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Psychological morbidity in family caregivers of people living with terminal cancer: Prevalence and predictors

Published online by Cambridge University Press:  26 February 2018

Neide P. Areia Open the ORCID record for Neide P. Areia [Opens in a new window] ,
Gabriela Fonseca ,
Sofia Major  and
Ana P. Relvas
Neide P. Areia*
Affiliation:
Faculty of Psychology and Education Sciences of the University of Coimbra, Coimbra, Portugal
Gabriela Fonseca
Affiliation:
Faculty of Psychology and Education Sciences of the University of Coimbra, Coimbra, Portugal Centre for Social Studies of the University of Coimbra, Coimbra, Portugal
Sofia Major
Affiliation:
Faculty of Psychology and Education Sciences of the University of Coimbra, Coimbra, Portugal Centre for Social Studies of the University of Coimbra, Coimbra, Portugal
Ana P. Relvas
Affiliation:
Faculty of Psychology and Education Sciences of the University of Coimbra, Coimbra, Portugal Centre for Social Studies of the University of Coimbra, Coimbra, Portugal
*
Author for correspondence: Neide P. Areia, Faculty of Psychology and Education Sciences, University of Coimbra, Rua do Colégio Novo, 3000-115 Coimbra, Portugal. E-mail: [email protected]
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Abstract

Objective

The issues surrounding a patient's terminal phase of cancer and the imminent death of the individual represent a major family crisis affecting all its members. The goal of this study was to assess the prevalence of psychological morbidity in family caregivers of persons with terminal cancer in terms of psychological distress, depression, anxiety, somatization, and complicated anticipatory grief, and to determine which factors may influence these responses.

Method

One hundred and twelve family caregivers of individuals with terminal cancer completed an assessment protocol comprising the Brief Symptom Inventory (depression, anxiety, somatization, and a computed score for global distress), the Marwit-Meuser Caregiver Grief Inventory - Short Form (anticipatory grief), the Family Inventory of Needs (importance and satisfaction of needs), and the Systemic Clinical Outcome Routine Evaluation -15 (family functioning). Prevalence of psychological morbidity was determined through descriptive and frequency statistics. Predictors of psychological morbidity were ascertained through structural equation modelling methods.

Result

Regarding the prevalence of psychological morbidity in family caregivers, 66.1% reported high levels of distress, 68.8% showed high risk of depression, 72.3% showed high risk of anxiety, 50.9% reported high levels of somatization, and 25.9% showed high risk of complicated anticipatory grief. It was found that the predictors of age, gender, relationship to the family member with terminal cancer, the caregiving role played (i.e., primary vs. nonprimary), the satisfaction of needs by healthcare professionals, and family functioning play an important role in terms of one's risk of developing psychological morbidity.

Significance of results

This study revealed an alarming prevalence of psychological morbidity in family caregivers of individuals living with terminal cancer, making it crucial to move forward from a patient-centered approach to a family-centrad approach to reduce the risk of family maladjustment when facing the imminent death of a family member and to prevent postdeath unadjusted responses.

Keywords

Psychological morbidityrisk factorspalliative carecancerfamily caregivers
Type
Original Article
Information
Palliative & Supportive Care , Volume 17 , Issue 3 , June 2019 , pp. 286 - 293
Copyright
Copyright © Cambridge University Press 2018 

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