Hostname: page-component-cd9895bd7-hc48f Total loading time: 0 Render date: 2024-12-25T06:02:00.540Z Has data issue: false hasContentIssue false
  • English
  • Français

Psychometric evaluation and cultural adaptation of the Spanish version of the “Scale for End-of Life Caregiving Appraisal”

Published online by Cambridge University Press:  03 August 2018

José Manuel Hernández-Padilla Open the ORCID record for José Manuel Hernández-Padilla [Opens in a new window] ,
Matías Correa-Casado ,
José Granero-Molina ,
Alda Elena Cortés-Rodríguez ,
Tamara María Matarín-Jiménez  and
Cayetano Fernández-Sola Open the ORCID record for Cayetano Fernández-Sola [Opens in a new window]
José Manuel Hernández-Padilla*
Affiliation:
Adult, Child and Midwifery Department, School of Health and Education, Middlesex University, The Burroughs, London, United Kingdom Nursing, Physiotherapy and Medicine Department, Faculty of Health Sciences, University of Almeria, Spain
Matías Correa-Casado
Affiliation:
Internal Medicine Ward at Poniente Hospital, El Ejido, Almería, Spain
José Granero-Molina
Affiliation:
Nursing, Physiotherapy and Medicine Department, Faculty of Health Sciences, University of Almeria, Spain Internal Medicine Ward at Poniente Hospital, El Ejido, Almería, Spain Faculty of Health Sciences, Universidad Autónoma de Chile, Temuco, Chile
Alda Elena Cortés-Rodríguez
Affiliation:
Nursing, Physiotherapy and Medicine Department, Faculty of Health Sciences, University of Almeria, Spain
Tamara María Matarín-Jiménez
Affiliation:
Internal Medicine Ward, Motril Hospital, Motril, Granada, Spain
Cayetano Fernández-Sola
Affiliation:
Nursing, Physiotherapy and Medicine Department, Faculty of Health Sciences, University of Almeria, Spain Internal Medicine Ward at Poniente Hospital, El Ejido, Almería, Spain Faculty of Health Sciences, Universidad Autónoma de Chile, Temuco, Chile
*
Author for correspondence: José Manuel Hernández-Padilla, Universidad de Almería, Edificio de Ciencias de la Salud, Carretera de Sacramento s/n. Almería 04120, Spain. E-mail: [email protected]
Get access Rights & Permissions [Opens in a new window]

Abstract

Objective

To translate, culturally adapt, and psychometrically evaluate the Spanish version of the “Scale for End-of Life Caregiving Appraisal” (SEOLCAS).

Method

Observational cross-sectional study. Convenience sample of 201 informal end-of-life caregivers recruited in a southern Spanish hospital. The reliability of the questionnaire was assessed through its internal consistency (Cronbach's α) and temporal stability (Pearson's correlation coefficient [r] between test-retest). The content validity index of the items and the scale was calculated. Criterion validity was explored through performing a linear regression analysis to evaluate the SEOLCAS’ predictive validity. Exploratory factor analysis was used to examine its construct validity.

Results

The SEOLCAS’ reliability was very high (Cronbach's α = 0.92). Its content validity was excellent (all items’ content validity index = 0.8–1; scale's validity index = 0.88). Evidence of the SEOLCAS’ criterion validity showed that the participants’ scores on the SEOLCAS explained approximately 79.3% of the between-subject variation of their results on the Zarit Burden Interview. Exploratory factor analysis provided evidence of the SEOLCAS’ construct validity. This analysis revealed that two factors (“internal contingencies” and “external contingencies”) explained 53.77% of the total variance found and reflected the stoic Hispanic attitude toward adversity.

Significance of results

The Spanish version of the SEOLCAS has shown to be an easily applicable, valid, reliable, and culturally appropriate tool to measure the impact of end-of-life care provision on Hispanic informal caregivers. This tool offers healthcare professionals the opportunity to easily explore Hispanic informal end-of-life caregivers’ experiences and discover the type of support they may need (instrumental or emotional) even when there are communicational and organizational constraints.

Keywords

Palliative careEnd-of-life careCarersFamily caregiversQuestionnaire designPsychometrics
Type
Original Article
Information
Palliative & Supportive Care , Volume 17 , Issue 3 , June 2019 , pp. 314 - 321
Copyright
Copyright © Cambridge University Press 2018 

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Adams, JA, Bailey, DE Jr, Anderson, RA, et al. (2011) Nursing roles and strategies in end-of-life decision-making in acute care: A systematic review of the literature. Nursing Research & Practice 2011, 527834.10.1155/2011/527834Google Scholar
Applebaum, AJ (2017) Survival of the fittest … caregiver? Palliative and Supportive Care 15, 1–2.10.1017/S1478951516001097Google Scholar
Becker, LC (2003) Human health and stoic moral norms. Journal of Medical Philosophy 28, 221–238.10.1076/jmep.28.2.221.14206Google Scholar
Benavente, KP (2013) Art echo: María Zambrano and the Kouroi Relief. Synthesis 5, 94–119.Google Scholar
Bloomer, MJ, Endacott, R, O'Connor, M, et al. (2013) The ‘dis-ease’ of dying: Challenges in nursing care of the dying in the acute hospital setting. A qualitative observational study. Palliative Medicine 27, 757–764.10.1177/0269216313477176Google Scholar
Caswell, G, Pollock, K, Harwood, R, et al. (2015) Communication between family carers and health professionals about the end-of-life care for older people in the acute hospital setting: A qualitative study. BMC Palliative Care 1, 14–35.Google Scholar
Coaley, K (2014) An introduction to psychological assessment and psychometrics. London: SAGE.Google Scholar
Dalai, S and Bruera, E (2017) End-of-life care matters: Palliative cancer care results in better care and lower costs. The Oncologist 22, 361–368.Google Scholar
Delgado-Rico, E, Carretero-Dios, H, & Willibald, R (2012) Content validity evidences in test development: An applied perspective. International Journal of Clinical and Health Psychology 12, 449–460.Google Scholar
Directive 95/46/EC of the European Parliament and of the Council of 24th of October 1995 on the protection of individuals with regard to the processing of personal data and on the free movement of such data (1995) Official Journal of the European Communities L 281/31, 23.10.1995, 31–39.Google Scholar
Dumont, S, Fillion., , Gagnon, P, et al. (2008) A new tool to assess family caregivers' burden during end-of-life care. Journal of Palliative Care 24, 151–161.10.1177/082585970802400304Google Scholar
Fernández-Sol, C, Cortés, MM, Hernández-Padilla, JM, et al. (2017) Defining dignity in end-of-life care in the emergency department. Nursing Ethics 24, 20–32.Google Scholar
Furr, RM (2014) Psychometrics: an introduction. London: SAGE.Google Scholar
Gagnon, J and Duggleby, W (2014) The provision of end-of-life care by medical-surgical nurses working in acute care: A literature review. Palliative and Supportive Care 12, 393–408.Google Scholar
Gardiner, C, Brereton, L, Frey, R, et al. (2014) Exploring the financial impact of caregiving for family members receiving palliative care and end-of-life care: a systematic review of the literature. Palliative Medicine 28, 375–390.10.1177/0269216313510588Google Scholar
Gort, A.M, March, J, Gómez, X, et al. (2005) Escala de Zarit reducida en cuidados paliativos. Medicina Clinica 124, 651–653.10.1157/13074742Google Scholar
Granero-Molina, J, Díaz-Cortés, MM, Hernández-Padill, JM, et al. (2016) Loss of dignity in end-of-life care in the emergency department: A phenomenological study with health professionals. Journal of Emergency Nursing 42, 233–239.10.1016/j.jen.2015.10.020Google Scholar
Hernández-Padilla, JM, Granero-Molina, J, Márquez-Hernández, VV, et al. (2017) Design and validation of a three-instrument toolkit for the assessment of competence in electrocardiogram rhythm recognition. European Journal of Cardiovascular Nursing Epub ahead of print January 1.Google Scholar
Hernández-Padilla, JM, Granero-Molina, J, Márquez-Hernández, VV, et al. (2016). Development and psychometric evaluation of the arterial puncture self-efficacy scale. Nurse Education Toda, 40, 45–51.10.1016/j.nedt.2016.02.008Google Scholar
Higginson, IJ, Gao, W, Jackson, D, et al. (2010) Short-form Zarit Caregiver Burden Interviews were valid in advanced conditions. Journal of Clinical Epidemiology 63, 535–542.10.1016/j.jclinepi.2009.06.014Google Scholar
Im, E.O, Guevara, E, & Chee, W. (2007) The pain experience of Hispanic patients with cancer in the U.S. Oncology Nursing Forum 34, 861–868.10.1188/07.ONF.861-868Google Scholar
Jack, BA, O'Brien, MR, Scrutton, J, et al. (2015) Supporting family carers providing end-of-life home care: a qualitative study on the impact of a hospice at home service. Journal of Clinical Nursing 24, 131–140.10.1111/jocn.12695Google Scholar
Koller, M, Aaronson, NK, Blazeby, J, et al. (2007) Translation procedures for standardized quality of life questionnaires: The European Organisation for Research and Treatment of Cancer (EORTC) approach. European Journal of Cancer 43, 1810–1820.Google Scholar
Lee, J, Yoo, JS, Kim, TH, et al. (2010) Development and validation of a scale for the end of life caregiving appraisal. Asian Nursing Research 4, 1–9.10.1016/S1976-1317(10)60001-1Google Scholar
Løkke, H (2015) Knowledge and virtue in early Stoicism. London: Springer.10.1007/978-94-007-2153-1Google Scholar
Lynch, T, Connor, S, & Clark, D (2013) Mapping levels of palliative care development: A global update. Journal of Pain and Symptom Management 45, 1094–1106.Google Scholar
MacArtney, JI, Broom, A, Kirby, E, et al. (2016) Locating care at the end of life: burden, vulnerability, and the practical accomplishment of dying. Sociology of Health & Illness 38, 479–492.10.1111/1467-9566.12375Google Scholar
Novak, B, Kolcaba, K, Steiner, R, et al. (2001) Measuring comfort in caregivers and patients during late end-of-life care. American Journal of Hospital Palliative Care 18, 170–180.10.1177/104990910101800308Google Scholar
Nuño-Solinís, R, Herrera-Molina, E, Librada-Flores, S, et al. (2016) Care costs and activity in the last three months of life of cancer patients who died in the Basque Country (Spain). Gaceta Sanitaria. Epub ahead of print October 1.Google Scholar
Nussbaum, MC (2009) The Therapy of Desire: Theory and Practice in Hellenistic Ethics. New York: Princeton University Press.10.1515/9781400831944Google Scholar
Polit, DF and Beck, CT (2006) The content validity index: are you sure you know what's being reported? Critique and recommendations. Research in Nursing & Health 29, 489–497.10.1002/nur.20147Google Scholar
Porter, LS, Keefe, FJ, Garst, J, et al. (2008) Self-efficacy for managing pain, symptoms, and function in patients with lung cancer and their informal caregivers: Associations with symptoms and distress. Pain 137, 306–315.Google Scholar
Reblin, M, Cloyes, KG, Carpenter, J, et al. (2015) Social support needs: Discordance between home hospice nurses and former family caregivers. Palliative and Supportive Care 13, 465–472.10.1017/S1478951513001156Google Scholar
Reyniers, T, Houttekier, D, Cohen, J, et al. (2014) What justifies a hospital admission at the end of life? A focus group study on perspectives of family physicians and nurses. Palliative Medicine 28, 941–948.10.1177/0269216314522317Google Scholar
Rini, C, Emmerling, D, Austin, J, et al. (2015) The effectiveness of caregiver social support is associated with cancer survivors’ memories of stem cell transplantation: A linguistic analysis of survivor narratives. Palliative and Supportive Care 13, 1735–1744.Google Scholar
Robinson, CA, Bottorff, JL, McFee, E, et al. (2017) Caring at home until death: enabled determination. Supportive Care in Cancer 25, 1229–1236.10.1007/s00520-016-3515-5Google Scholar
Robinson, J, Gott, M, & Ingleton, C (2014) Patient and family experiences of palliative care in hospital: What do we know? An integrative review. Palliative Medicine 28, 18–33.10.1177/0269216313487568Google Scholar
Rocque, GB, Barnett, AE, Illig, LC, et al. (2013) Inpatient hospitalization of oncology patients: Are we missing an opportunity for end-of-life care? Journal of Oncology Practice 9, 51–54.Google Scholar
Scherz, P (2017) Grief, death, and longing in stoic and Christian ethics. Journal of Religious Ethics 45, 7–28.Google Scholar
Smith, AK, Sudore, RL, & Pérez-Stable, EJ (2009) Palliative care for Latino patients and their families: “Whenever we prayed, she wept.” Journal of the American Medical Association 301, 1047–E1.10.1001/jama.2009.308Google Scholar
Tabachnick, BG and Fidell, LS (2013) Using multivariate statistics. 6th ed. Essex: Pearson.Google Scholar
Van den Broeck, J and Brestoff, JR (2013) Epidemiology: Principles and practical guidelines. Dordrecht: Springer.10.1007/978-94-007-5989-3Google Scholar
van der Steen, JT, Radbruch, L, Hertogh, CM, et al. (2014) White paper defining optimal palliative care in older people with dementia: A Delphi study and recommendations from the European Association for Palliative Care. Palliative Medicine 28, 197–209.10.1177/0269216313493685Google Scholar
Veloso, VI and Tripodoro, VA (2016) Caregivers burden in palliative care patients: A problem to tackle. Current Opinion in Supportive and Palliative Care 10, 330–335.10.1097/SPC.0000000000000239Google Scholar
Willard, C and Luker, K (2006) Challenges to end-of-life care in the acute hospital setting. Palliative Medicine 20, 611–615.Google Scholar
Woodman, C, Baillie, J, & Sivell, S (2016) The preferences and perspectives of family caregivers towards place of care for their relatives at the end-of-life. A systematic review and thematic synthesis of the qualitative evidence. BMJ Supportive & Palliative Care 6, 418–429.Google Scholar
Wright, AA, Keating, NL, Ayanian, JZ, et al. (2016) Family perspectives on aggressive cancer care near the end of life. Journal of the American Medical Association 315, 284–292.10.1001/jama.2015.18604Google Scholar
de Ros, X and Omlor, D (2017) The cultural legacy of Maria Zambrano. London: Taylor & Francis.Google Scholar
Supplementary material: PDF

Hernández-Padilla et al. supplementary material

Hernández-Padilla et al. supplementary material 1

Download Hernández-Padilla et al. supplementary material(PDF)
PDF 106.9 KB