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A scoping research literature review to assess the state of existing evidence on the “bad” death

Published online by Cambridge University Press:  28 June 2017

Donna M. Wilson  and
Jessica A. Hewitt
Donna M. Wilson*
Affiliation:
Faculty of Nursing, University of Alberta, Edmonton, Alberta, Canada
Jessica A. Hewitt
Affiliation:
University of Limerick, Graduate Entry Medical School, University of Limerick, Limerick, Republic of Ireland
*
Address correspondence and reprint requests to: Donna M. Wilson, Faculty of Nursing, Third Floor ECHA Building, University of Alberta, Edmonton, Alberta, T6G 1C9, Canada. E-mail: [email protected].
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Abstract

Objective:

A scoping research literature review on “bad death” was undertaken to assess the overall state of the science on this topic and to determine what evidence exists on how often bad deaths occur, what contributes to or causes a bad death, and what the outcomes and consequences of bad deaths are.

Method:

A search for English-language research articles was conducted in late 2016, with 25 articles identified and all retained for examination, as is expected with scoping reviews.

Results:

Only 3 of the 25 articles provided incidence information, specifying that 7.8 to 23% of deaths were bad and that bad deaths were more likely to occur in hospitals than in community-care settings. Many different factors were associated with bad deaths, with unrelieved pain being the most commonly identified. Half of the studies provided information on the possible consequences or outcomes of bad deaths, such as palliative care not being initiated, interpersonal and team conflict, and long-lasting negative community effects.

Significance of results:

This review identified a relatively small number of research articles that focused in whole or in part on bad deaths. Although the reasons why people consider a death to be bad may be highly individualized and yet also socioculturally based, unrelieved pain is a commonly held reason for bad deaths. Although bad and good deaths may have some opposing causative factors, this literature review revealed some salient bad death attributes, ones that could be avoided to prevent bad deaths from occurring. A routine assessment to allow planning so as to avoid bad deaths and enhance the probability of good deaths is suggested.

Keywords

Bad deathGood deathTerminal careDeathLiterature review
Type
Review Article
Information
Palliative & Supportive Care , Volume 16 , Special Issue 1: Special Instruments – Assessment and Measure Issues in Palliative Care , February 2018 , pp. 90 - 106
Copyright
Copyright © Cambridge University Press 2017 

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References

REFERENCES

Adesina, O., DeBellis, A. & Zannettino, L. (2014). Third-year Australian nursing students' attitudes, experiences, knowledge, and education concerning end-of-life care. International Journal of Palliative Nursing, 20(8), 395–401.CrossRefGoogle ScholarPubMed
Arksey, H. & O'Malley, L. (2005). Scoping studies: Towards a methodological framework. International Journal of Social Research Methodology, 8(1), 19–32.Google Scholar
Armstrong, R., Hall, B. J., Doyle, J., et al. (2011). “Scoping the scope” of a Cochrane review. Journal of Public Health (Oxford), 33(1), 147–150.Google Scholar
Austin, W. (2012). Moral distress and the contemporary plight of health professionals. HEC Forum, 24(1), 27–38.Google Scholar
Austin, W. (2016). Contemporary healthcare practice and the risk of moral distress. Healthcare Management Forum, 29(3), 131–133.Google Scholar
Borbasi, S., Wotton, K., Redden, K., et al. (2005). Letting go: A qualitative study of acute care and community nurses' perceptions of a “good” versus a “bad” death. Australian Critical Care, 18(3), 104–113.Google Scholar
Brazil, K., McAiney, C., Caron-O'Brien, M., et al. (2004). Quality end-of-life care in long-term care facilities: Service providers' perspective. Journal of Palliative Care, 20(2), 85–92.CrossRefGoogle ScholarPubMed
Costello, J. (2006). Dying well: Nurses' experiences of “good and bad” deaths in hospital. Journal of Advanced Nursing, 54(5), 594–601.Google Scholar
Cottrell, L. & Duggleby, W. (2016). The “good death”: An integrative literature review. Palliative & Supportive Care, 14(6), 686–712.Google Scholar
Counts, D.A. & Counts, D. (2004). The good, the bad, and the unresolved death in Kaliai. Social Science & Medicine, 58(5), 887–897.Google Scholar
De Jong, J.D. & Clarke, L.E. (2009). What is a good death? Stories from palliative care. Journal of Palliative Care, 25(1), 61–7.CrossRefGoogle ScholarPubMed
Evans, N. & Walsh, H. (2002). The organisation of death and dying in today's society. Nursing Standard, 16(25), 33–38.Google Scholar
Ganzini, L., Goy, E.R., Miller, L.L., et al. (2003). Nurses' experiences with hospice patients who refuse food and fluids to hasten death. The New England Journal of Medicine, 349(4), 359–365.Google Scholar
Garnett, D., Vandrevala, T., Hampson, S.E., et al. (2008). Family members' perspectives on potential discussions about life prolongation for their older relatives. Mortality, 13(1), 65–81.Google Scholar
Glaser, B. & Strauss, A. (1968). A Time for Dying, Chicago: Aldine.Google Scholar
Good, M.J.D., Gadmer, N.M., Ruopp, P., et al. (2004). Narrative nuances on good and bad deaths: Internists' tales from high-technology work places. Social Science & Medicine, 58(5), 939–953.Google Scholar
Hales, S., Zimmermann, C. & Rodin, G. (2010). Review: The quality of dying and death. A systematic review of measures. Palliative Medicine, 24(2), 127–144.CrossRefGoogle Scholar
Hanson, L.C., Henderson, M. & Menon, M. (2002). As individual as death itself: A focus group study of terminal care in nursing homes. Journal of Palliative Medicine, 5(1), 117–225.Google Scholar
He, L., Tang, S., Yu, W., et al. (2014). The prevalence, comorbidity and risks of prolonged grief disorder among bereaved Chinese adults. Psychiatry Research, 219(2), 347–352.Google Scholar
Holland, J.M., Currier, J.M. & Gallagher-Thompson, D. (2009). Outcomes from the Resources for Enhancing Alzheimer's Caregiver Health (REACH) program for bereaved caregivers. Psychology and Aging, 24(1), 190–202.Google Scholar
Joarder, T., Cooper, A. & Zaman, S. (2014). Meaning of death: An exploration of perception of elderly in a Bangladeshi village. Journal of Cross-Cultural Gerontology, 29(3), 299–314.Google Scholar
Johnston, J. (2016). Steven Vollrath gets 12 years for kidnapping “motivated by vengeance.” CBC News Edmonton, November 9. Available from http://www.cbc.ca/news/canada/edmonton/vollrath-sentence-kidnapping-vengeance-1.3844007.Google Scholar
Kim, S. & Lee, Y. (2003). Korean nurses' attitudes to good and bad death, life-sustaining treatment and advance directives. Nursing Ethics, 10(6), 624–637.Google Scholar
King, K. (2004). It hurts so bad: comparing grieving patterns of the families of murder victims with those of families of death row in mates. Criminal Justice Policy Review, 15(2), 193–211.Google Scholar
Ko, E., Cho, S., Perez, R.L., et al. (2013). Good and bad death: Exploring the perspectives of older Mexican Americans. Journal of Gerontological Social Work, 56(1), 6–25.CrossRefGoogle ScholarPubMed
Ko, E., Kwak, J. & Nelson-Becker, H. (2015). What constitutes a good and bad death? Perspectives of homeless older adults. Death Studies, 39(7), 422–432.Google Scholar
LeBaron, V.T., Cooke, A., Resmini, J., et al. (2015). Clergy views on a good versus a poor death: Ministry to the terminally ill. Journal of Palliative Medicine, 18(12), 1000–1007.CrossRefGoogle Scholar
Luxardo, N., Padros, C.V. & Tripodoro, V. (2014). Palliative care staff perspectives: The challenges of end-of-life care on their professional practices and everyday lives. Journal of Hospice and Palliative Nursing, 16(3), 165–172.Google Scholar
McPherson, C.J., Wilson, K.G. & Murray, M.A. (2007). Feeling like a burden to others: A systematic review focusing on the end of life. Palliative Medicine, 21(2), 115–128.Google Scholar
Meier, E.A., Gallegos, J.V., Thomas, L.P., et al. (2016). Defining a good death (successful dying): Literature review and a call for research and public dialogue. The American Journal of Geriatric Psychiatry, 24(4), 261–271.Google Scholar
Middleton, W., Burnett, P., Raphael, B., et al. (1996). The bereavement response: A cluster analysis. The British Journal of Psychiatry, 169(2), 167–171.Google Scholar
Payne, S.A., Langley-Evans, A. & Hillier, R. (1996). Perceptions of a “good” death: A comparative study of the views of hospice staff and patients. Palliative Medicine, 10(4), 307–312.Google Scholar
Pierson, C.M., Curtis, J.R. & Patrick, D.L. (2002). A good death: A qualitative study of patients with advanced AIDS. AIDS Care, 14(5), 587–598.Google Scholar
Posel, D., Kahn, K. & Walker, L. (2007). Living with death in a time of AIDS: A rural South African case study. Scandinavian Journal of Public Health, 35(69), 138–146.Google Scholar
Proulx, K. & Jacelon, C. (2004). Dying with dignity: The good patient versus the good death. The American Journal of Hospice & Palliative Care, 21(2), 116–120.Google Scholar
Quill, T.E., Lo, B. & Brock., D.W. (1997). Palliative options of last resort: A comparison of voluntarily stopping eating and drinking, terminal sedation, physician-assisted suicide, and voluntary active euthanasia. The Journal of the American Medical Association, 278(23), 2099–2104.Google Scholar
Seale, C. (2004). Media constructions of dying alone: A form of “bad death”. Social Science & Medicine, 58(5), 967–974.Google Scholar
Seymour, J.E., Bellamy, G., Gott, M., et al. (2002). Good deaths, bad deaths: Older people's assessments of the risks and benefits of morphine and terminal sedation in end-of-life care. Health Risk & Society, 4(3), 287–303.CrossRefGoogle Scholar
Shah, S.M., Carey, I.M., Harris, T., et al. (2013). Initiation of psychotropic medication after partner bereavement: A matched cohort study. PLoS One, 8(11), 1–10.Google Scholar
Shea, J., Grossman, S., Wallace, M., et al. (2010). Assessment of advanced practice palliative care nursing competencies in nurse practitioner students: Implications for the integration of ELNEC curricular modules. The Journal of Nursing Education, 49(4), 183–189.Google Scholar
Shih, F. (2010). Chinese “bad death” practices in Taiwan: Maidens and modernity. Mortality, 15(2), 122–137.Google Scholar
Ternestedt, B.M., Andershed, B., Eriksson, M., et al. (2002). A good death: Development of a nursing model of care. Journal of Hospice and Palliative Nursing, 4(3), 153–160.Google Scholar
van der Geest, S. (2004). Dying peacefully: Considering good death and bad death in Kwahu-Tafo, Ghana. Social Science & Medicine, 58(5), 899–911.Google Scholar
Vig, E.K. & Pearlman, R.A. (2004). Good and bad dying from the perspective of terminally ill men. Archives of Internal Medicine, 164(9), 977–981.Google Scholar
Vig, E.K., Davenport, N.A. & Pearlman, R. A. (2002). Good deaths, bad deaths, and preferences for the end of life: A qualitative study of geriatric outpatients. Journal of the American Geriatrics Society, 50(9), 1541–1548.Google Scholar
Whittemore, R. & Knafl, K. (2005). The integrative review: Updated methodology. Journal of Advanced Nursing, 52(5), 546–553.Google Scholar
Wiegand, D.L. & Petri, L. (2010). Is a good death possible after withdrawal of life-sustaining therapy? The Nursing Clinics of North America, 45(3), 427–440.Google Scholar
World Health Organization (2015). The Top 10 Causes of Death. Geneva: World Health Organization. Available from www.who.int/mediacentre/factsheets/fs310/en/index2.html.Google Scholar
Zhang, B., El-Jawahri, A. & Prigerson, H.G. (2006). Update on bereavement research: Evidence-based guidelines for the diagnosis and treatment of complicated bereavement. Journal of Palliative Medicine, 9(5), 1188–1203.Google Scholar