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Support for using five attributes to describe spirituality among families with a parent in hospice

Published online by Cambridge University Press:  02 November 2016

Pam Shockey Stephenson ,
Denice Sheehan  and
Ghada Shahrour
Pam Shockey Stephenson*
Affiliation:
Kent State University College of Nursing, Kent, Ohio
Denice Sheehan
Affiliation:
Kent State University College of Nursing, Kent, Ohio
Ghada Shahrour
Affiliation:
Kent State University College of Nursing, Kent, Ohio
*
Address correspondence and reprint requests to: Pam Stephenson, 113 Henderson Hall, P.O. Box 5190, Kent, Ohio 44242-0001. E-Mail: [email protected].
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Abstract

Objective:

The importance of spirituality in the dying process is well documented. However, what spirituality means in these situations is hard to discern because few people (patients, families, researchers, or caregivers) will view spirituality in the same way. The present research supports the use of a spiritual framework consisting of five common attributes (meaning, beliefs, connections, self-transcendence, and value) as a mechanism for viewing spirituality for people nearing the end of life. Using qualitative interviews from two related studies, our study aims to describe the prevalence of spirituality and its nature according to these five spiritual attributes.

Methods:

Data from two previous studies were analyzed. The first employed the methods of grounded theory to understand the strategies adolescents used to manage the impending death of a parent. Some 61 participants from 26 families were interviewed, including ill parents/patients, well parents/caregivers, and adolescents. The second study consisted of 15 interviews with the surviving parent and adolescents from 6 of these families after the death of the parent.

Results:

The original research from which these data were drawn did not seek to describe spirituality. However, spiritual themes were prevalent in the stories of many participants and included each of the five spiritual attributes.

Significance of Results:

Our findings demonstrate the prevalence of spirituality in the everyday lives of these families and supports the use of the spiritual framework according to the five common attributes to describe spirituality.

Keywords

SpiritualityMeaningBeliefsConnectionsSelf-transcendenceValue
Type
Original Articles
Information
Palliative & Supportive Care , Volume 15 , Issue 3 , June 2017 , pp. 320 - 327
Copyright
Copyright © Cambridge University Press 2016 

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References

REFERENCES

Adams, R.N., Mosher, C.E., Cannady, R.S., et al. (2014). Caregiving experiences predict changes in spiritual well-being among family caregivers of cancer patients. Psycho-Oncology, 23(10), 1178–1184. Epub ahead of print May 17. Available from https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4197094/.CrossRefGoogle ScholarPubMed
Applebaum, A.J., Kulikowski, J.R. & Breitbart, W. (2015). Meaning-centered psychotherapy for cancer caregivers (MCP–C): Rationale and overview. Palliative & Supportive Care, 13(6), 1631–1641. Epub ahead of print May 22.CrossRefGoogle ScholarPubMed
Best, M., Aldridge, L., Butow, P., et al. (2015). Assessment of spiritual suffering in the cancer context: A systematic literature review. Palliative & Supportive Care, 13(5), 1335–1361. Epub ahead of print Nov 11, 2014.Google Scholar
Breitbart, W., Rosenfeld, B., Pessin, H., et al. (2015). Meaning-centered group psychotherapy: An effective intervention for improving psychological well-being in patients with advanced cancer. Journal of Clinical Oncology, 33(7), 749–754. Epub ahead of print Feb 2. Available from http://jco.ascopubs.org/content/early/2015/01/28/JCO.2014.57.2198.full.pdf+html.Google Scholar
Garssen, B., Visser, A. & de Jager Meezenbroek, E. (2012). Responses to: “Measures assessing spirituality as more than religiosity: A methodological review of nursing and health-related literature,” by Sessanna, L., Finnell, D.S., Underhill, M., Chang, Y.P. & Peng, H.L. (2012), Journal of Advanced Nursing, 67, 1677–1694. Journal of Advanced Nursing, 68(7), 1670–1671.CrossRefGoogle Scholar
Hansen, D.M., Sheehan, D.K., Stephenson, P., et al. (2015). Parental relationships beyond the grave: Adolescents' descriptions of continued bonds. Palliative & Supportive Care, 14(4), 358–363. Epub ahead of print Oct 13.CrossRefGoogle ScholarPubMed
Hermann, C.P. (2006). Development and testing of the spiritual needs inventory for patients near the end of life. Oncology Nursing Forum, 33(4), 737–744.Google Scholar
Hsieh, H. & Shannon, S.E. (2005). Three approaches to qualitative content analysis. Qualitative Health Research, 15(9), 1277–1288.CrossRefGoogle ScholarPubMed
Kanacki, L.S., Roth, P., Georges, J.M., et al. (2012). Shared presence: Caring for a dying spouse. Journal of Hospice & Palliative Nursing, 14(6), 414–425.Google Scholar
Nixon, A. & Narayanasamy, A. (2010). The spiritual needs of neuro-oncology patients from patients' perspective. Journal of Clinical Nursing, 19(15–16), 2259–2270. Epub ahead of print Jun 7.CrossRefGoogle ScholarPubMed
Paiva, B.S.R., Carvalho, A.L., Lucchetti, G., et al. (2015). “Oh, yeah, I'm getting closer to God”: Spirituality and religiousness of family caregivers of cancer patients undergoing palliative care. Supportive Care in Cancer, 23(8), 2383–2389. Epub ahead of print Jan 16.Google Scholar
Penman, J., Oliver, M. & Harrington, A. (2013). The relational model of spiritual engagement depicted by palliative care clients and caregivers. International Journal of Nursing Practice, 19(1), 39–46.CrossRefGoogle ScholarPubMed
Powell, R.C. (2014). When death is not theoretical: The readiness of the music group “Queen” for living with Freddie Mercury's dying. North Charleston, SC: CreateSpace Independent Publishing Platform.Google Scholar
Quinn, C., Clare, L. & Woods, R.T. (2012). What predicts whether caregivers of people with dementia find meaning in their role? International Journal of Geriatric Psychiatry, 27(11), 1195–1202. Epub ahead of print Feb 15.CrossRefGoogle ScholarPubMed
Scheffold, K., Philipp, R., Engelmann, D., et al. (2015). Efficacy of a brief manualized intervention Managing Cancer and Living Meaningfully (CALM) adapted to German cancer care settings: Study protocol for a randomized controlled trial. BMC Cancer, 15(1), 592–601.Google Scholar
Sheehan, D., Draucker, C., Christ, G., et al. (2014). Telling adolescents a parent is dying. Journal of Palliative Medicine, 17(5), 512–520. Epub ahead of print Apr 18.CrossRefGoogle Scholar
Sheehan, D.K., Mayo, M.M., Christ, G.H., et al. (2015). Two worlds: Adolescents' strategies for managing life with a parent in hospice. Palliative & Supportive Care, 14(3), 177–186. Epub ahead of print Jul 1.Google Scholar
Stephenson, P. & Berry, D.M. (2015). Describing spirituality at the end of life. Western Journal of Nursing Research, 37(9), 1229–1247. Epub ahead of print May 25, 2014.Google Scholar
Stephenson, P., Draucker, C.B. & Martsolf, D.S. (2003). The experience of spirituality in the lives of hospice patients. Journal of Hospice & Palliative Nursing, 5(1), 51–58.Google Scholar
Stephenson, P., Sheehan, D., Hansen, D., et al. (2015). Uncertainties experienced by family members when one parent is dying. International Journal of Palliative Nursing, 21(10), 488–494.Google Scholar
Yen, W. & Lundeen, S. (2006). The association between meaning of caregiving, perceived social support and level of depression of Taiwanese caregivers of mentally ill patients. International Journal of Psychiatric Nursing Research, 12(1), 1378–1392.Google Scholar