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The parent's perspective

Published online by Cambridge University Press:  07 March 2007

Teresa Culverwell
Teresa Culverwell
Affiliation:
11 Brookfield Way, Kings Court, Tipton, West Midlands, DY4 0NE, UK
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Abstract

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The present paper gives an insight from a parent's perspective into the roles of health professionals and service providers in the daily management of a child with complex needs that include enteral feeding. It focuses on the case of a 9-year-old boy and discusses some aspects of his diagnosis and treatment, and the support received. It highlights the need for a multi-agency approach based around the child, in which parents are consulted, the opinions of professionals from the different disciplines are valued by other professionals and professionals do not issue conflicting advice but share knowledge before giving advice. There should be national accessibility to support services and a standardised training programme for carers. Better communication between parents, carers, health professionals and service providers and working together can reduce the stress for the patient and carer, and put less strain on much-needed resources.

Keywords

Enteral feedingDaily management and supportMulti-agency approach
Type
Meeting Report
Information
Proceedings of the Nutrition Society , Volume 64 , Issue 3 , August 2005 , pp. 339 - 343
Copyright
Copyright © The Nutrition Society 2005

References

Clinical Resource Efficiency Support Team (2004) Guidelines for the management of enteral tube feeding in adults. http://www.crestni.org.uk/publications/tube_feeding_guidelines.pdf Google Scholar
Limbrick, P (2001) The Team Around the Child: Multi-agency Service Co-ordination for Children with Complex Needs and their Families. Worcester, Worcs. Interconnections www.icwhatsnew.com Google Scholar
Maher, J, Green, H (2002) Carers 2000 London The Stationery Office http://www.statistics.gov.uk/downloads/theme_health/carers2000.pdf Google Scholar
Patients on Intravenous Naso-gastric and Nutrition Therapy/Novartis (2000) Survey of Patients' Satisfaction with Enteral Homecare Services Further details available at www.novartis.com or www.novartisnutrition.com or www.novartisnutrition.com Google Scholar
Singleton, N, Aye Maung, N, Cowie, A, Sparks, J, Bumpstead, R, Meltzer, H (2002) Mental Health of Carers London The Stationery Office http://www.statistics.gov.uk/downloads/theme_health/Mental_Health_of_Carers_June02.pdf Google Scholar