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A participatory approach to the development of a co-produced and co-delivered information programme for users of services and family members: the EOLAS programme (paper 1)

Published online by Cambridge University Press:  22 January 2016

A. Higgins*
Affiliation:
School of Nursing & Midwifery, Trinity College Dublin, Ireland
D. Hevey
Affiliation:
School of Psychology, Trinity College Dublin, Ireland
P. Gibbons
Affiliation:
Celbridge Adult Mental Health Services, Kildare, Ireland
C. O'Connor
Affiliation:
Celbridge Adult Mental Health Services, Kildare, Ireland
F. Boyd
Affiliation:
Celbridge Adult Mental Health Services, Kildare, Ireland
P. McBennett
Affiliation:
School of Nursing & Midwifery, Trinity College Dublin, Ireland
M. Monahan
Affiliation:
School of Nursing & Midwifery, Trinity College Dublin, Ireland
*
*Address for correspondence: A. Higgins, School of Nursing & Midwifery, Trinity College Dublin, Dublin D02, PN40 Ireland. (Email: [email protected])

Abstract

Objective

The EOLAS programme is a peer and clinician-led mental health information programme on recovery from mental health difficulties, specifically for people with a diagnosis of schizophrenia spectrum or bipolar disorders, their family members and significant others.

Method

This article, the first of a two part series, outlines the background to and the rationale behind the EOLAS programme, and traces the participatory process used to inform the development and implementation of the pilot phase of the project. The aims of the programme, and the overarching principles that guided its development, delivery and evaluation, including the set-up of the project steering group are outlined and discussed.

Findings

Two separate programmes, one for family members and one for service users were designed. In addition, participant and facilitator handbooks were developed for each programme, including a training programme for facilitators.

Conclusion

Central to a recovery oriented service is the involvement of service users and families in the design and delivery of services. EOLAS is one potential model for achieving this aim.

Type
Original Research
Copyright
© College of Psychiatrists of Ireland 2016 

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References

Barber, J, Rosenheck, R, Armstrong, M, Resnick, S (2008). Monitoring the dissemination of peer support in the VA system. Community Mental Health Journal 44, 433441.Google Scholar
Bauml, J, Pitschel-Walz, G, Volz, A, Engel, RR, Kissling, W (2007). Psychoeducation in schizophrenia: 7-year follow-up concerning rehospitalization and days in hospital in the Munich Psychosis Information Project Study. The Journal of Clinical Psychiatry 68, 854861.CrossRefGoogle ScholarPubMed
Braun, V, Clarke, V (2006). Using thematic analysis in psychology. Qualitative Research in Psychology 3, 77101.CrossRefGoogle Scholar
Brookfield, S (1988). Understanding and facilitating adult learning. School Library Media Quarterly 16, 99105.Google Scholar
Brosnan, L (2006). What Part of the Picture? Perspectives of Service Users and Carers on Partnership Within Mental Health Services. Western Mental Health Alliance: Galway.Google Scholar
Buchkremer, G, Klingberg, S, Holle, R, Schulze, MM, Hornung, WP (1997). Psychoeducational psychotherapy for schizophrenic patients and their key relatives or caregivers: results of a two-year follow-up. Acta Psychiatrica Scandinavica 96, 483491.Google Scholar
Cleary, M, Hunt, GE, Matheson, SL, Siegfried, N, Walter, G (2008). Psychosocial interventions for people with both severe mental illness and substance misuse. Cochrane Database of Systematic Reviews 1, CD001088.Google Scholar
Coghlan, D, Brannick, T (2005). Doing Action Research in your Own Organisation, 2nd edn. Sage Publications: London.Google Scholar
Crowe, K (2006). What we Heard: A Report on the Viewpoints of 100 Service Users Currently Using Acute Admission Wards or Long-Stay Facilities. Irish Advocacy Network on behalf of the Expert Group of Mental Health Policy: Dublin.Google Scholar
Department of Health and Children (2006). A Vision for Change: Report of the Expert Group on Mental Health Policy. The Stationery Office: Dublin.Google Scholar
Department of Health and Children, Health Service Executive and Health Services National Partnership Forum (2008). National Strategy for Service User Involvement in the Irish Health Service: 2008-2013. Health Service Executive: Dublin.Google Scholar
Dixon, L, Lucksted, A, Stewart, B, Burland, J, Brown, C.H, Postrado, L, McGuire, C, Hoffman, M (2004). Outcomes of the peer-taught 12-week family-to-family education program for severe mental illness. Acta Psychiatric Scandanavia 109, 207215.CrossRefGoogle ScholarPubMed
Druss, B, Zhao, L, von Esenwein, S, Boma, J, Fricks, L, Jenkins-Tucker, S, Sterling, E, DiClemente, R, Lorig, K (2010). The Health and Recovery Peer (HARP) Program: a peer-led intervention to improve medical self-management for persons with serious mental illness. Schizophrenia Research 118, 264270.Google Scholar
Duckworth, K, Halpern, L (2014). Peer support and peer-led family support for persons living with schizophrenia. Current Opinion in Psychiatry 27, 216221.Google Scholar
Dunne, EA (2006). Report of a Survey for the Mental Health Commission: The Views of Adult Users of the Public Sector Mental Health Services. Mental Health Commission: Dublin.Google Scholar
Gibbons, P, Hogan, G, McGauran, S (1999). An assessment of the psychoeducational needs of long-term psychiatric patients. Irish Journal of Psychological Medicine 16, 104108.Google Scholar
Higgins, A (2008). A Recovery Approach Within the Irish Mental Health Services: A Framework for Development. Mental Health Commission: Dublin.Google Scholar
Holland, K (2007). The epistemological bias of ethics review, constraining mental health Research. Qualitative Inquiry 13, 895913.Google Scholar
Holstein, J, Gubrium, J (2003). Inside Interviewing: New lenses, New Concerns. Sage Publications: Thousand Oaks, CA.CrossRefGoogle Scholar
Hornung, WP, Feldmann, R, Klingberg, S, Buchkremer, G, Reker, T (1999). Long-term effects of a psychoeducational psychotherapeutic intervention for schizophrenic outpatients and their key-persons: results of a five-year follow-up. European Archives of Psychiatry and Clinical Neuroscience 249, 162167.Google Scholar
Kartalova-O’Doherty, Y, Doherty, D, Walsh, D (2008). Family Support Study: A Study of the Experiences, Needs and Support Requirements of Families with Enduring Mental Illness in Ireland. Health Research Board: Dublin.Google Scholar
Kemmis, S, McTaggart, R (2005). Participatory action research. Communicative action and the public sphere. In The Sage Handbook of Qualitative Research Third Edition (ed. N. K. Denzin and Y. S. Lincoln), pp. 559605. Sage Publications: Thousand Oaks, CA.Google Scholar
Kitzinger, J (1995). Qualitative research. Introducing focus groups. British Medical Journal 311, 299302.Google Scholar
Knowles, M (1996). Andragogy: an emerging technology for adult learning. In Boundaries of Adult Learning (ed. R. Edwards, A. Hanson and P. Raggatt), pp. 8299. Routledge: London.Google Scholar
Knowles, M, Holton, E, Swanson, RA (2005). The Adult Learner, 6th edn. Butterworth-Heinemann: New York.Google Scholar
Mauritz, M, van Meijel, B (2009). Loss and grief in patients with schizophrenia: on living in another world. Archives of Psychiatric Nursing 23, 251260.CrossRefGoogle ScholarPubMed
McAuliffe, R, O’Connor, L, Meagher, D (2014). Parents experience of living with and caring for an adult son or daughter with schizophrenia at home in Ireland: a qualitative study. Journal of Psychiatric and Mental Health Nursing 21, 145153.CrossRefGoogle ScholarPubMed
McDaid, S (2006). Equal and Inclusive User Involvement in the Mental Health Services in Ireland: Results from Participatory Action Research. University College Dublin: Dublin.Google Scholar
Mental Health Commission (2005). Quality in Mental Health-Your Views: Report on Stakeholder Consultation on Quality in Mental Health Services. Mental Health Commission: Dublin.Google Scholar
National Institute for Health and Clinical Excellence (2009). Schizophrenia: Core Interventions in the Treatment and Management of Schizophrenia in Adults in Primary and Secondary Care. National Institute for Health and Clinical Excellence: London.Google Scholar
National Service User Executive (2011). Second Opinions: Summary Report of the NSUE Survey of Members on Vision for Change. National Service User Executive: Dublin.Google Scholar
Park, M, Zafran, H, Stewart, J, Salsberg, J, Carolyn Ells, C, Rouleau, S, Estein, O, Valente, T (2014). Transforming mental health services: a participatory mixed methods study to promote and evaluate the implementation of recovery-oriented services. Implementation Science 9, 119 (http://www.biomedcentral.com/content/pdf/s13012-014-0119-7.pdf). Accessed 18 November 2014.Google Scholar
Pekkala, E, Merinder, L (2002). Psychoeducation for schizophrenia. Cochrane Database of Systematic Reviews 2, CD002831.Google Scholar
Pickett-Schenk, S, Bennett, C, Steigman, P, Cook, J, Lippincott, R, Villagracia, I, Grey, D (2006). Changes in caregiving satisfaction and information needs among relatives of adults with mental illness: results of a randomised evaluation of family-led education intervention. American Journal of Othropsychiatry 76, 545553.Google Scholar
Pickett, S, Diehl, S, Steigman, P, Prater, J, Fox, A, Cook, J (2010). Early outcomes and lessons learned from a study of the Building Recovery of Individual Dreams and Goals through Education and Support (BRIDGES) program in Tennessee. Psychiatric Rehabilitation Journal 34, 96103.Google Scholar
Pickett-Schenk, S, Lippincott, RC, Bennett, C, Steigman, P (2008). Improving knowledge about mental illness through family-led education: the journey of hope. Psychiatric Services 59, 4956.Google Scholar
Pharoah, F, Mari, J, Rathbone, J, Wong, W (2010). Family intervention for schizophrenia. Cochrane Database of Systematic Reviews 12, CD000088.Google Scholar
Repper, J, Perkins, R (2003). Social Inclusion and Recovery. Balliere Tindall: London.Google Scholar
Resnick, S, Armstrong, M, Sperrazza, M, Harkness, L, Rosenheck, R (2004). A model of consumer-provide partnership: Vet-to-Vet. Psychiatric Rehabilitation Journal 28, 185187.Google Scholar
Resnick, S, Rosenheck, R (2008). Integrating peer-provided services: a quasi-experimental study of recovery orientation, confidence and empowerment. Psychiatric Services 59, 13071314.CrossRefGoogle ScholarPubMed
Richardson, M, Cobham, V, Murray, J, McDermott, B (2011). Parents’ grief in the context of adult child mental illness: a qualitative review. Clinical Child Family Psychological Review 14, 2843.Google Scholar
Rummel, C, Hansen, W, Helbig, A, Pitschel-Walz, G, Kissling, W (2005). Peer-to-peer psychoeducation in schizophrenia: a new approach. Journal of Clinical Psychiatry 66, 15801585.Google Scholar
Sin, J, Norman, I (2013). Psychoeducational interventions for family members of people with schizophrenia: a mixed-method systematic review. Journal of Clinical Psychiatry 74, 11451162.Google Scholar
Stringer, ET (1999). Action Research, 2nd edn. Sage Publications: Thousand Oaks, CA.Google Scholar
Tungpunkom, P, Nicol, M (2008). Life skills programmes for chronic mental illnesses. Cochrane Database of Systematic Reviews 2, CD000381.Google Scholar
Western Health Board and Schizophrenia Ireland (2002). Pathways Report: Experiences of Mental Health Services from a User-Led Perspective. Western Health Board: Galway.Google Scholar
Witham, G, Beddow, A, Haigh, C (2015). Reflections on access: too vulnerable to research? Journal of Research in Nursing 20, 2837.Google Scholar
Wittmann, D, Keshavan, M (2007). Grief and mourning in schizophrenia. Psychiatry 70, 154166.Google Scholar
World Health Organization (2010). User Empowerment in Mental Health: A Statement by the WHO Regional Office for Europe. World Health Organization: Copenhagen.Google Scholar
Xia, J, Merinder, LB, Belgamwar, MR (2011). Psychoeducation for schizophrenia. Cochrane Database of Systematic Reviews 6, CD002831.Google Scholar
Yesufu-Udechuku, A, Harrison, B, Mayo-Wilson, E, Young, N, Woodhams, P, Shiers, D, Kuipers, E, Kendall, T (2015). Interventions to improve the experience of caring for people with severe mental illness: systematic review and meta-analysis. British Journal of Psychiatry 206, 268274.Google Scholar
Zhao, S, Sampson, S, Xia, J, Jayaram, MB (2015). Psychoeducation (brief) for people with serious mental illness. Cochrane Database Systematic Review 4, CD010823.Google Scholar