Hostname: page-component-6587cd75c8-mppm8 Total loading time: 0 Render date: 2025-04-23T10:59:15.562Z Has data issue: false hasContentIssue false

Long-term segregation and seclusion for people with an intellectual disability and/or autism in hospitals: critique of the current state of affairs

Published online by Cambridge University Press:  04 December 2024

Samuel J. Tromans
Affiliation:
SAPPHIRE Group, Department of Population Health Sciences, University of Leicester, UK; and Adult Learning Disability Service, Leicestershire Partnership NHS Trust, Leicester, UK
Indermeet Sawhney
Affiliation:
Learning Disability Services, Hertfordshire Partnership NHS Foundation Trust, Hatfield, UK
Mahesh Odiyoor
Affiliation:
Centre for Autism, Neuro-Developmental Disorders, and Intellectual Disability (CANDDID), Cheshire and Wirral Partnership NHS Foundation Trust, Chester, UK
Jana de Villiers
Affiliation:
High Secure Forensic Intellectual Disability Service for Scotland and Northern Ireland, The State Hospital, Lanark, UK
Jane McCarthy
Affiliation:
Learning Disability Service, Sussex Partnership NHS Foundation Trust, Worthing, UK
Harm Boer
Affiliation:
Psychiatry of Intellectual Disability Services, Coventry and Warwickshire Partnership NHS Trust, Coventry, UK
Regi Alexander
Affiliation:
Learning Disability Services, Hertfordshire Partnership NHS Foundation Trust, Hatfield, UK
Ken Courtenay
Affiliation:
Psychiatry of Intellectual Disability Services, Barnet, Enfield and Haringey Mental Health NHS Trust, London, UK
Stuart Wallace
Affiliation:
Legal Directorate, St Andrew's Healthcare, Nottingham, UK
Satheesh Gangadharan
Affiliation:
Adult Learning Disability Service, Leicestershire Partnership NHS Trust, Leicester, UK
Ashok Roy
Affiliation:
Psychiatry of Intellectual Disability Services, Coventry and Warwickshire Partnership NHS Trust, Coventry, UK
Amy Blake
Affiliation:
Psychiatry of Intellectual Disability Services, Coventry and Warwickshire Partnership NHS Trust, Coventry, UK
Kiran Purandare
Affiliation:
The Learning Disabilities Directorate, Central and Northwest London NHS Foundation Trust, London, UK
Anupama Iyer
Affiliation:
Learning Disability and Autism Division, St Andrew's Healthcare, Nottingham, UK; and Adult Learning Disability Service, Leicestershire Partnership NHS Trust, Leicester, UK
Richard Laugharne
Affiliation:
Cornwall Intellectual Disability Equitable Research (CIDER), Cornwall Partnership NHS Foundation Trust, Truro, UK; and CIDER, Peninsula School of Medicine, University of Plymouth, UK
Vivien Weisner
Affiliation:
Carer, Coventry, UK
Rohit Shankar*
Affiliation:
Cornwall Intellectual Disability Equitable Research (CIDER), Cornwall Partnership NHS Foundation Trust, Truro, UK; and CIDER, Peninsula School of Medicine, University of Plymouth, UK
*
Correspondence: Rohit Shankar. Email: [email protected]

Abstract

In November 2023, the Department of Health and Social Care published guidance, entitled ‘Baroness Hollins’ Final Report: My Heart Breaks – Solitary Confinement in Hospital Has no Therapeutic Benefit for People with a Learning Disability and Autistic People’. The report's commendable analysis of the problems and identification of the areas where practice should be improved is unfortunately not matched by many of its recommendations, which appear to be contrary to evidence-based approaches. The concerns are wide-ranging, from the use of the term ‘solitary confinement’ for current long-term segregation (LTS) and seclusion, to presumption that all LTS and seclusion is bad, to holding clinicians (mainly psychiatrists) responsible for events beyond their locus of control. Importantly, there is a no guidance on how to practically deliver the recommendations in an evidence-based manner. This Feature critically appraises the report, to provide a comprehensive summary outlining potential positive impacts, identifying specific concerns and reflecting on best practice going forward.

Type
Feature
Copyright
Copyright © The Author(s), 2024. Published by Cambridge University Press on behalf of Royal College of Psychiatrists

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

Article purchase

Temporarily unavailable

References

Baroness Hollins. Baroness Hollins’ Final Report: My Heart Breaks – Solitary Confinement in Hospital Has no Therapeutic Benefit for People with a Learning Disability and Autistic People. Department of Health and Social Care, 2023 (https://www.gov.uk/government/publications/independent-care-education-and-treatment-reviews-final-report-2023/baroness-hollins-final-report-my-heart-breaks-solitary-confinement-in-hospital-has-no-therapeutic-benefit-for-people-with-a-learning-disability-an).Google Scholar
Lennard, S, Sharpe, R, Goodey, R, Hudson, S, Shankar, R. Creating capable communities for people with intellectual disabilities: challenges and opportunities. J Ment Health Res Intellect Disabil 2020; 13(3): 174200.CrossRefGoogle Scholar
Jones, K, Gangadharan, S, Brigham, P, Smith, E, Shankar, R. Current practice and adaptations being made for people with autism admitted to in-patient psychiatric services across the UK. BJPsych Open 2021; 7(3): e102.CrossRefGoogle ScholarPubMed
Shankar, R. Commentary on “why am I still in hospital? Evaluation of delayed discharges from two learning disability assessment and treatment units in England”. Tizard Learn Disabil Rev 2022; 28(6): 54–9.CrossRefGoogle Scholar
Chieze, M, Hurst, S, Kaiser, S, Sentissi, O. Effects of seclusion and restraint in adult psychiatry: a systematic review. Front Psychiatry 2019; 10: 491.CrossRefGoogle ScholarPubMed
United Nations Office on Drugs and Crime. The United Nations Standard Minimum Rules for the Treatment of Prisoners (The Nelson Mandela Rules). United Nations Office on Drugs and Crime, 2015 (https://www.unodc.org/documents/justice-and-prison-reform/Nelson_Mandela_Rules-E-ebook.pdf).Google Scholar
Department of Health. Mental Health Act 1983: Code of Practice. The Stationery Office, 2015 (https://assets.publishing.service.gov.uk/media/5a80a774e5274a2e87dbb0f0/MHA_Code_of_Practice.PDF).Google Scholar
Nuffield Trust. Violence in the NHS. Nuffield Trust, 2023 (https://www.nuffieldtrust.org.uk/resource/violence-in-the-nhs).Google Scholar
McCarthy, J, Duff, M. Services for adults with intellectual disability in Aotearoa New Zealand. BJPsych Int 2019; 16: 71–3.CrossRefGoogle ScholarPubMed
Robertson, CE, Baron-Cohen, S. Sensory perception in autism. Nat Rev Neurosci 2017; 18: 671–84.CrossRefGoogle ScholarPubMed
Scottish Government. Coming Home: A Report on Out-of-Area Placements and Delayed Discharge for People with Learning Disabilities and Complex Needs. Scottish Government, 2018 (https://www.gov.scot/binaries/content/documents/govscot/publications/research-and-analysis/2018/11/coming-home-complex-care-needs-out-area-placements-report-2018/documents/00543272-pdf/00543272-pdf/govscot%3Adocument/00543272.pdf).Google Scholar
Cambridge Dictionary. Redress. Cambridge University Press, 2024 (https://dictionary.cambridge.org/dictionary/english/redress#google_vignette).Google Scholar
Care Quality Commission. Out of Sight – Who Cares?. Care Quality Commission, 2020 (https://www.cqc.org.uk/sites/default/files/20201218_rssreview_report.pdf).Google Scholar
Niven, A, Gamman, L, Webb, A, Goodey, R, Shankar, R. Transforming care in Cornwall: a review of the quality of the lives of people with learning disabilities a decade post-discharge from hospital. Br J Learn Disabil 2020; 48: 315–22.CrossRefGoogle Scholar
Chester, V, Völlm, B, Tromans, S, Kapugama, C, Alexander, RT. Long-stay patients with and without intellectual disability in forensic psychiatric settings: comparison of characteristics and needs. BJPsych Open 2018; 4(4): 226–34.CrossRefGoogle ScholarPubMed
Ee, J, Stenfert Kroese, B, Rose, J. Experiences of mental health professionals providing services to adults with intellectual disabilities and mental health problems: a systematic review and meta-synthesis of qualitative research studies. J Intellect Disabil 2022; 26: 758–81.CrossRefGoogle ScholarPubMed
Abraham, J, Purandare, K, McCabe, J, Wijeratne, A, Eggleston, E, Oak, K, et al. An 8-year study of admissions and discharges to a specialist intellectual disability inpatient unit. J Appl Res Intellect Disabil 2022; 35(2): 569–76.CrossRefGoogle ScholarPubMed
Burrows, L, Page, G, Plugaru, E, Kent, B, Odiyoor, M, Jaydeokar, S, et al. Ideal models of good inpatient care for adults with intellectual disability: lessons from England. Int J Soc Psychiatry 2023; 69(4): 814–22.CrossRefGoogle ScholarPubMed
Tromans, S, Robinson, G, Gabrielsson, A, Bassett, P, Sawhney, I, Triantafyllopoulou, P, et al. The views of psychiatrists on proposed changes to the England and Wales Mental Health Act 1983 legislation for people with intellectual disability: a national study. Int J Soc Psychiatry 2024; 70(2): 388401.CrossRefGoogle Scholar
Tromans, S, Bhui, K, Sawhney, I, Odiyoor, M, Courtenay, K, Roy, A, et al. The potential unintended consequences of Mental Health Act reforms in England and Wales on people with intellectual disability and/or autism. Br J Psychiatry 2023; 222(5): 188–90.CrossRefGoogle ScholarPubMed
Shankar, R, Olotu, V, Axby, S, Hargreaves, C, Devapriam, J. Managing clients placed far away from their communities. Learn Disabil Pract 2015; 18(1): 2934.CrossRefGoogle Scholar
Shankar, R, Jones, G, Devapriam, J, Roy, A. Successful transfers to out-of-area placements. Learn Disabil Pract 2015; 19(1): 1822.CrossRefGoogle Scholar
Royal College of Psychiatrists (RCPsych). Restrictive Interventions in Inpatient Intellectual Disability Services: How to Record, Monitor and Regulate. RCPsych College Report CR220. RCPsych, 2018 (https://www.rcpsych.ac.uk/docs/default-source/improving-care/better-mh-policy/college-reports/college-report-cr220.pdf?sfvrsn=c74ad0e4_2).Google Scholar
Painter, J, Adams, N, Ingham, B, James, M, Majid, M, Roy, A, et al. Review and update of the health of the nation outcome scales for people with learning disabilities (HoNOS-LD). Int J Social Psychiatry 2023; 69(7): 1807–13.CrossRefGoogle ScholarPubMed
Torrey, EF, Zdanowicz, MT, Kennard, AD, Lamb, R, Eslinger, DF, Biasotti, MC, et al. Treatment of Persons with Mental Illness in Prisons and Jails: A State Survey. Treatment Advocacy Center, 2014 (https://www.treatmentadvocacycenter.org/storage/documents/treatment-behind-bars/treatment-behind-bars.pdf).Google Scholar
Submit a response

eLetters

No eLetters have been published for this article.