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GROWING UP AND MOVING ON - INSIGHTS FROM THE HEALTH CARE PROFESSIONALS AND ADOLESCENTS’ PERSPECTIVES ON THE ISSUES AND BARRIERS IN THE TRANSFER OF CARE FROM PAEDIATRICS TO ADULT CARE

Published online by Cambridge University Press:  27 July 2021

Grace Gilmore ,
Louise Kiernan ,
Eoin White  and
Bernard Hartigan
Grace Gilmore*
Affiliation:
University of Limerick
Louise Kiernan
Affiliation:
University of Limerick
Eoin White
Affiliation:
University of Limerick
Bernard Hartigan
Affiliation:
University of Limerick
*
Gilmore, Grace Hilary, University of Limerick, School of Design, Ireland, [email protected]

Abstract

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The aim of this research is to report the finding from the perspective of the Healthcare Professionals and the adolescents and young adults (AYA's) to identify issues and barriers to a successful transition for adolescents with Juvenile Idiopathic Arthritis (JIA) as they move from Paediatric Healthcare setting to Adult Healthcare.

Healthcare services that fail to adequately meet the needs of young people and their families at this time of considerable change may result in a decline in their health status that can have a negative long-term impact. Through a user-centered research design (UCD) and Universal Design, the needs of all participants and stakeholders will be assessed. This paper applies the most appropriate proposed methods for the development of a solution to mitigate against some of the issues in tangent with the needs and feedback identified during the research process.

Keywords

Juvenile Idiopathic Arthritis(JIA)Transition of careEarly design phasesUser centred designDesign practice
Type
Article
Information
Proceedings of the Design Society , Volume 1: ICED21 , August 2021 , pp. 1677 - 1686
Creative Commons
Creative Common License - CCCreative Common License - BYCreative Common License - NCCreative Common License - ND
This is an Open Access article, distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivatives licence (http://creativecommons.org/licenses/by-nc-nd/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is unaltered and is properly cited. The written permission of Cambridge University Press must be obtained for commercial re-use or in order to create a derivative work.
Copyright
The Author(s), 2021. Published by Cambridge University Press

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