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Small Acts of Care: Exploring the Potential Impact of the Mental Capacity Act 2005 on Day-to-Day Support

Published online by Cambridge University Press:  01 January 2009

Nicky Stanley  and
Jill Manthorpe
Nicky Stanley
Affiliation:
Department of Social Work, University of Central Lancashire E-mail: [email protected]
Jill Manthorpe
Affiliation:
Social Care Workforce Research Unit, King's College London E-mail: [email protected]
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Abstract

Exploring the five principles of the newly enacted Mental Capacity Act 2005, this article sets these in the context of day-to-day decisions over care and treatment. These areas figure strongly in the lives of people who have problems making decisions, but there is little consideration of them in contrast to major decisions about financial planning, deprivation of liberty, and healthcare and treatment. Social policy has often found it difficult to encroach upon areas covering intimate and family-based care relationships or the private domain of care at home. This legislation touches on this controversial area.

Type
Articles
Information
Social Policy and Society , Volume 8 , Issue 1 , January 2009 , pp. 37 - 48
Copyright
Copyright © Cambridge University Press 2008

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References

Barnes, C. (ed.) (1993), Making Our Own Choices: Independent Living, Personal Assistance and Disabled People, Clay Cross: British Council of Organisations of Disabled People.Google Scholar
Barron, K. (2001), ‘Autonomy in everyday life, for whom?’, Disability and Society, 16, 3, 431–47.CrossRefGoogle Scholar
British Psychological Society (2006), Assessment of Capacity in Adults: Interim Guidance for Psychologists, Leicester: BPS.Google Scholar
Brown, G. (2007), The Living End: The Future of Death, Aging and Mortality, Basingstoke: Palgrave Macmillan.Google Scholar
Calnan, M., Woolhead, G., Dieppe, P., and Tadd, W. (2005), ‘Views on dignity in providing health care for older people’, Nursing Times, 101, 38–41.Google ScholarPubMed
Care Services Improvement Partnership (CSIP) (2006), ‘Dignity in care champions network’, Department of Health, London, at www.dignityincare.org.uk [accessed 7 February 2008].Google Scholar
Chappell, A. (1992), ‘Towards a sociological critique of the normalisation principle’, Disability and Society, 7, 1, 35–51.CrossRefGoogle Scholar
Curtis, J.R., Patrick, D.L., Shannon, S.E., Treace, P.D., Engelberg, R.A., and Rubenfeld, G.D. (2001), ‘The family conference as a focus to improve communication about end-of-life care in the intensive care unit: opportunities for improvement’, Critical Care Medicine, 29, 2, Supplement N26-N33, February 2001.CrossRefGoogle ScholarPubMed
Department for Constitutional Affairs (DCA) (2007), Mental Capacity Act 2005 Code of Practice, Norwich: The Stationery Office.Google Scholar
Doukas, D. and Hardwig, J. (2003), ‘Using the family covenant in planning end-of-life care: obligations and promises of patients, families, and physicians’, Journal of the American Geriatrics Society, 51, 8, 1155–8.CrossRefGoogle ScholarPubMed
Dunn, M., Clare, I., Holland, A.J., and Gunn, M. (2007), ‘Constructing and reconstructing “best interests”: an interpretive examination of substitute decision-making under the Mental Capacity Act 2005’, Journal of Social Welfare and Family Law, 29, 2, 117–33.CrossRefGoogle ScholarPubMed
Dunn, M.C., Clare, I.C.H., and Holland, A.J. (2008), ‘Substitute decision-making for adults with intellectual disabilities living in residential care: learning through experience’, Health Care Analysis, 16, 1, 52–64.CrossRefGoogle ScholarPubMed
Foster, M., Harris, J., Jackson, K., and Glendinning, C. (2006), ‘Practitioners’ documentation of assessment and care planning in social care: the opportunities for organisational learning’, British Journal of Social Work [advance access, published 5 December].CrossRefGoogle Scholar
Glendinning, C. and Kemp, P.A. (eds) (2006), Cash and Care: Policy Challenges in the Welfare State, Bristol: The Policy Press.Google Scholar
Goffman, E. (1963), Stigma: Notes on the Management of Spoiled Identity, Englewood Cliffs, NJ: Prentice Hall.Google Scholar
Healthcare Commission (2007), Caring for Dignity: A National Report on Dignity in Care for Older People While in Hospital, London: Healthcare Commission.Google Scholar
Government, HM (2007), Putting People First, London: HM Government.Google Scholar
Hickman, S.E. (2004), ‘Honouring resident autonomy in long-term care: special considerations’, Aging Matters, 42, 1, 12–16.Google Scholar
Jacob, R., Clare, I.C.H., Holland, A., Watson, P.C., Maimaris, C., and Gunn, M. (2005), ‘Self-harm, capacity, and refusal of treatment: implications for emergency medical practice − a prospective observational study’, Emergency Medicine Journal, 22, 799–802.CrossRefGoogle ScholarPubMed
Johns, R. (2007), ‘Who decides now? Protecting and empowering vulnerable adults who lose the capacity to make decisions for themselves’, British Journal of Social Work, 37, 557–64.CrossRefGoogle Scholar
Koppelman, E.R. (2002), ‘Dementia and dignity: towards a new method of surrogate decision making’, The Journal of Medicine and Philosophy, 27, 1, 65–85.CrossRefGoogle ScholarPubMed
Law Commission (1991), Mentally Incapacitated Adults and Decision-Making: An Overview, Consultation Paper 119, London: HMSO.Google Scholar
Law Commission. (1993a), Mentally Incapacitated Adults and Decision-Making: A New Jurisdiction, Consultation Paper 128, London: HMSO.Google Scholar
Law Commission (1993b), Mentally Incapacitated Adults and Decision-Making: Medical Treatment and Research, Consultation Paper 129, London: HMSO.Google Scholar
Law Commission (1995), Mental Incapacity, Com No. 23, London: HMSO.Google Scholar
Lord Chancellor's Department (1997), Who Decides? Making decisions on behalf of Mentally Incapacitated Adults, London: HMSO.Google Scholar
Mallett, S. (2004), ‘Understanding home: a critical review of the literature’, The Sociological Review, 52, 1, 62–89.CrossRefGoogle Scholar
Manthorpe, J. and Carr, H. (2008), ‘Dignity practice guide’, Law Update, No. 9, London, Social Care Institute for Excellence, at http://www.scie.org.ukGoogle Scholar
Manthorpe, J., Rapaport, J., Jacobs, S., Challis, D., Stevens, M., Netten, A., Knapp, M., Wilberforce, M., Glendinning, C., and Harris, J. (2008b), ‘Safeguarding and system change: early perceptions of the implications for adult protection services of the English Individual Budget pilots: a qualitative study’, British Journal of Social Work [advance access].CrossRefGoogle Scholar
Manthorpe, J., Rapaport, J., and Stanley, N. (2008a), ‘The Mental Capacity Act 2005 and its influences on social work practice: debate and synthesis’, Practice, 20, 3, 151–162.CrossRefGoogle Scholar
Manthorpe, J., Rapaport, J., and Stanley, N. (2008) advance access, ‘Expertise and experience: service users’ and carers’ views on the Mental Capacity Act 2005’, British Journal of Social Work [advance access, 1–17].CrossRefGoogle Scholar
Mental Capacity Act (2005), London: The Stationery Office.Google Scholar
Mental Health Act Commission (1999), The Mental Health Act Commission Eighth Biennial Report 1997–1999, London: The Stationery Office.Google Scholar
Moniz Cook, E., Manthorpe, J., Carr, I., Gibson, G., and Vernooij-Dassen, M. (2006), ‘Facing the future: a qualitative study of older people referred to a memory clinic prior to assessment and diagnosis’, Dementia, 5, 3, 375–95.CrossRefGoogle Scholar
Munro, E. (2002), Effective Child Protection, London: Sage Publications.Google Scholar
Nicholson, T.R.J., Cutter, W., and Hotopf, M. (2008), ‘Assessing mental capacity: the Mental Capacity Act’, British Medical Journal, 336, 322–5.CrossRefGoogle ScholarPubMed
Pedain, A. (2003), ‘The human rights dimension of the Diane Pretty case’, Cambridge Law Journal, 62, 181–206.CrossRefGoogle ScholarPubMed
Priestley, M., Jolly, D., Pearson, C., Ridell, S., Barnes, C., and Mercer, G. (2007), ‘Direct payments and disabled people in the UK: supply, demand and devolution’, British Journal of Social Work, 37, 7, 189–204.Google Scholar
Randall, C.J., Patrick, D.L., Shannon, S.E., Treece, P.D., Engelberg, R.A., and Rubenfeld, G.D. (2001), ‘The family conference as a focus to improve communication about end-of-life care in the intensive care unit: opportunities for improvement’, Critical Care Medicine, 29, 2, Supplement: N26-N33, February.Google Scholar
Randers, I. and Mattiason, A.-C. (2004), ‘Autonomy and integrity: upholding older adult patients’ dignity’, Journal of Advanced Nursing, 45, 1, 63–71.CrossRefGoogle ScholarPubMed
Revill, J. (2007), ‘The dirty truth on the wards’, The Observer, 14 October, pp. 6–7.Google Scholar
Robertson, J., Emerson, E., Hatton, C., Elliott, J., McIntosh, B., Swift, P., Krinjen-Kemp, E., Towers, C., Romeo, R., Knapp, M., Sanderson, H., Routledge, M., Oakes, P., and Joyce, T. (2007), ‘Person-centred planning: factors associated with successful outcomes for people with intellectual disabilities’, Journal of Intellectual Disability Research, 51, 3, 232–43.CrossRefGoogle ScholarPubMed
Sayers, G. M. and Nesbitt, T. (2002), ‘Ageism in the NHS and the Human Rights Act 1998: an ethical and legal enquiry’, European Journal of Health Law, 9, 5–18.CrossRefGoogle Scholar
Schiff, R., Sacares, P., Snook, J., Rajjkumar, C., and Bulpitt, C. (2006), ‘Living wills and the Mental Capacity Act: a postal survey questionnaire of UK geriatricians’, Age and Ageing, 35, 116–21.CrossRefGoogle ScholarPubMed
Scott, P. A., Välimäki, M., Leino-Kilpi, H., Dassen, T., Gasull, M., Lemonidou, C., and Arndt, M. (2007), ‘Autonomy, privacy and informed consent 3: elderly care perspective’, British Journal of Nursing, 12, 158–68.CrossRefGoogle Scholar
Shugarman, L.R., Fries, B.E., Wolf, R.S., and Morris, J.N. (2003), ‘Identifying older people at risk of abuse during routine screening practices’, Journal of the American Geriatrics Society, 51, 1, 24–31CrossRefGoogle ScholarPubMed
Smyth, C. and Bell, D. (2006), ‘From biscuits to boyfriends: the ramifications of choice for people with learning disabilities’, British Journal of Learning Disabilities, 34, 4, 227–36.CrossRefGoogle Scholar
Stanley, N., Lyons, C., Manthorpe, J., Rapaport, J., Rapaport, P., Carrahar, M., Grimshaw, C., Voss, S., and Spencer, L. (2007), Mental Capacity Act Training Sets, 5 volumes, London: Department of Health.Google Scholar
Thompson, T.D.B., Barbour, R.S., and Scwartz, L.T. (2003), ‘Health professionals’ views on advance directives: a qualitative interdisciplinary study’, Palliative Medicine, 17, 430–9.CrossRefGoogle ScholarPubMed
Twigg, J. (2006), The Body in Health and Social Care, Basingstoke: Palgrave Macmillan.CrossRefGoogle Scholar
Weiss, M.G., Ramakrishna, J., and Somma, D. (2006), ‘Health-related stigma: rethinking concepts and interventions’, Psychology, Health and Medicine, 11, 3, 277–87.CrossRefGoogle ScholarPubMed
White, S. M. and Baldwin, T. J. (2006), ‘The Mental Capacity Act 2005 – implications for anaesthesia and critical care’, Anaesthesia 61, 4, 381–9.CrossRefGoogle ScholarPubMed
Wilkinson, H. (2001), ‘Empowerment and decision-making for people with dementia: the use of legal interventions in Scotland’, Aging and Mental Health, 5, 4, 322–8CrossRefGoogle ScholarPubMed
Williamson, T. (2007), ‘Capacity to protect – the Mental Capacity Act explained’, Journal of Adult Protection, 9, 1, 25–32.CrossRefGoogle Scholar
Winter, B. and Cohen, S. (1999), ‘Withdrawal of treatment’, British Medical Journal, 319, 306–8.CrossRefGoogle ScholarPubMed