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Validity and reliability of the Palliative Care Transition Measure for Caregivers (PCTM-C)

Published online by Cambridge University Press:  21 January 2018

Daniela D'Angelo ,
Chiara Mastroianni ,
Marco Artico ,
Valentina Biagioli ,
Roberto Latina ,
Michela Guarda ,
Michela Piredda  and
Maria Grazia De Marinis
Daniela D'Angelo*
Affiliation:
Research Unit Nursing Science, Campus Bio-Medico di Roma University, Rome, Italy
Chiara Mastroianni
Affiliation:
Education Unit, Antea Palliative Care Centre, Rome, Italy
Marco Artico
Affiliation:
“Tor Vergata” University, Rome, Italy
Valentina Biagioli
Affiliation:
Research Unit Nursing Science, Campus Bio-Medico di Roma University, Rome, Italy
Roberto Latina
Affiliation:
AO San Camillo-Forlanini Hospital, School of Nursing, Sapienza University, Rome, Italy
Michela Guarda
Affiliation:
“San Marco” Palliative Care Center, Latina, Italy
Michela Piredda
Affiliation:
Research Unit Nursing Science, Campus Bio-Medico di Roma University, Rome, Italy
Maria Grazia De Marinis
Affiliation:
Research Unit Nursing Science, Campus Bio-Medico di Roma University, Rome, Italy
*
Author for correspondence: Daniela D'Angelo, Research Unit Nursing Science, Campus Bio Medico di Roma University, Via Alvaro del Portillo 21 - 00128, Rome, Italy. E-mail: [email protected]
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Abstract

Objective

Patients suffering from advanced disease face different care transitions. The transition from acute to palliative care is challenging and may lead to the discontinuity of care. Family caregivers become important sources of information, as patients begin to experience difficulties in coping with emotional transition events. The Care Transition Measure was developed to evaluate care transitions as experienced by the elderly. It has never been used in palliative care. The aim of this study was to test the validity and reliability of a modified version of the Palliative Care Transition Measure, specifically the Palliative Care Transition Measure for Caregivers (PCTM-C).

Method

The study included two main phases. Phase I focused on the construction of a modified version of the Palliative Care Transition Measure through two focus groups and by computing the content validity index. Phase II focused on testing the psychometric properties of the PCTM-C on 272 family caregivers through confirmatory factor analysis.

Result

The content validity index for each of the items was higher than 0.80, whereas that for the scale was 0.95. The model tested with confirmatory factor analysis fitted the data well and confirmed that the transition measures referred to communication, integrated care and a trusting-relationship, and therefore the core dimensions of continuity according to existing conceptual models. The internal consistency was high (Cronbach's alpha = 0.94).

Significance of results

The PCTM-C proved to be a suitable measure of the quality of such transitions. It may be used in clinical practice as a continuity quality indicator and has the potential to guide interventions to enhance family caregivers’ experience of care continuity.

Keywords

Care transitionpalliative carefamily caregiverspsychometricsmeasurement
Type
Original Article
Information
Palliative & Supportive Care , Volume 17 , Issue 2 , April 2019 , pp. 202 - 207
Copyright
Copyright © Cambridge University Press 2018 

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