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Evaluation of care burden and preparedness of caregivers who provide care to palliative care patients

Published online by Cambridge University Press:  31 March 2021

Elanur Yılmaz Karabulutlu ,
Gülcan Bahçecioğlu Turan Open the ORCID record for Gülcan Bahçecioğlu Turan [Opens in a new window]  and
Safiye Yanmış Open the ORCID record for Safiye Yanmış [Opens in a new window]
Elanur Yılmaz Karabulutlu
Affiliation:
Department of Nursing, Faculty of Health Sciences, Erzurum Technical University, Erzurum, Turkey
Gülcan Bahçecioğlu Turan*
Affiliation:
Department of Nursing, Faculty of Health Sciences, Fırat University, Elazığ, Turkey
Safiye Yanmış
Affiliation:
Department of Nursing, Faculty of Health Sciences, Erzincan Binali Yildirim University, Erzincan, Turkey
*
Author for correspondence: Gülcan Bahçecioğlu Turan, Department of Nursing, Faculty of Health Sciences, Fırat University, Elazığ, Turkey. E-mail: [email protected]
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Abstract

Objective

Caregivers have a great role in palliative care. Considering the difficult process of palliative care, the caregiver undertakes an extra burden with the responsibility of the patient. This study was carried out to evaluate the care burden and preparedness of caregivers who provide care for palliative care patients.

Method

This study was conducted in the palliative care unit of a state hospital in Turkey between January and May 2019. No sample was selected in the study, and the study was carried out with individuals who were hospitalized in the palliative care unit and who volunteered to participate in the study between the specified dates. The data were collected with Patient Relative Questionnaire Form, Burden Interview, and Preparedness for Caregiving Scale.

Results

The average Burden Interview score was found as 33.6, SD 13.03 in the study. Patient relatives perceived the patients they cared for as a burden at moderate levels. The Preparedness for Caregiving score average was found as 18.55, SD 6.83. It was found that patient relatives were moderately prepared to undertake the role of caregiver. It was found that care burden decreased as preparedness for caregiving increased and burden increased as preparedness for caregiving decreased (p = 0.001).

Significance of results

As a result of the study, it was found that caregivers of palliative patients had the moderate levels of care burden and preparedness for caregiving. It was found that as the preparedness levels of caregivers increased, their burdens decreased. Accordingly, it is important that nurses will plan nursing interventions by considering the factors that affect the care burden and preparedness of caregivers.

Keywords

Care burdenPalliative carePreparedness for caregiving
Type
Original Article
Information
Palliative & Supportive Care , Volume 20 , Issue 1 , February 2022 , pp. 30 - 37
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Copyright
Copyright © The Author(s), 2021. Published by Cambridge University Press

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