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Information and advice received by carers of younger people with dementia

Published online by Cambridge University Press:  02 January 2018

Hilary J. Husband  and
Meera N. Shah
Hilary J. Husband*
Affiliation:
Norfolk Mental Health Care NHS Trust School of Health Policy and Practice, University of Exist Anglia, Norwich NRA 7TJ
Meera N. Shah
Affiliation:
Rampton Hospital, Retford, Nottinghamshire
*
∗Correspondence
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Abstract

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Aims and method

Retrospective information on advice and information received post-diagnosis was obtained from 40 carers of younger people with dementia, using a semi-structured interview.

Results

Twelve carers received services from old age psychiatry, the remaining 28 from predominantly adult psychiatry or neurology. Those in receipt of old age services reported greater adequacy of diagnostic information, higher levels of advice giving and more frequent referral to social services.

Clinical implications

While old age services were more successful on the parameters examined, the gradually emergent nature of the diagnosis may be a crucial factor in the lack of information and advice received by the comparison group.

Type
Original papers
Information
Psychiatric Bulletin , Volume 23 , Issue 2 , February 1999 , pp. 94 - 96
Creative Commons
Creative Common License - CCCreative Common License - BY
This is an Open Access article, distributed under the terms of the Creative Commons Attribution (CC-BY) license (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted re-use, distribution, and reproduction in any medium, provided the original work is properly cited.
Copyright
Copyright © 1999 The Royal College of Psychiatrists

References

Alzheimer's Disease Society (1995) Services for Younger People with Dementia: A Report by the Alzheimer's Disease Society. London: Alzheimer's Disease Society.Google Scholar
Baldwin, R. C. (1994) Acquired cognitive impairment in the presenium. Psychiatric Bulletin, 18, 463–465.CrossRefGoogle Scholar
Sperlinger, D. & Furst, M. (1994) The service experiences of people with presenile dementia: A study of carers in one London Borough. International Journal of Psychiatry, 9, 177–178.Google Scholar
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