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Validation of the Quality of Dying and Death Questionnaire among the Chinese populations

Published online by Cambridge University Press:  31 August 2021

Ying Wang ,
Mandong Liu Open the ORCID record for Mandong Liu [Opens in a new window] ,
Wallace Chi Ho Chan Open the ORCID record for Wallace Chi Ho Chan [Opens in a new window] ,
Jing Zhou  and
Iris Chi
Ying Wang
Affiliation:
School of Philosophy and Sociology, Lanzhou University, Lanzhou, China
Mandong Liu*
Affiliation:
Suzanne Dworak-Peck School of Social Work, University of Southern California, Los Angeles, CA Edward R. Roybal Institute on Aging, University of Southern California, Los Angeles, CA
Wallace Chi Ho Chan
Affiliation:
Department of Social Work, Chinese University of Hong Kong, New Territories, Hong Kong
Jing Zhou
Affiliation:
School of Law, Shanghai Lixin University of Accounting and Finance, Shanghai, China
Iris Chi
Affiliation:
Suzanne Dworak-Peck School of Social Work, University of Southern California, Los Angeles, CA Edward R. Roybal Institute on Aging, University of Southern California, Los Angeles, CA
*
Author for correspondence: Mandong Liu, USC Suzanne Dworak-Peck School of Social Work, 669 West 34th Street MRF 214, Los Angeles, CA 90089, USA. E-mail: [email protected]
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Abstract

Objective

This study reports the evaluation of the original 31-item Quality of Dying and Death Questionnaire (QODD) using a sample of caregivers of recently deceased older adults in China, and the validation of a shortened version (QODD-C) derived from the original scale.

Methods

The translation was performed using a forward and back method. The full scale was tested with 212 caregivers of decedents in four regions of China. Confirmatory factor analysis tested the model fit between the full Chinese version and the original conceptual model and generated the QODD-C. The psychometric analysis was performed to evaluate the QODD-C's internal consistency, content validity, construct validity, and discriminant validity.

Results

A five-domain, 18-item QODD-C was identified with excellent internal consistency reliability (Cronbach's α = 0.933; split-half Pearson's value = 0.855). The QODD-C total score was significantly associated with constructs related to five domains. The caregiver's relationship with the decedent, the decedent's age at death, death reason, and death place was significantly associated with the QODD-C total score.

Significance of results

The QODD-C is a valid and reliable instrument for assessing the quality of dying and death among the Chinese populations.

Keywords

Assessment toolCFAPsychometric propertiesReliabilityValidity
Type
Original Article
Information
Palliative & Supportive Care , Volume 19 , Issue 6 , December 2021 , pp. 694 - 701
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Copyright
Copyright © The Author(s), 2021. Published by Cambridge University Press

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References

Braun, M, Hasson-ohayon, I, Hales, S, et al. (2014) Quality of dying and death with cancer in Israel. Supportive Care in Cancer 22(7), 1973–1980. doi:10.1007/s00520-014-2163-xCrossRefGoogle ScholarPubMed
Broom, A and Kirby, E (2013) The end of life and the family: Hospice patients’ views on dying as relational. Sociology of Health & Illness 35(4), 499–513. doi:10.1111/j.1467-9566.2012.01497.xCrossRefGoogle Scholar
Cho, JY, Lee, J, Lee, S-M, et al. (2018) Transcultural adaptation and validation of quality of dying and death questionnaire in medical intensive care units in South Korea. Acute and Critical Care 33(2), 95–101. doi:10.4266/acc.2017.00612CrossRefGoogle ScholarPubMed
Clark, K, Cain, J, Campbell, L, et al. (2014) Caring for people dying in acute hospitals: A mixed-methods study to examine relative's perceptions of care. Palliative and Supportive Care 13(02), 335–343. doi:10.1017/S1478951514000066CrossRefGoogle ScholarPubMed
Cohen, SR, Mount, BM, Strobel, MG, et al. (1995) The McGill quality of life questionnaire: A measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability. Palliative Medicine 9(3), 207–219.CrossRefGoogle ScholarPubMed
Curtis, JR, Patrick, DL, Engelberg, RA, et al. (2002) A measure of the quality of dying and death: Initial validation using after-death interviews with family members. Journal of Pain and Symptom Management 24(1), 17–31.CrossRefGoogle ScholarPubMed
Downey, L, Curtis, JR, Lafferty, WE, et al. (2010) The quality of dying and death questionnaire (QODD): Empirical domains and theoretical perspectives. Journal of Pain and Symptom Management 39(1), 9–22. doi:10.1016/j.jpainsymman.2009.05.012CrossRefGoogle ScholarPubMed
Glavan, BJ, Engelberg, RA, Downey, L, et al. (2008) Using the medical record to evaluate the quality of end-of-life care in the intensive care unit. Critical Care Medicine 36(4), 1138–1146. doi:10.1097/CCM.0b013e318168f301CrossRefGoogle Scholar
Hales, S, Zimmermann, C and Rodin, G (2010) The quality of dying and death: A systematic review of measures. Palliative Medicine 24(2), 127–144. doi:10.1177/0269216309351783CrossRefGoogle ScholarPubMed
Hales, S, Gagliese, L, Nissim, R, et al. (2012) Understanding bereaved caregiver evaluations of the quality of dying and death: An application of cognitive interviewing methodology to the quality of dying and death questionnaire. Journal of Pain and Symptom Management 43(2), 195–204. doi:10.1016/j.jpainsymman.2011.03.018CrossRefGoogle Scholar
Hales, S, Chiu, A, Husain, A, et al. (2014) The quality of dying and death in cancer and its relationship to palliative care and place of death. Journal of Pain and Symptom Management 48(5), 839–851. doi:10.1016/j.jpainsymman.2013.12.240CrossRefGoogle ScholarPubMed
Han, X, Mei, X, Zhang, J, et al. (2021) Validation of the Chinese version of the quality of dying and death questionnaire for family members of ICU patients. Journal of Pain and Symptom Management (Online ahead of print). doi:10.1016/j.jpainsymman.2020.12.022CrossRefGoogle ScholarPubMed
Heckel, M, Bussmann, S, Stiel, S, et al. (2015) Validation of the German version of the quality of dying and death questionnaire for informal caregivers (QODD-D-Ang). Journal of Pain and Symptom Management 50(3), 402–413. doi:10.1016/j.jpainsymman.2015.03.020CrossRefGoogle Scholar
Heckel, M, Bussmann, S, Stiel, S, et al. (2016) Validation of the German version of the quality of dying and death questionnaire for health professionals. American Journal of Hospice & Palliative Medicine 33(8), 760–769. doi:10.1177/1049909115606075CrossRefGoogle ScholarPubMed
Hu, Q, Kong, Q and Chen, J (2019) Hezhou changshou lishi wenhua shuolue [A brief introduction to the history and culture of hezhou longevity]. Journal of Hezhou University 35(4), 22–29.Google Scholar
Huang, X (2019) Jiabenwei yingxiang xia de zhongguo yanglao wenhua: Neihan, kunjing ji duice [Chinese culture of caring for older adults under the influence of familism: Connotation, dilemma, and strategies]. Labor Security World 23, 19–20. Available at: http://www.cnki.com.cn/Article/CJFDTotal-LDBJ201923015.htm.Google Scholar
Kim, H, Price, RA, Bunker, JN, et al. (2020) Racial differences in end-of-life care 1uality between asian Americans and non-hispanic whites in San Francisco Bay area. Journal of Palliative Medicine (Online ahead of print). doi:10.1089/jpm.2020.0627Google ScholarPubMed
Kupeli, N, Bridget, C, Tamura-Rose, G, et al. (2019) Tools measuring quality of death, dying, and care, completed after death: Systematic review of psychometric properties. The Patient: Patient-Centered Outcomes Research 12(2), 183–197. doi:10.1007/s40271-018-0328-2CrossRefGoogle ScholarPubMed
Lambotte, D, De Dondera, L, Van Regenmortela, S, et al. (2018) Frailty differences in older adults’ use of informal and formal care. Archives of Gerontology and Geriatrics 79, 69–77. doi:10.1016/j.archger.2018.05.018CrossRefGoogle ScholarPubMed
Lee, E, Sussman, T, Kaasalainen, S, et al. (2020) The relationship between caregivers’ perceptions of end-of-life care in long-term care and a good resident death. Palliative & Supportive Care 18(6), 683–690. doi:10.1017/S1478951520000292CrossRefGoogle Scholar
Long, X and Xiao, F (2017) “Renao” de baixishi: Fuhe de yishi guodu he shenti biaoda [Bustling weddings and funerals: Compound ritual transition and body expression]. Social Sciences 34(1), 21–29. doi:10.13727/j.cnki.53-1191/c.2017.01.004Google Scholar
Mah, K, Hales, S, Weerakkody, I, et al. (2019a) Measuring the quality of dying and death in advanced cancer: Item characteristics and factor structure of the quality of dying and death questionnaire. Palliative Medicine 33(3), 369–380. doi:10.1177/0269216318819607CrossRefGoogle Scholar
Mah, K, Powell, RA, Malfitano, C, et al. (2019b) Evaluation of the quality of dying and death questionnaire in Kenya. Journal of Global Oncology 5, 1–16. doi:10.1200/JGO.18.00257CrossRefGoogle Scholar
Mokkink, LB, Terwee, CB, Patrick, DL, et al. (2010) The COSMIN checklist for assessing the methodological quality of studies on measurement properties of health status measurement instruments: An international delphi study. Quality of Life Research 19, 539–549. doi:10.1007/s11136-010-9606-8CrossRefGoogle Scholar
Patrick, DL, Engelberg, RA and Curtis, JR (2001) Evaluating the quality of dying and death. Journal of Pain and Symptom Management 22(3), 717–726. doi:10.1016/S0885-3924(01)00333-5CrossRefGoogle ScholarPubMed
Pérez-Cruz, PE, Pérez, OP, Bonati, P, et al. (2017) Validation of the spanish version of the Quality of Dying and Death Questionnaire (QODD-ESP) in a home-based cancer palliative care program and development of the QODD-ESP-12. Journal of Pain and Symptom Management 53(6), 1042–1049. doi:10.1016/j.jpainsymman.2017.02.005CrossRefGoogle Scholar
Sánchez, DG and Cuesta-Vargas, AI (2018) Cross-cultural adaptation and psychometric testing of the quality of dying and death questionnaire for the spanish population. European Journal of Oncology Nursing 33, 8–13. doi:10.1016/j.ejon.2018.01.003CrossRefGoogle Scholar
Sánchez, DG, Cruzado, DP and Cuesta-Vargas, AI (2018) The quality of dying and death measurement instruments: A systematic psychometric review. Journal of Advanced Nursing 74(8), 1803–1818. doi:10.1111/jan.13687CrossRefGoogle Scholar
SPSSAU (n.d.) CFA. Available at: http://spssau.com/helps/questionnaire/cfa.html.Google Scholar
Terwee, CB, Bot, SDM, de Boer, MR, et al. (2007) Quality criteria were proposed for measurement properties of health status questionnaires. Journal of Clinical Epidemiology 60(1), 34–42. doi:10.1016/j.jclinepi.2006.03.012CrossRefGoogle ScholarPubMed
Treece, PD, Engelberg, RA, Crowley, L, et al. (2004) Evaluation of a standardized order form for the withdrawal of life support in the intensive care unit. Critical Care Medicine 32, 1141–1148.CrossRefGoogle ScholarPubMed
UW Medicine (n.d.) Instruments. Available at: http://depts.washington.edu/eolcare/products/instruments/.Google Scholar
van Wieringen, M, van Groenou, MIB and Groenewegen, P (2015) Impact of home care management on the involvement of informal caregivers by formal caregivers. Home Health Care Services Quarterly 34(2), 67–84. doi:10.1080/01621424.2015.1029185CrossRefGoogle ScholarPubMed
Weerakkody, I, Hales, S, Fernandes, S, et al. (2018) The quality of dying and death in a residential hospice. Journal of Pain and Symptom Management 56(4), 567–574. doi:10.1016/j.jpainsymman.2018.07.004CrossRefGoogle Scholar
Xu, Q (2015) Erzi yanglao haishi nver yanglao? Jiyu jianting neibu de bijiao fenxi [Sons or daughters? Who are caring for aging parents: A gender comparative study of Chinese family]. Society 35(4), 199–219. doi:10.15992/j.cnki.31-1123./c.2015.04.008Google Scholar
Zuo, D, Li, S, Mao, W, et al. (2014) End of life family caregiving for older parents in China's rural anhui province. Canadian Journal on Aging 33(4), 448–461. doi:10.1017/S0714980814000373CrossRefGoogle ScholarPubMed