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Social support needs: Discordance between home hospice nurses and former family caregivers

Published online by Cambridge University Press:  17 February 2014

Maija Reblin ,
Kristin G. Cloyes ,
Joan Carpenter ,
Patricia H. Berry ,
Margaret F. Clayton  and
Lee Ellington
Maija Reblin*
Affiliation:
University of Utah, College of Nursing, Salt Lake City, Utah
Kristin G. Cloyes
Affiliation:
University of Utah, College of Nursing, Salt Lake City, Utah
Joan Carpenter
Affiliation:
University of Utah, College of Nursing, Salt Lake City, Utah
Patricia H. Berry
Affiliation:
University of Utah, College of Nursing, Salt Lake City, Utah
Margaret F. Clayton
Affiliation:
University of Utah, College of Nursing, Salt Lake City, Utah
Lee Ellington
Affiliation:
University of Utah, College of Nursing, Salt Lake City, Utah
*
Address correspondence and reprint requests to: Maija Reblin, College of Nursing, University of Utah, 10 South 2000 East, Salt Lake City, Utah 84112. E-mail: [email protected].
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Abstract

Objective:

The two goals of our study were to (1) identify which of five types of social support (Informational, Esteem, Emotional, Tangible, Belonging) are most cited by hospice nurses and family caregivers and (2) determine the match in perception of support needs.

Method:

As part of a larger multiphase project, focus groups were conducted with former family caregivers and hospice nurses to discuss their experiences of home hospice care and to gather their opinions on the important issues involved in that care. Transcripts of focus group discussions were coded for support type (Informational, Esteem, Emotional, Tangible, Belonging) based on definitions from the literature. Nurse and caregiver data were compared to assess for potential match.

Results:

Analysis of coded data suggested that nurses see different types of support to be needed in equal measure across their caseloads, while caregivers expressed priorities for some types of support. Illustrative examples of each type of support are provided and discussed.

Significance of Results:

Because matching support provided with the type of support desired has been linked to improved physical and psychological outcomes, it is important to focus on this match in healthcare populations particularly vulnerable to psychological stress, including family caregivers of home hospice patients. This research has implications for interventions to match support provision to caregiver needs, or for education for home hospice providers to ensure that they are not only sensitive to the possibility of a broad range of needs but also to the necessity to tailor care to those needs.

Keywords

HospiceCaregiverSocial support
Type
Original Articles
Information
Palliative & Supportive Care , Volume 13 , Issue 3 , June 2015 , pp. 465 - 472
Copyright
Copyright © Cambridge University Press 2014 

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