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Validity and reliability of the Palliative Care Transition Measure for Caregivers (PCTM-C)

Published online by Cambridge University Press:  21 January 2018

Daniela D'Angelo ,
Chiara Mastroianni ,
Marco Artico ,
Valentina Biagioli ,
Roberto Latina ,
Michela Guarda ,
Michela Piredda  and
Maria Grazia De Marinis
Daniela D'Angelo*
Affiliation:
Research Unit Nursing Science, Campus Bio-Medico di Roma University, Rome, Italy
Chiara Mastroianni
Affiliation:
Education Unit, Antea Palliative Care Centre, Rome, Italy
Marco Artico
Affiliation:
“Tor Vergata” University, Rome, Italy
Valentina Biagioli
Affiliation:
Research Unit Nursing Science, Campus Bio-Medico di Roma University, Rome, Italy
Roberto Latina
Affiliation:
AO San Camillo-Forlanini Hospital, School of Nursing, Sapienza University, Rome, Italy
Michela Guarda
Affiliation:
“San Marco” Palliative Care Center, Latina, Italy
Michela Piredda
Affiliation:
Research Unit Nursing Science, Campus Bio-Medico di Roma University, Rome, Italy
Maria Grazia De Marinis
Affiliation:
Research Unit Nursing Science, Campus Bio-Medico di Roma University, Rome, Italy
*
Author for correspondence: Daniela D'Angelo, Research Unit Nursing Science, Campus Bio Medico di Roma University, Via Alvaro del Portillo 21 - 00128, Rome, Italy. E-mail: [email protected]
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Abstract

Objective

Patients suffering from advanced disease face different care transitions. The transition from acute to palliative care is challenging and may lead to the discontinuity of care. Family caregivers become important sources of information, as patients begin to experience difficulties in coping with emotional transition events. The Care Transition Measure was developed to evaluate care transitions as experienced by the elderly. It has never been used in palliative care. The aim of this study was to test the validity and reliability of a modified version of the Palliative Care Transition Measure, specifically the Palliative Care Transition Measure for Caregivers (PCTM-C).

Method

The study included two main phases. Phase I focused on the construction of a modified version of the Palliative Care Transition Measure through two focus groups and by computing the content validity index. Phase II focused on testing the psychometric properties of the PCTM-C on 272 family caregivers through confirmatory factor analysis.

Result

The content validity index for each of the items was higher than 0.80, whereas that for the scale was 0.95. The model tested with confirmatory factor analysis fitted the data well and confirmed that the transition measures referred to communication, integrated care and a trusting-relationship, and therefore the core dimensions of continuity according to existing conceptual models. The internal consistency was high (Cronbach's alpha = 0.94).

Significance of results

The PCTM-C proved to be a suitable measure of the quality of such transitions. It may be used in clinical practice as a continuity quality indicator and has the potential to guide interventions to enhance family caregivers’ experience of care continuity.

Keywords

Care transitionpalliative carefamily caregiverspsychometricsmeasurement
Type
Original Article
Information
Palliative & Supportive Care , Volume 17 , Issue 2 , April 2019 , pp. 202 - 207
Copyright
Copyright © Cambridge University Press 2018 

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References

Back, AL, Young, JP, McCown, E, et al. (2009) Abandonment at the end of life from patient, caregiver, nurse, and physician perspectives: Loss of continuity and lack of closure. Archives of Internal Medicine 169(5), 474–479.Google Scholar
Bakitas, M, Bishop, MF, Caron, P, et al. (2010) Developing successful models of cancer palliative care services. Seminars in Oncology Nursing 26(4), 266–284.Google Scholar
Barbaranelli, C, Lee, CS, Vellone, E, et al. (2015) The problem with Cronbach's Alpha: comment on Sijtsma and van der Ark (2015). Nursing Research 64(2), 140–145.Google Scholar
Broom, A, Kirby, E, Good, P, et al. (2013) The art of letting go: Referral to palliative care and its discontents. Social Science & Medicine 78, 9–16.Google Scholar
Breton, M, Haggerty, J, Roberge, D, et al. (2012) Management continuity in local health networks. International Journal of Integrated Care 12, e14.Google Scholar
Broom, A, Kirby, E, Good, P, et al. (2015) Negotiating futility, managing emotions: Nursing the transition to palliative care. Quality Health Research 25(3), 299–309.Google Scholar
Casarett, DA, Pickard, FA, Bailey, C, et al. (2008) Do palliative consultations improve patient outcomes? Journal of the American Geriatrics Society 56(4), 593–599.Google Scholar
Coleman, EA (2003) Falling through the cracks: Challenges and opportunities for improving transitional care for persons with continuous complex care needs. Journal of the American Geriatrics Society 51(4), 549–555.Google Scholar
Coleman, EA and Boult, C (2003). Improving the quality of transitional care for persons with complex care needs. Journal of the American Geriatrics Society 51(4), 556–557.Google Scholar
Coleman, EA, Ground, KL, and Maul, A (2015) The Family Caregiver Activation in Transitions (FCAT) Tool: A new measure of family caregiver self-efficacy. Joint Commission Journal on Quality and Patient Safety 41(11), 502–507.Google Scholar
Coleman, EA, Mahoney, E, and Parry, C (2005) Assessing the quality of preparation for posthospital care from the patient's perspective: The care transitions measure. Medical Care 43(3), 246–255.Google Scholar
Coleman, EA and Roman, SP (2015) Family caregivers’ experiences during transitions out of hospital. Journal of Health Care Quality 37(1), 12–21.Google Scholar
Coleman, EA, Smith, JD, Frank, JC, et al. (2002) Development and testing of a measure designed to assess the quality of care transitions. International Journal of Integrated Care 2(12), e02.Google Scholar
Corrales-Nevado, D, Alonso-Babarro, A, and Rodriguez-Lozano, MA (2012) Continuity of care, innovation and redefinition of professional roles in the healthcare of chronically and terminally ill patients. Gaceta Sanitaria 26(S1), 63–68.Google Scholar
D'Angelo, D, Mastroianni, C, Hammer, JM, et al. (2015) Continuity of care during end of life: An evolutionary concept analysis. International Journal of Nursing Knowledge 26(2), 80–89.Google Scholar
Duggleby, W and Berry, P (2005) Transitions and shifting goals of care for palliative patients and their families. Clinical Journal of Oncology Nursing 9(4), 425–428.Google Scholar
Gardiner, C, Ingleton, C, Gott, M, et al. (2015) Exploring the transition from curative care to palliative care: A systematic review of the literature. BMJ Supportive & Palliative Care 5(4), 335–342.Google Scholar
Gulliford, M, Naithani, S, and Morgan, M (2006) What is ‘continuity of care’? Journal of Health Service Research & Policy 11(4), 248–250.Google Scholar
Haggerty, JL, Reid, RJ, Freeman, GK, et al. (2003) Continuity of care: A multidisciplinary review. British Medical Journal 327(7425), 1219–1221.Google Scholar
Haggerty, JL, Roberge, D, Freeman, GK, et al. (2012) Validation of a generic measure of continuity of care: When patients encounter several clinicians. Annals of Family Medicine 10(5), 443–451.Google Scholar
Hamano, JT, Morita, S, Fukui, Y, et al. (2017) Trust in physicians, continuity and coordination of care, and quality of death in patients with advanced cancer. Journal of Palliative Medicine 20(11), 1252–1259.Google Scholar
Hanson, LC, Scheunemann, LP, Zimmerman, S, et al. (2010) The PEACE project review of clinical instruments for hospice and palliative care. Journal of Palliative Medicine 13(10), 1253–1260.Google Scholar
Horlait, M, Chambaere, K, Pardon, K, et al. (2016) What are the barriers faced by medical oncologists in initiating discussion of palliative care? A qualitative study in Flanders, Belgium. Supportive Care in Cancer 24(9), 3873–3881.Google Scholar
Hudson, PL, Trauer, T, Graham, S, et al. (2010) A systematic review of instruments related to family caregivers of palliative care patients. Palliative Medicine 24(7), 656–668.Google Scholar
Kaur, J and Mohanti, BK (2011) Transition from curative to palliative care in cancer. Indian Journal of Palliative Care 17(1), 1–5.Google Scholar
Kirby, E, Broom, A, and Good, P (2014) The role and significance of nurses in managing transitions to palliative care: A qualitative study. British Medical Journal 4(9), e006026.Google Scholar
Krishnasamy, M, Wells, M, and Wilkie, E (2007) Patients and carer experiences of care provision after a diagnosis of lung cancer in Scotland. Supportive Care in Cancer 15(3), 327–332.Google Scholar
Lynn, MR (1986) Determination and quantification of content validity. Nursing Research 35, 382–385.Google Scholar
Lofmark, R, Nilstun, T, and Bolmsjo, IA (2005) From cure to palliation: Staff communication, documentation, and transfer of patient. Journal of Palliative Medicine 8(6), 1105–1109.Google Scholar
Lofmark, R, Nilstun, T, and Bolmsjo, IA (2007) From cure to palliation: Concept, decision and acceptance. Journal of Medical Ethics 33(12), 685–688.Google Scholar
Marsella, A (2009) Exploring the literature surrounding the transition into palliative care: A scoping review. International Journal of Palliative Nursing 15(4), 186–189.Google Scholar
Medigovich, K, Porock, D, Kristjanson, LJ, et al. (1999) Predictors of family satisfaction with an Australian palliative home care service: A test of discrepancy theory. Journal of Palliative Care 15(4), 48–56.Google Scholar
Ministry of Health (2015) Rapporto al Parlamento sullo stato di attuazione della Legge n. 38 del 15 marzo 2010.Google Scholar
Muthén, LK and Muthén, BO (1998–2012). Mplus User's Guide (7th ed). Los Angeles: Muthén & Muthén.Google Scholar
Payne, S and Radbruch, L (2009) White Paper on standards and norms for hospice and palliative care in Europe: Part 1. European Journal of Palliative Care 16(6), 278–289.Google Scholar
Peruselli, C, Paci, E, Franceschi, P, et al. (1997) Outcome evaluation in a home palliative care service. Journal of Pain and Symptom Management 13(3), 158–165.Google Scholar
Robinson, J, Gott, M, Gardiner, C, et al. (2016) The ‘problematisation’ of palliative care in hospital: An exploratory review of international palliative care policy in five countries. BioMed Central Palliative Care 15(64).Google Scholar
Rocio, L, Rojas, EA, Gonzalez, MC, et al. (2017) Experiences of patient-family caregiver dyads in palliative care during hospital-to-home transition process. International Journal of Palliative Nursing 23(7), 332–339.Google Scholar
Ryndes, T and Emanuel, L (2003) Is discontinuity in palliative care a culpable act of omission? The Hastings Center Report S45–S47.Google Scholar
Schenck, AP, Rokoske, FS, Durham, D, et al. (2014) Quality measures for hospice and palliative care: Piloting the PEACE measures. Journal of Palliative Medicine 17(7), 769–775.Google Scholar
Schofield, P, Carey, M, Love, A, et al. (2006) ‘Would you like to talk about your future treatment options’? Discussing the transition from curative cancer treatment to palliative care. Palliative Medicine 20, 397–406.Google Scholar
Schumacher, KL and Meleis, AI (1994). Transitions: A central concept in nursing. Image--the Journal of Nursing Scholarship 26(2), 119–127.Google Scholar
Sutherland, N (2009). The meaning of being in transition to end-of-life care for female partners of spouses with cancer. Palliative & Supportive Care 7(4), 423–433.Google Scholar
World Health Organization (2017) Definition of palliative care. Available from www.who.int/cancer/palliative/definition/en.Google Scholar
Wong, MS and Chan, SW (2007) The experiences of Chinese family members of terminally ill patients - a qualitative study. Journal of Clinical Nursing 16(12), 2357–2364.Google Scholar