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Experiences of care for self-harm in the emergency department: the perspectives of patients, carers and practitioners

Published online by Cambridge University Press:  10 March 2022

Jo Robinson*
Affiliation:
Orygen, Parkville, Victoria, Australia; and Centre for Youth Mental Health, University of Melbourne, Victoria, Australia
Eleanor Bailey
Affiliation:
Orygen, Parkville, Victoria, Australia; and Centre for Youth Mental Health, University of Melbourne, Victoria, Australia
*
Correspondence: Jo Robinson. Email: [email protected]
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Summary

Emergency departments are often the point of entry to the healthcare system for people who self-harm, and these individuals are at high risk of further self-harm and suicide in the post-discharge period. These settings therefore provide a critical opportunity for intervention. However, many studies have identified that the experiences of patients, carers and the emergency department staff themselves is often suboptimal. In this editorial we summarise one such study, by O'Keeffe and colleagues, and consider strategies for improving the experiences of patients and their carers when presenting to the emergency department. We also reiterate the need for wider systemic change in attitudes and approaches towards people who self-harm that are pervasive across the healthcare system and beyond.

Type
Editorial
Creative Commons
Creative Common License - CCCreative Common License - BY
This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted re-use, distribution, and reproduction in any medium, provided the original work is properly cited.
Copyright
Copyright © The Author(s), 2022. Published by Cambridge University Press on behalf of the Royal College of Psychiatrists

Emergency departments are often the first point of contact with the healthcare system for people engaging in self-harm, by which stage they may be experiencing a suicidal crisis. Indeed, the period immediately following discharge from emergency departments is associated with high risk of further self-harm and suicide.Reference Hawton, Bale, Brand, Townsend, Ness and Waters1,Reference Geulayov, Casey, Bale, Brand, Clements and Farooq2 Emergency departments therefore present an important opportunity for intervention, not only because of the elevated levels of risk, but also because many of these individuals have sought help in the first place and may thus be more likely to engage with treatment. For these reasons, people who present to hospital following self-harm have been identified as a priority group when it comes to suicide prevention in many countries around the world.3

In their recent article published in BJPsych Open, O'Keeffe and colleagues report on a qualitative study examining experiences of care for self-harm in the emergency department from the perspective of patients, carers and practitioners.Reference O'Keeffe, Suzuki, Ryan, Hunter and McCabe4 The study showed that, in general, the healthcare system is failing to meet the needs of people who present to the emergency department following self-harm. In the paper, the views of the different stakeholder groups are combined and four different themes are reported; here we summarise the findings as they relate to patients and carers, followed by those of practitioners.

The perspectives of patients, carers and practitioners

From the perspective of patients, emergency departments were often viewed as the only way of accessing support, owing to the barriers they experienced in the community. However, the care provided in emergency departments tended to be experienced as invalidating and lacking in compassion and empathy. Patients and carers discussed feeling shame and guilt for being ‘time wasters’, sometimes as a direct result of the treatment they received. Risk assessments were perceived as a superficial ‘tick box exercise’ that failed to address ‘the root cause’ of distress and seemed to align with the requirements of the hospital rather than the needs of the patient. Carers described feeling excluded from decision-making, as well as ‘over-relied on’ yet ‘ill-equipped’ to keep the person in their care safe.

Practitioners agreed that the system is failing people who self-harm. This was largely attributed to: time constraints; pressure to prioritise the assessment, management and documentation of immediate risk; a lack of available services to refer to; and fear of being blamed if a patient subsequently died by suicide. Together these factors led to reduced capacity to develop rapport or express compassion and empathy. They also led to feelings of ‘powerlessness to help’, which in turn led to burnout and had a significant negative impact on their own mental health.

The wider literature

Unfortunately, the challenge of delivering high-quality care to people who present to the emergency department following self-harm is not a new problem, and the study by O'Keeffe and colleagues adds to a growing body of literature that documents the challenges experienced by both patients and staff.Reference Byrne, Bellairs-Walsh, Rice, Bendall, Lamblin and Boubis5Reference Fernandes, Scheuermeyer, Chakraborty, Honer and Barbic9 Our own work with young people has shown that emergency departments are often found to be countertherapeutic, with staff appearing to lack both empathy and knowledge when treating young people who self-harm.Reference Byrne, Bellairs-Walsh, Rice, Bendall, Lamblin and Boubis5 This is significant as young people (and in particular young females) make up the majority of emergency department presentations for self-harm and rates of presentation in this population appear to have increased during the COVID-19 pandemic.10,Reference Ougrin, Wong, Vaezinejad, Plener, Mehdi and Romaniuk11 This is also problematic given that negative experiences may reduce likelihood of future help-seeking. For example, Rosebrock and colleagues found that ~50% of patients attending an emergency department for a ‘suicidal crisis’ reported being unwilling to return, with negative experiences, less comprehensive assessments and longer waiting times all associated with unwillingness to return or attend a follow-up appointment.Reference Rosebrock, Batterham, Chen, McGillivray, Rheinberger and Torok6

Despite highlighting predominantly negative experiences, research (including the current study) has identified numerous opportunities for improvement. These include the need for more personalised and compassionate care, more collaborative assessment practices, better staff training and increased access to aftercare services following discharge from the emergency department.Reference O'Keeffe, Suzuki, Ryan, Hunter and McCabe4,Reference Byrne, Bellairs-Walsh, Rice, Bendall, Lamblin and Boubis5,Reference MacDonald, Sampson, Turley, Biddle, Ring and Begley8 These suggestions echo the recommendations made in current best practice guidelines (both in the UK, where the current study was conducted, and elsewhere), which cite the need for robust psychosocial assessment, appropriate mental health training for staff, and showing patients respect and compassion.Reference Carter, Page, Large, Hetrick, Milner and Bendit12,13 However, despite the existence of such guidelines, many studies, including the one by O'Keeffe and colleagues, demonstrate that adherence to them is often suboptimal.Reference Fernandes, Scheuermeyer, Chakraborty, Honer and Barbic9,Reference Pitman, Tsiachristas, Casey, Geulayov, Brand and Bale14,Reference Wilson, Kaur, Blake, Oliveto, Thompson and Pyne15 In particular, research has focused on identifying and understanding poor adherence to the recommendation that every person who presents to the emergency department for self-harm should undergo a psychosocial assessment.Reference Pitman, Tsiachristas, Casey, Geulayov, Brand and Bale14,Reference Quinlivan, Gorman, Littlewood, Monaghan, Barlow and Campbell16,Reference Cooper, Steeg, Bennewith, Lowe, Gunnell and House17

What is the solution?

Changing emergency department culture and processes

There is clearly an urgent need for systemic and cultural change in emergency departments if we are to meet the needs of people who present following self-harm. According to O'Keeffe and colleagues this may be fostered through approaches targeting practitioners, patients and carers. Strategies targeting practitioners might include training to address stigma (among emergency department staff but also more broadly across the community), improved supervision practices and strategies to reduce burden on individual staff members in the unfortunate (yet at times unavoidable) event that a patient subsequently dies by suicide. Strategies targeting vicarious trauma in emergency department practitioners also have the capacity to reduce burnout and improve well-being, and might include structured debriefing or reflective practice with peers. For patients, O'Keeffe and colleagues highlight the need for evidence-based interventions and discuss the potential utility of adapting the Attempted Suicide Short Intervention Program (ASSIP), an intervention designed to foster hope through building the therapeutic alliance,Reference Michel and Gysin-Maillart18 to the emergency department setting. Collaborative safety planning, in which practitioners work with patients to create a written, personalised plan outlining warning signs and coping strategies, has also shown promise in emergency departments.Reference Stanley, Brown, Brenner, Galfalvy, Currier and Knox19 More broadly (and in line with National Institute for Health and Care Excellence (NICE) guidelines and general good practice), applying the principles of compassionate care would also likely make a significant difference to the experiences of patients in the emergency department.Reference Cole-King, Green, Gask, Hines and Platt20 Beyond approaches targeting patients and practitioners, it is crucial that supports are provided to carers. These individuals are frequently neglected, yet they are often tasked with the responsibility of keeping the patient safe; this may be particularly important for carers of younger patients.Reference Byrne, Morgan, Fitzpatrick, Boylan, Crowley and Gahan21

The physical environment of the emergency department is also often considered to be countertherapeutic to people presenting following self-harm or in a suicidal crisis;Reference Byrne, Bellairs-Walsh, Rice, Bendall, Lamblin and Boubis5 thus, there is scope to partner with patients and other stakeholders in order to improve some of the environmental characteristics of the emergency department (e.g. lighting), which in turn will likely lead to improved patient experiences.Reference Liddicoat22 More radically, dedicated psychiatric emergency services (PES) (in other words, stand-alone emergency departments specifically for psychiatric patients) may serve to remove some of the challenges associated with care provided in the emergency department.Reference Zeller23 PES units have been used with good effect in both the US and UK, and may also be worth pursuing elsewhere in the world. Finally, in addition to training for individual staff, strategies to improve adherence to best-practice guidelines in emergency departments should be adopted, including the active dissemination and promotion of guidelines by hospital leadership, developing protocols that clearly delineate roles and responsibilities, implementing decision support systems and ensuring that adequate time and resources are available to practitioners.Reference Fischer, Lange, Klose, Greiner and Kraemer24

Access to services

Beyond emergency departments, there is a larger issue of service access. Indeed, it is acknowledged that there are risks associated with community-occurring self-harm (including risk of eventually presenting to the emergency department), yet there are barriers to accessing community-based mental health services. For example, long waiting lists, high levels of stigma and low visibility of available services often preclude people from accessing community-based support for self-harm in a timely manner. Aside from the need for extra funding for community-based services, a number of novel approaches have been developed to address this. For example some countries, including the UK, are developing alternatives to the emergency department; these are often referred to as ‘safe spaces’ and have a strong peer support component. Initial evaluations of these have shown that participants value the opportunity to develop supportive connections with peers and to discuss self-harm in an environment free of stigma.Reference Boyce, Munn-Giddings and Secker25 To date, however, limited evidence exists for their effectiveness. Another novel approach is the development of aftercare services. These are designed to deliver assertive follow-up care during the 3 months after presentation to the emergency department, with the aim of reducing suicide risk and increasing engagement with services. These are gaining traction in Australia, and early indications suggest that they are acceptable to patients and staff and that they appear to reduce rates of re-presentation to the emergency department.Reference Wright, Lee, Rylatt, Henderson, Cronje and Kehoe26 Robust evaluation is now required to assess their effectiveness, including their cost-effectiveness, and to ensure that they do not further fragment an already fragmented system of care. Of course, a patient's likelihood of engaging with aftercare services (or any other mental health service) is likely to be influenced by their experience in the emergency department, further emphasising the need to provide quality care at that first point of contact. Nonetheless, the broad implementation of new approaches such as safe spaces or aftercare services, combined with adequate funding for both primary and secondary healthcare services, would probably reduce pressure on emergency departments. This in turn would reduce the burden on practitioners and ultimately improve the experiences and treatment outcomes of patients.

Stigma

Finally, it is acknowledged that stigmatising attitudes towards self-harm are widely held, in both the healthcare system and beyond. At a broader population level, approaches addressing this stigma, such as media campaigns or psychoeducation programmes delivered in educational settings, are required. Reduced stigma at a population level will likely have flow-on effects, including increased compassion on the part of health practitioners and improved well-being for people who self-harm.

Conclusions

O'Keeffe and colleagues have added to a growing body of literature emphasising the urgent need for improved processes within emergency departments, as well as systemic changes to the wider healthcare system for the benefit of patients, carers and practitioners. Although this study does not necessarily reveal a new problem (indeed, research published over a decade ago highlights many of the same challengesReference Taylor, Hawton, Fortune and Kapur27), it is timely. The COVID-19 pandemic has significantly and negatively affected people's mental health and, in turn, rates of self-harm and suicidal ideation; it has also placed unprecedented pressure on emergency departments and highlighted many of the pre-existing cracks in the healthcare system. Now more than ever we need to invest in the health of our community and particularly in those who may have previously been underserved by our healthcare system, including individuals presenting to emergency departments following self-harm, their families and carers, and the practitioners themselves.

Data availability

Data availability is not applicable to this article as no new data were created or analysed in its preparation.

Author contributions

Both authors contributed equally to the manuscript. Both authors have read and approved the final version of the manuscript.

Funding

J.R. is funded by a National Health and Medical Research Council (NHMRC) Career Development Fellowship (ID1142348).

Declaration of interest

None.

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