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Clinical perspective: Linking psychosocial care to the disease continuum in patients with multiple myeloma*

Published online by Cambridge University Press:  24 June 2014

James Zabora ,
Joanne Buzaglo ,
Vicki Kennedy ,
Tiffany Richards ,
Tara Schapmire ,
Brad Zebrack  and
Irene M. Ghobrial
James Zabora*
Affiliation:
Life with Cancer, Inova Health System, Fairfax, Virginia
Joanne Buzaglo
Affiliation:
Cancer Support Community, Washington, DC
Vicki Kennedy
Affiliation:
Cancer Support Community, Washington, DC
Tiffany Richards
Affiliation:
MD Anderson Cancer Center, Houston, Texas
Tara Schapmire
Affiliation:
University of Louisville School of Medicine, Louisville, Kentucky
Brad Zebrack
Affiliation:
University of Michigan School of Social Work, Ann Arbor, Michigan
Irene M. Ghobrial
Affiliation:
Dana–Farber Cancer Institute, Harvard Medical School, Boston, Massachusetts
*
Address correspondence and reprint requests to: James Zabora, Life with Cancer, Inova Health System, 8110 Gatehouse Road, Fairfax, Virginia. E-mail: [email protected]
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Abstract

Objective:

A model of psychosocial care specific for patients with multiple myeloma and their caregivers has not yet been proposed. We sought to develop a model of care that considers the specific profile of this disease.

Method:

The authors, representing a multidisciplinary care team, met in December of 2012 to identify a model of psychosocial care for patients with multiple myeloma and their caregivers. This model was determined by consensus during the meeting and via total agreement following the meeting. The meeting was sponsored by Onyx Pharmaceuticals.

Results:

The need for targeted psychosocial care for the multiple myeloma patient and caregiver throughout the disease process is essential to ensure quality of life and optimal treatment outcomes. We propose herein the first known model of care for the treatment of multiple myeloma that engages both the patient and their caregivers.

Significance of results:

Innovative partnerships between psychosocial providers and other entities such as pharmaceutical companies can maximize resources for comprehensive program development. This manuscript proposes a model of care that promotes active engagement in therapies for multiple myeloma while engaging the individual patient and their family caregivers. This treatment approach must be evidence based in terms of distress screening tools, comprehensive psychosocial assessments, and, most importantly, in the interventions and measurements of response that clinicians apply to this population.

Keywords

Psychosocial careDistressMultiple myelomaStandard of care
Type
Original Articles
Information
Palliative & Supportive Care , Volume 13 , Issue 4 , August 2015 , pp. 829 - 838
Copyright
Copyright © Cambridge University Press 2014 

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Footnotes

*

This paper was developed in part following a roundtable meeting of the authors in Dallas, Texas on December 1, 2012.

References

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