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Asking questions of a palliative care nurse practitioner on a pancreatic cancer website

Published online by Cambridge University Press:  09 June 2014

Marian S. Grant ,
Debra L. Wiegand  and
Sydney M. Dy
Marian S. Grant*
Affiliation:
University of Maryland School of Nursing, Baltimore, Maryland
Debra L. Wiegand
Affiliation:
University of Maryland School of Nursing, Baltimore, Maryland
Sydney M. Dy
Affiliation:
Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland
*
Address correspondence and reprint requests to: Marian S. Grant, University of Maryland School of Nursing, 655 West Lombard Street. Baltimore, Maryland 20201. E-mail: [email protected]
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Abstract

Objective:

Increasing evidence demonstrates the benefits of online cancer interventions but very little about the needs of those with pancreatic cancer or interaction with online providers. Our study was done to (1) see how many people would visit a webpage where they could interact with a palliative care nurse practitioner (PCNP), (2) see how many would ask the PCNP questions, (3) determine the type of questions, and (4) obtain feedback regarding the usefulness of the webpage.

Method:

Mixed-methods descriptive design.

Results:

There were 2174 visits to the webpage, and a total of 84 participants sent 110 questions/comments. Some 28 (33%) were people worried that they might have pancreatic cancer. Most questions (59, 53%) had to do with palliative care issues, with the largest subgroup (26, 23%) involving psychological concerns. A total of 39 completed an online survey and were relatives (20, 52%), or patients (17, 44%). They rated the webpage at 3.3/4 as being helpful at learning about the physical symptoms/treatments of pancreatic cancer, at 3.1/4 for learning about emotional issues, at 3/4 for learning about palliative care, at 2.8/4 for learning about hospice, and at 3.3/4 for reading other people's questions.

Significance of results:

The PCNP webpage was a helpful resource. Most asking questions were worried about having or getting pancreatic cancer. More research is needed into online providers, interventions, and conducting research online.

Keywords

InternetPancreatic cancerPalliative care
Type
Original Articles
Information
Palliative & Supportive Care , Volume 13 , Issue 3 , June 2015 , pp. 787 - 793
Copyright
Copyright © Cambridge University Press 2014 

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References

REFERENCES

American Cancer Society (2014). Cancer facts and figures. Atlanta, ACS. Available at http://www.cancer.org/research/cancerfactsstatistics/cancerfactsfigures2014/index.Google Scholar
Back, A.L., Arnold, R.M., Baile, W.F., et al. (2009). Faculty development to change the paradigm of communication skills teaching in oncology. Journal of Clinical Oncology, 27(7), 1137–1141.Google Scholar
Chen, A.T. (2012). Exploring online support spaces: Using cluster analysis to examine breast cancer, diabetes and fibromyalgia support groups. Patient Education and Counseling, 87(2), 250–257.Google Scholar
Cho, J.S., Roter, K., Guallar, D., et al. (2011). Needs of women with breast cancer as communicated to physicians on the internet. Supportive Care in Cancer, 19(1), 113–121.Google Scholar
Dahlin, C. (2013). Clinical practice guidelines for quality palliative care, 3rd ed. Washington, DC: The National Consensus Project for Quality Palliative Care. Available at http://www.nationalconsensusproject.org/Guideline.pdf.Google Scholar
David, N., Schlenker, P., Prudlo, U., et al. (2013). Internet-based program for coping with cancer: A randomized controlled trial with hematologic cancer patients. Psycho-Oncology, 22(5), 1064–1072.Google Scholar
Davis, M. (2005). Integrating palliative medicine into an oncology practice. The American Journal of Hospice & Palliative Medicine, 22(6), 447–456.Google Scholar
Fazal, S. & Saif, M.W. (2007). Supportive and palliative care of pancreatic cancer. Journal of the Pancreas, 8(2), 240–253.Google Scholar
Fox, S. (2010). Mobile health 2010, 12/13/2011 ed. Washington, DC: Pew Internet. Available at http://www.pewinternet.org/2010/10/19/mobile-health-2010/.Google Scholar
Fox, S. (2011). Cancer 2.0: A summary of recent research. Washington, DC: Pew Internet. Available at http://www.pewinternet.org/2010/12/13/cancer-2-0/.Google Scholar
Fox, S. & Duggan, M. (2013). Health online 2013. Washington, DC: Pew Research Center's Internet & American Life Project. Available at http://www.pewinternet.org/2013/01/15/health-online-2013/.Google Scholar
Grant, M. & Wiegand, D. (2013). Conversations with strangers: The needs of those accessing a palliative care nurse practitioner on a pancreatic cancer web site. Journal of Hospice and Palliative Nursing, 15(5), 278–285.Google Scholar
Grant, M.S. & Wiegand, D. L. (2011). Palliative care online: A pilot study on a pancreatic cancer website. Journal of Palliative Medicine, 14(7), 846–851.Google Scholar
Hong, Y., Pena-Purcell, N.C. & Ory, M.G. (2011). Outcomes of online support and resources for cancer survivors: A systematic literature review. Patient Education and Counseling, 86(3), 288–296.Google Scholar
Hou, J. & Shim, M. (2010). The role of provider–patient communication and trust in online sources in internet use for health-related activities. Journal of Health Communication, 15(Suppl. 3), 186–199.Google Scholar
Im, E.O. (2011). Online support of patients and survivors of cancer. Seminars in Oncology Nursing, 27(3), 229–236.Google Scholar
Lazenby, J.M. & Saif, M.W. (2010). Palliative care from the beginning of treatment for advanced pancreatic cancer: Highlights from the 2010 ASCO Gastrointestinal Cancers Symposium, Orlando, Florida, January 22–24, 2010. JOP: Journal of the Pancreas, 11(2), 154–157.Google Scholar
Lee, S.Y. & Hawkins, R. (2010). Why do patients seek an alternative channel? The effects of unmet needs on patients' health-related internet use. Journal of Health Communication, 15(2), 152–166.Google Scholar
Leykin, Y., Thekdi, S.M., Shumay, D.M., et al. (2012). Internet interventions for improving psychological well-being in psycho-oncology: Review and recommendations. Psycho-Oncology, 21(9), 1016–1025.Google Scholar
Nahm, E.S., Resnick, B. & Gaines, J. (2004). Testing the reliability and validity of computer-mediated social support measures among older adults: A pilot study. Computers, Informatics, Nursing, 22(4), 211–219.Google Scholar
Sheffield, K.M., Boyd, C.A., Benarroch-Gampel, J., et al. (2011). End-of-life care in Medicare beneficiaries dying with pancreatic cancer. Cancer, 117(21), 5003–5012.Google Scholar
Smith, T.J., Temin, S., Alesi, E.R., et al. (2012). American Society of Clinical Oncology provisional clinical opinion: The integration of palliative care into standard oncology care. Journal of Clinical Oncology, 30(8), 880–887.Google Scholar
Torgerson, S. & Wiebe, L.A. (2013). Supportive care of the patient with advanced pancreatic cancer. Oncology, 27(3), 183–190.Google Scholar
Tustin, N. (2010). The role of patient satisfaction in online health information seeking. Journal of Health Communication, 15(1), 3–17.Google Scholar
Ventura, F., Ohlen, J. & Koinberg, I. (2013). An integrative review of supportive e-health programs in cancer care. European Journal of Oncology Nursing, 17(4), 498–507.Google Scholar