Hostname: page-component-cd9895bd7-jn8rn Total loading time: 0 Render date: 2024-12-25T05:28:30.953Z Has data issue: false hasContentIssue false

Experiences from having breast cancer and being part of a support group. Notes written in diaries by women during radiotherapy

Published online by Cambridge University Press:  24 February 2012

Sofia Emilsson
Affiliation:
Mellannorrlands Hospice AB, Sundsvall, Sweden
Ann-Christine Svensk
Affiliation:
Department of Oncology, Umeå University Hospital, Umeå, Sweden
Karolina Olsson
Affiliation:
Department of Oncology, Umeå University Hospital, Umeå, Sweden
Jack Lindh*
Affiliation:
Department of Radiation Sciences, Oncology, Umeå University, Umeå, Sweden
Inger Öster
Affiliation:
Department of Nursing, Umeå University, Umeå, Sweden
*
Address correspondence and reprint requests to: Jack Lindh, Department of Radiation Sciences, Oncology, University of Umeå, S-90185 Umeå, Sweden. E-mail: [email protected]

Abstract

Objective:

The purpose of this study was to examine the experiences of breast cancer patients participating in a support group.

Method:

This study explores 28 stories of women with breast cancer as expressed through written diaries. Diaries were written during a 5-week period in parallel with radiotherapy and participation in a support group in a hospital. Answers to six open-ended evaluative questions concerning the support group were included in the majority of the written diaries. A qualitative content analysis was used to identify themes.

Results:

Three themes were constructed during the analysis: “positive group development.” “Inhibited group development.” and “the individual living with the disease.” Hopes and fears for the future in regards to illness and getting better, the value of family and friends, and feelings related to daily life with breast cancer such as fatigue and changes in body image were also expressed in the diaries.

Significance of results:

The findings suggest that the women with breast cancer found it valuable to be able to share experiences with other women in a similar situation in the context of a support group. Being part of such a group provided a space and an opportunity for reflection.

Type
Original Articles
Copyright
Copyright © Cambridge University Press 2012

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

REFERENCES

Beatty, L., Oxland, M., Koczwara, B., et al. (2008). The psychosocial concerns and needs of women recently diagnosed with breast cancer: A qualitative study of patient, nurse and volunteer perspectives. Health Expectations, 11, 331342.Google Scholar
Coreil, J., Wilke, J. & Pintado, I. (2004). Cultural models of illness in breast cancer support groups. Qualitative Health Research, 14, 905923.Google Scholar
Graneheim, U.H. & Lundman, B. (2004). Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Education Today, 24, 105112.Google Scholar
Gray, R., Fitch, M., Davies, C., et al. (1997). A qualitative study of breast cancer self–help groups. Psycho-Oncology, 6, 279289.Google Scholar
Hörnsten, Å., Sandström, H. & Lundman, B. (2004). Personal understandings of illness among people with type 2 diabetes. Journal of Advanced Nursing, 47, 174182.CrossRefGoogle ScholarPubMed
Johnson, J. & Lane, C. (1993). Role of support groups in cancer care. Supportive Care in Cancer, 1, 5256.CrossRefGoogle ScholarPubMed
Karlsson, M. (2006). Self-Help Groups. Lund: Studentlitteratur. (in Swedish).Google Scholar
Kvale, S. (1997). The Qualitative Research Interview. Lund: Studentlitteratur. (in Swedish).Google Scholar
Magnusson, E. (2004). To Create a Self-Help Group. Stockholm: Studieförbundet vuxenskolan, Hallvigs reklam AB. (in Swedish).Google Scholar
Öster, I., Magnusson, E., Egberg-Thyme, K., et al. (2007). Art therapy for women with breast cancer: The therapeutic consequences of boundary strengthening. The Arts in Psychotherapy, 34, 277288.Google Scholar
Pennebaker, J.W. & Beall, S.K. (1986). Confronting a traumatic event: toward an understanding of inhibition and disease. Journal of Abnormal Psychology, 95, 274281.Google Scholar
Polit, D.F. & Beck, C.T. (2008). Nursing Research: Generating and Assessing Evidence for Nursing Practice. Philadelphia: Wolters Kluwer/Lippincott Williams & Wilkins.Google Scholar
Power, S. & Hegarty, J. (2010). Facilitated peer support in breast cancer: A pre- and post-program evaluation of women's expectations and experiences of a facilitated peer support program. Cancer Nursing, 33, 916.Google Scholar
Samarel, N., Fawcett, J., Krippendorf, K., et al. (1998). Women's perceptions of group support and adaption to breast cancer. Journal of Advanced Nursing, 28, 12591268.Google Scholar
Smith, S., Anderson-Hanley, C., Langrock, A., et al. (2005). The effects of journaling for women with newly diagnosed breast cancer. Psycho-Oncology, 14, 10751082.CrossRefGoogle ScholarPubMed
Stang, I. & Mittelmark, M.B. (2010). Intervention to enhance empowerment in breast cancer self-help groups. Nursing Inquiry, 17, 4757.CrossRefGoogle ScholarPubMed
Stanton, A.L., Danoff-Burg, S., Sworowski, L.A., et al. (2002). Randomized, controlled trial of written emotional expression and benefit finding in breast cancer patients. Journal of Clinical Oncology, 20, 41604168.Google Scholar
Stiegelis, H., Ranchor, A. & Sanderman, R. (2004). Psychological functioning in cancer patients treated with radiotherapy. Patient Education and Counseling, 52, 131141.Google Scholar
Zabalegui, A., Sanchez, S., Sanchez, P.D., et al. (2005). Nursing and cancer support groups. Journal of Advanced Nursing, 51, 369381.Google Scholar