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Teenagers' reasoning about a parent's recent death in cancer

Published online by Cambridge University Press:  14 October 2015

Josefin Sveen ,
Ulrika Kreicbergs ,
Ulrica Melcher  and
Anette Alvariza
Josefin Sveen*
Affiliation:
Palliative Research Centre, Ersta Sköndal University College, Stockholm, Sweden
Ulrika Kreicbergs
Affiliation:
Palliative Research Centre, Ersta Sköndal University College, Stockholm, Sweden Department of Women's and Children's Health, Childhood Cancer Research Unit, Karolinska Institute, Stockholm, Sweden
Ulrica Melcher
Affiliation:
Ersta Hospice Clinic, Stockholm, Sweden
Anette Alvariza
Affiliation:
Palliative Research Centre and Department of Health Care Sciences, Ersta Sköndal University College, Stockholm, Sweden Capio Palliative Care Unit, Dalen Hospital, Stockholm, Sweden Department of Neurobiology, Care Sciences and Society, Division of Nursing, Karolinska Institutet, Stockholm, Sweden
*
Address correspondence and reprint requests to Josefin Sveen, Palliative Research Centre, Ersta Sköndal University College, P.O. Box 111 89, 100 61 Stockholm, Sweden. E-Mail: [email protected].
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Abstract

Objective:

The aim of the study was to explore how teenagers reason about a parent's recent death and about their life without that parent.

Method:

A total of 10 teenagers (aged 14–19 years, 7 boys and 3 girls) were interviewed twice, 3–12 months after their parent's death. The interviews were carried out individually and as free-ranging conversations. A content analysis with a descriptive and interpretive design was conducted.

Results:

Importantly, all teenagers appreciated participating in the interviews. Some had not previously talked in such depth about this with anyone, while others had more open communications within their families and with others. Their parent's death was the worst thing that could happen, but they still expressed the feeling that it had been a relief for both the ill parent and themselves. The death had relieved the parent from suffering and a life with severe illness. Many of the teenagers empathized with the surviving parent's grief and worried about him or her as well as the entire home situation. As a consequence, the teenagers did not show their grief, as they did not want to burden the grieving parent. Seeing the parent grieving could lead to feelings of loneliness and hopelessness and that the support they needed was not there for them. Nevertheless, some teenagers could grieve together with the surviving parent in common understanding and with openness.

Significance of Results:

A tentative conclusion is that the teenagers who were more likely to talk and grieve together with their surviving parent coped better with their situation than teenagers who did not. Parentally bereaved teenagers tend to take on a responsibility to support the grieving parent, when it is they themselves who need and should receive support.

Keywords

TeenagersCancerDyingParentPalliative careQualitative
Type
Original Articles
Information
Palliative & Supportive Care , Volume 14 , Issue 4 , August 2016 , pp. 349 - 357
Copyright
Copyright © Cambridge University Press 2015 

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References

REFERENCES

Beale, E.A., Sivesind, D. & Bruera, E. (2004). Parents dying of cancer and their children. Palliative & Supportive Care, 2(4), 387–393.Google Scholar
Bylund-Grenklo, T., Kreicbergs, U., Uggla, C., et al. (2015). Teenagers want to be told when a parent's death is near: A nationwide study of cancer-bereaved youths’ opinions and experiences. Acta Oncologica, 54(6), 944–950.Google Scholar
Charles, D.R. & Charles, M. (2006). Sibling loss and attachment style: An exploratory study. Psychoanalytic Psychology, 23, 72–79.Google Scholar
Devita-Raeburn, E. (2009). The empty room: Surviving the loss of a brother or sister at any age. New York: Scribner.Google Scholar
Edwards, B. & Clarke, V. (2004). The psychological impact of a cancer diagnosis on families: The influence of family functioning and patients’ illness characteristics on depression and anxiety. Psycho-Oncology, 13(8), 562–576.Google Scholar
Graneheim, U.H. & Lundman, B. (2004). Qualitative content analysis in nursing research: Concepts, procedures and measures to achieve trustworthiness. Nurse Education Today, 24(2), 105–112.Google Scholar
Heiney, S.P., Bryant, L.H., Walker, S., et al. (1997). Impact of parental anxiety on child emotional adjustment when a parent has cancer. Oncology Nursing Forum, 24(4), 655–661.Google Scholar
Houldin, A. & Lewis, F.M. (2006). Salvaging their normal lives: A qualitative study of patients with recently diagnosed advanced colorectal cancer. Oncology Nursing Forum, 33(4), 719–725.Google Scholar
Huizinga, G.A., Visser, A., van der Graaf, W.T., et al. (2005). Stress response symptoms in adolescent and young adult children of parents diagnosed with cancer. European Journal of Cancer, 41(2), 288–295.CrossRefGoogle Scholar
Huizinga, G.A., Visser, A., Zelders-Steyn, Y.E., et al. (2011). Psychological impact of having a parent with cancer. European Journal of Cancer, 47(Suppl. 3), S239–S246.Google Scholar
Karlsson, E., Andersson, K. & Ahlstrom, B.H. (2013). Loneliness despite the presence of others: Adolescents’ experiences of having a parent who becomes ill with cancer. European Journal of Oncology Nursing, 17(6), 697–703.Google Scholar
Kennedy, V.L. & Lloyd-Williams, M. (2009 a). How children cope when a parent has advanced cancer. Psycho-Oncology, 18(8), 886–892.Google Scholar
Kennedy, V.L. & Lloyd-Williams, M. (2009 b). Information and communication when a parent has advanced cancer. Journal of Affective Disorders, 114(1–3), 149–155.Google Scholar
Melcher, U., Sandell, R. & Henriksson, A. (2015). Maintaining everyday life in a family with a dying parent: Teenagers’ experiences of adapting to responsibility. Palliative & Supportive Care, 1–7. Epub ahead of print March 24.Google Scholar
Nelson, E., Sloper, P., Charlton, A., et al. (1994). Children who have a parent with cancer: A pilot study. Journal of Cancer Education, 9(1), 30–36.CrossRefGoogle ScholarPubMed
Patterson, P. & Rangganadhan, A. (2010). Losing a parent to cancer: A preliminary investigation into the needs of adolescents and young adults. Palliative & Supportive Care, 8(3), 255–265.Google Scholar
Pfeffer, C.R., Karus, D., Siegel, K., et al. (2000). Child survivors of parental death from cancer or suicide: Depressive and behavioral outcomes. Psycho-Oncology, 9(1), 1–10.Google Scholar
Phillips, F. (2014). Adolescents living with a parent with advanced cancer: A review of the literature. Psycho-Oncology, 23(12), 1323–1339.Google Scholar
Ribbens McCarthy, J. (2006). Resilience and bereaved children: Developing complex approaches. Grief Matters, 9, 58–61.Google Scholar
Rini, A. & Loriz, L. (2007). Anticipatory mourning in parents with a child who dies while hospitalized. Journal of Pediatric Nursing, 22(4), 272–282.Google Scholar
Sheehan, D.K. & Draucker, C.B. (2011). Interaction patterns between parents with advanced cancer and their adolescent children. Psycho-Oncology, 20(10), 1108–1115.Google Scholar
Shrier, D.K. (1980). The dying child and surviving family members. Journal of Developmental and Behavioral Pediatrics, 1(4), 152–157.Google Scholar
Siegel, K., Karus, D. & Raveis, V.H. (1996). Adjustment of children facing the death of a parent due to cancer. Journal of the American Academy of Child and Adolescent Psychiatry, 35(4), 442–450.Google Scholar
Thastum, M., Johansen, M.B., Gubba, L., et al. (2008). Coping, social relations, and communication: A qualitative exploratory study of children of parents with cancer. Clinical Child Psychology and Psychiatry, 13(1), 123–138.Google Scholar
Turner, J., Kelly, B., Swanson, C., et al. (2005). Psychosocial impact of newly diagnosed advanced breast cancer. Psycho-Oncology, 14(5), 396–407.Google Scholar