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Evaluation of quality of life and parental attitudes in patients who underwent atrial septal defect closure in childhood

Published online by Cambridge University Press:  11 December 2023

Zeynep Torunoğlu Bek Open the ORCID record for Zeynep Torunoğlu Bek [Opens in a new window] ,
A. Deniz Oğuz ,
A. Şebnem Soysal Acar ,
Semiha Terlemez ,
Fatma Hayvacı Canbeyli ,
Serdar Kula  and
Fatma Sedef Tunaoğlu
Zeynep Torunoğlu Bek*
Affiliation:
Department of Pediatrics, Gazi University Hospital, Ankara, Türkiye
A. Deniz Oğuz
Affiliation:
Department of Pediatric Cardiology, Gazi University Faculty of Medicine, Ankara, Türkiye
A. Şebnem Soysal Acar
Affiliation:
Department of Pediatrics, Gazi University Hospital, Ankara, Türkiye
Semiha Terlemez
Affiliation:
Department of Pediatric Cardiology, Gazi University Faculty of Medicine, Ankara, Türkiye
Fatma Hayvacı Canbeyli
Affiliation:
Department of Pediatric Cardiology, Gazi University Faculty of Medicine, Ankara, Türkiye
Serdar Kula
Affiliation:
Department of Pediatric Cardiology, Gazi University Faculty of Medicine, Ankara, Türkiye
Fatma Sedef Tunaoğlu
Affiliation:
Department of Pediatric Cardiology, Gazi University Faculty of Medicine, Ankara, Türkiye
*
Corresponding author: Z. Torunoğlu Bek; Email: zeyneptorunoglu@hotmail.com
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Abstract

Objective:

In this study, we aimed to evaluate quality of life and parental attitudes in children who underwent an atrial septal defect closure procedure with a transcatheter or surgical method in childhood and whether they continued their lives with similar activities to their healthy peers by comparing the two groups.

Methods:

Patient forms to define sociodemographic and clinical features, the Questionnaire for Measuring Health-Related Quality of Life in Children and Adolescents (KINDL) to measure the quality of life of children, and the Parent-Child Relationship Test (Parental Attitude Research Instrument) to measure parental attitudes were used.

Results:

The groups were similar in terms of age and sex. The mean quality of life scale scores were high in all groups, and there was no statistically significant difference between the scores. Parents of the patients who underwent closure received higher scores from the demographic attitudes and recognition of quality subdimension compared to the parents of the healthy group.

Conclusions:

The quality of life of children with atrial septal defect closure was found to be similar to their healthy peers. Additionally, the effects of surgical or percutaneous closure of atrial septal defect on quality of life are similar. Children with atrial septal defect closure perceive their health status as well as their healthy peers, and this perception does not cause any difference in the attitudes and behaviours of families.

Keywords

Atrial septal defectquality of lifeparental attitudeschildhood
Type
Original Article
Information
Cardiology in the Young , Volume 34 , Issue 5 , May 2024 , pp. 1071 - 1076
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Copyright
© The Author(s), 2023. Published by Cambridge University Press

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