárìn, O. et al. (2021). Stressors and coping mechanisms of family caregivers of older relatives living with long-term conditions in mainland China– A scoping review of the evidence. Ageing & Society, 43, 952–989.Google Scholar
Giebel, C., Cations, M., Draper, B. and Komuravelli, A. (2020). Ethnic disparities in the uptake of anti-dementia medication in young and late-onset dementia. International Psychogeriatrics, 1–10. https://doi.org/10.1017/S1041610220000794.Google Scholar
Hossain, M., Crossland, J., Stores, R., Dewey, A. and Hakak, Y. (2020). Awareness and understanding of dementia in South Asians: a synthesis of qualitative evidence. Dementia (London, England), 19, 1441–1473.Google Scholar
James, T., Mukadam, N., Sommerlad, A., Samara, B. and Livingston, G. (2023). Equity in care and support provision for people affected by dementia: experience of people from UK South Asian and White Bristish backgrounds. International Psychogeriatrics, 1–10. https://doi.org/10.1017/S1041610223000121.Google Scholar
Kapadia, D. et al. (2022). Ethnic Inequalities in Healthcare: A Rapid Evidence Review. RHO-Rapid-Review-Final-Report_v.7.pdf (nhsrho.org); accessed 31 March 23.Google Scholar
Kelleher, D. et al. (2022). Time to reflect is a rare and valued opportunity; a pilot of the NIDUS-professional dementia training intervention for homecare workers during the Covid-19 pandemic. Health & Social Care in the Community, 30, e2928–e2939.Google Scholar
Kevern, P., Lawrence, D., Nazir, N. and Tsaroucha, A. (2022). Religious influences on the experience of family carers of people with dementia in a British Pakistani Muslim community. Healthcare (Basel), 11, 120.Google Scholar
Mladenov, T. and Dimitrova, I. (2022). Epistemic injustice as a bridge between medical sociology and disability studies. Sociology of Health & Illness. https://doi.org/10.1111/1467-9566.13479.Google Scholar
Parveen, S. et al. (2021). Impact of dementia education and training on health and social care staff knowledge, attitudes and confidence: a cross-sectional study. BMJ Open, 11, e039939.Google Scholar
Parveen, S., Fry, G., Morrison, V., Fortinsky, R. H. and Oyebode, J. (2018). The influence of cultural obligation, willingness and preparedness to care on family caregiver outcomes. Alzheimer’s & Dementia: The Journal of the Alzheimer’s Association, 14, P953.Google Scholar
Pham, T. M. et al. (2018). Trends in dementia diagnosis rates in UK ethnic groups: analysis of UK primary care data. Clinical Epidemiology, 10, 949–960.Google Scholar
Price, M. L., Surr, C. A., Gough, B. and Ashley, L. (2022). Understanding the experiences and psychosocial support needs of caregivers of people with comorbid dementia and cancer. Psychology & Health, 1–23. https://doi.org/10.1080/08870446.2022.2157030.Google Scholar
Shafiq, S., Parveen, S. and Oyebode, J. R. (2021). How people of African Caribbean or Irish ethnicity cope with long-term health conditions in UK community settings: a systematic review of qualitative, quantitative and mixed method studies. Health & Social Care in the Community, 29, 319–327.Google Scholar
Ugargol, A. P. and Bailey, A. (2020). Reciprocity between older adults and their caregivers in emigrant households of Kerala, India. Ageing & Society, 41, 1699–1725.Google Scholar
United Nations (2015). Goal 3 Good Health and Well-Being. United Nations.Google Scholar
Willis, R., Zaidi, A., Balouch, S. and Farina, N. (2020). Experiences of people with dementia in Pakistan: help-seeking, understanding, stigma, and religion. The Gerontologist, 60, 145–154.Google Scholar
Wittenberg, R., Hu, B., Barraza-Araiza, L. and Rehill, A. (2019). Projections of Older People with Dementia and Costs of Dementia Care in the United Kingdom, 2019-2040. London: Care Policy and Evaluation Centre, London School of Economics and Political Science.Google Scholar
World Health Organization (2022). World Mental Health Report: Transforming Mental Health for All. World Health Organization.Google Scholar