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An interpretative phenomenological analysis exploring the lived experience of individuals dying from terminal cancer in Ireland

Published online by Cambridge University Press:  08 May 2014

Kara McTiernan  and
Michael O'Connell
Kara McTiernan*
Affiliation:
School of Psychology, University College Dublin, Dublin, Ireland
Michael O'Connell
Affiliation:
School of Psychology, University College Dublin, Dublin, Ireland
*
Address correspondence and reprint requests to: Kara McTiernan, School of Psychology, Newman Building, University College Dublin, Belfield, Dublin 4, Ireland. E-mail: [email protected]
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Abstract

Objective:

The experience of living with dying has attracted limited research. We utilized interpretive phenomenological analysis to explore the lived experience of individuals with terminal cancer receiving palliative care in Ireland.

Method:

Participants were purposely selected from public interviews that had been conducted between 2006 and 2011. The study included the accounts of eight participants (N = 8; six females and two males) with a diagnosis of terminal cancer. Participant ages ranged from 36 to 68 years.

Results:

Three master themes emerged from the analysis: the personal impact of diagnosis, the struggle in adjusting to change, and dying in context. The results revealed that participants were still living while simultaneously dying. Interestingly, participants did not ascribe new meaning to their lives. The terminal illness was understood within the framework of the life that had existed before diagnosis. They strove to maintain their normal routines and continued to undertake meaningful activities. Management of unfinished business and creation of a legacy were salient tasks. Social withdrawal was not present; rather, participants engaged in emotional labor to sustain valued roles. However, we found that within the public domain there is a paucity of education and discourse supporting individuals at the end of life. The hospice was noted as an important external resource. Each participant experienced a unique dying process that reflected their context.

Significance of Results:

Healthcare professionals need to recognize the subjectivity of the dying process. Dying individuals require support and options to maintain their personhood.

Keywords

Living/dyingTerminal cancerIrelandInterpretive phenomenological analysis
Type
Original Articles
Information
Palliative & Supportive Care , Volume 13 , Issue 3 , June 2015 , pp. 641 - 651
Copyright
Copyright © Cambridge University Press 2014 

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