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Sociability and support in online eating disorder communities: Evidence from personal networks

Published online by Cambridge University Press:  23 April 2014

PAOLA TUBARO
Affiliation:
University of Greenwich, London, UK (e-mail: [email protected])
LISE MOUNIER
Affiliation:
CMH – CNRS, Paris, France (e-mail: [email protected])

Abstract

We study how people select their health support ties from their broader personal networks, taking into account the interplay of web-based and face-to-face interactions. We focus on users of self-styled Internet communities on eating disorders, often dubbed “pro-ana” and “pro-mia” and widely feared to contribute to maintaining and spreading these disorders. Despite the controversial anti-medical stances of some of them, “ana-mia” websites may channel mutual assistance, advice, and psychological and emotional support, with ultimate benefits for health.

In 2011–12 we fielded an online survey of users of French- and English-language “ana-mia” websites, mapping the composition and structure of their personal networks both online and face-to-face, and their health and eating-related support networks, for two types of health issues. We estimate binary choice models for these data and find that different health needs call for different types of support, embedded in different parts of personal networks. Specifically, online groups provide distinctive sources of help, which partly compensate for perceived shortcomings in healthcare services, although members do not overwhelmingly reject standard health systems and norms. We discuss how web-based groups constitute an important source of social support, and a potential resource for enhanced public health services provision.

Type
Research Article
Copyright
Copyright © Cambridge University Press 2014 

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References

Adler, P., & Kwon, S. (2002). Social capital: Prospects for a new concept. Academy of Management Review, 27 (1), 1740.Google Scholar
Ashida, S., & Heaney, C. A. (2008). Differential associations of social support and social connectedness with structural features of social network systems and the health status of older adults. Journal of Aging and Health, 20 (7), 872893.Google Scholar
Akrich, M. (2010). From communities of practice to epistemic communities: Health mobilizations on the Internet. Sociological Research Online, 15 (2). Retrieved from: <http://www.socresonline.org.uk/15/2/10.html> 10.5153/sro.2152.CrossRefGoogle Scholar
Bardone-Cone, A. M., & Cass, K. M. (2007). What does viewing a pro-anorexia website do? An experimental examination of website exposure and moderating effects. International Journal of Eating Disorders, 40 (6), 537548.Google Scholar
Bargh, J., & McKenna, K. (2004). The Internet and social life. Annual Review of Psychology, 55 (1), 573590.Google Scholar
Barrera, M. (1980). A method for the assessment of social support networks in community survey research. Connections, 3, 813.Google Scholar
Berkman, L. F., & Glass, T. (2000). Social integration, social networks, social support, and health. In Berkman, L. F., & Kawachi, I. (Eds.), Social epidemiology (pp. 137173). New York: Oxford University Press.Google Scholar
Berkman, L. F., & Syme, S. (1979). Social networks, host resistance, and mortality: A nine-year follow-up of Alameda County residents. American Journal of Epidemiology, 109, 186204.Google Scholar
Bidart, C., & Charbonneau, J. (2011). How to generate personal networks: Issues and tools for a sociological perspective. Field Methods, 23, 266286.Google Scholar
Boase, J., Horrigan, J. B., Wellman, B., & Rainie, L. (2006). The Strength of Internet Ties. Pew Internet & American Life Project Report. Retrieved from http://www.pewinternet.org/~/media//Files/Reports/2006/PIP_Internet_ties.pdf.pdf Google Scholar
Breiger, R. L. (1974). The duality of persons and groups. Social Forces, 53 (2), 181190.Google Scholar
Brown, K., & Geller, J. (2006). Supporting friends and family members with eating disorders: Discrepancies between intentions and reality. Eating Disorders: The Journal of Treatment and Prevention, 14, 215228.Google Scholar
Burt, R. S. (2005). Brokerage and closure: An introduction to social capital. Oxford: Oxford University Press.Google Scholar
Casilli, A. A., Mounier, L., Pailler, F., & Tubaro, P. (2013a). Les jeunes et le web des troubles alimentaires: Dépasser la notion de ‘pro-ana’. Final report of the ANAMIA project. Retrieved from http://www.anamia.fr/en/report-young-internet-users-and-eating-disorder-websites-beyond-the-notion-of-pro-ana/.Google Scholar
Casilli, A. A., Pailler, F., & Tubaro, P. (2013b). Online networks of eating-disorder websites: Why censoring pro-ana might be a bad idea. Perspectives in Public Health, 133 (2), 9495.Google Scholar
Casilli, A. A., Tubaro, P., & Araya, P. (2012). Ten years of Ana. Lessons from a transdisciplinary body of literature on online pro-eating disorder websites. Social Science Information, 51 (1), 121139.Google Scholar
Centola, D. (2010). The spread of behavior in an online social network experiment. Science, 329 (5996), 11941197.Google Scholar
Diani, M. (2000). Simmel to Rokkan and beyond: Towards a network theory of (new) social movements. European Journal of Social Theory, 3 (4), 387406.Google Scholar
Ellison, N. B., Steinfield, C., & Lampe, C. (2007). The benefits of Facebook ‘friends:’ Social capital and college students' use of online social network sites. Journal of Computer-Mediated Communication, 12 (4), article 1. Retrieved from http://jcmc.indiana.edu/vol12/issue4/ellison.html Google Scholar
Fischer, C. (1982). To dwell among friends. Chicago: University of Chicago Press.Google Scholar
Flynn, M. A., & Stana, A. (2012). Social support in a men's online eating disorder forum. International Journal of Men's Health, 11 (2). Retrieved from http://www.biomedsearch.com/article/Social-support-in-mens-online/305192592.html Google Scholar
Gayle, V., & Lambert, P. (2009). Logistic regression models in sociological research. DAMES Node, Technical Paper 2009–1, Retrieved from http://www.dames.org.uk/publications.html.Google Scholar
Grossetti, M. (2007). Are French networks different? Social Networks, 29, 391404.Google Scholar
Haythornthwaite, C., & Wellman, B. (1998). Work, friendship and media use. For information exchange in a networked organization. Journal of the American Society for Information Science, 49, 11011114.Google Scholar
Heaney, C. A., & Israel, B. A. (2002). Social support and social networks. In Glanz, K., Rimer, B., & Lewis, F. (Eds.), Health behavior and health education: Theory, research, and practice (3rd ed. pp. 185209). San Francisco, CA: Jossey-Bass.Google Scholar
Helliwell, J. F., & Putnam, R. D. (2004). The social context of well-being. Philosophical Transactions of the Royal Society, 359 (1449), 14351446.Google Scholar
House, J. S. (1981). Work, stress and social support. Reading, Mass: Addison-Wesley.Google Scholar
House, J. S., Robbins, C., & Metzner, H. L. (1982). The association of social relationships and activities with mortality: Prospective evidence from the Tecumseh Community Health study. American Journal of Epidemiology, 116, 123140.Google Scholar
Kawachi, I., & Berkman, L. F. (2001). Social ties and mental health. Journal of Urban Health, 78, 458467.Google Scholar
Kraut, R., Kiesler, S., Boneva, B., Cummings, J., Helgeson, V., & Crawford, A. (2002). Internet paradox revisited. Journal of Social Issues, 58 (1), 4974.Google Scholar
Kraut, R., Patterson, M., Lundmark, V., Kiesler, S., Mukopadhyay, T., & Scherlis, W. (1998). Internet paradox. A social technology that reduces social involvement and psychological well-being? The American Psychologist, 53 (9), 10171031.Google Scholar
Levine, M. P. (2012). Loneliness and eating disorders. The Journal of Psychology, 146 (1–2), 243257.CrossRefGoogle ScholarPubMed
Limbert, C. (2010). Perceptions of social support and eating disorder characteristics. Health Care for Women International, 31 (2), 170178.Google Scholar
Lin, N. (2001). Building a network theory of social capital. In Lin, N., Cook, K. & Burt, R. S. (Eds.), Social capital: Theory and research (pp. 329). New York: Aldine De Gruyter.Google Scholar
Linville, D., Brown, T., Sturm, K., & McDougal, T. (2012). Eating disorders and social support: Perspectives of recovered individuals. Eating Disorders: The Journal of Treatment and Prevention, 20 (3), 216231.Google Scholar
Marin, A. 2004. Are respondent more likely to list alters with certain characteristics? Implications for name generator data. Social Networks, 26, 289307.Google Scholar
McCormack, A. (2010). Individuals with eating disorders and the use of online support groups as a form of social support. Computers Informatics Nursing, 28 (1), 1219.Google Scholar
Mesch, G., & Talmud, I. (2006). The quality of online and offline relationships: The role of multiplexity and duration. The Information Society, 22 (3), 137148.CrossRefGoogle Scholar
Mood, C. (2010). Logistic regression: Why we cannot do what we think we can do, and what we can do about it. European Sociological Review, 26 (1), 6782.Google Scholar
Putnam, R. (2000). Bowling alone: The collapse and revival of American community. New York: Simon & Schuster.Google Scholar
Quan-Haase, A., Wellman, B., Witte, J., & Hampton, K. (2002). Capitalizing on the Internet: Network capital, participatory capital, and sense of community. In Wellman, B., & Haythornthwaite, C. (Eds.), The Internet in everyday life (pp. 291324). Oxford: Blackwell.Google Scholar
Shen, C., Monge, P., & Williams, D. (2012). Virtual brokerage and closure: Network structure and social capital in a massively multiplayer online game. Communication Research, published online, doi:10.1177/0093650212455197.Google Scholar
Simmel, G. (1955 [1908]). The web of group affiliations. In Coser, L. (Ed.), Conflict and the web of group affiliations (pp. 125195). New York: Free Press.Google Scholar
Smith, K. P., & Christakis, N. A. (2008). Social networks and health. Annual Review of Sociology, 34, 405429.Google Scholar
Stice, E. (2002). Risk and maintenance factors for eating pathology: A meta-analytic review. Psychological Bulletin, 128, 825848.Google Scholar
Stice, E., & Whitenton, K. (2002). Risk factors for body dissatisfaction in adolescent girls: A longitudinal investigation. Developmental Psychology, 38, 669678.Google Scholar
Taylor, S. E. (2007). Social support. In Friedman, H. S., & Silver, R. C. (Eds.), Foundations of health psychology (pp. 145171). New York: Oxford University Press.Google Scholar
Thoits, P. A. (1995). Stress, coping and social support processes: Where are we? What next? Journal of Health and Social Behavior (Extra Issue), 5379.Google Scholar
Tubaro, P., Casilli, A. A., & Mounier, L. (2014). Eliciting personal network data in web surveys through participant-generated sociograms. Field Methods, 26 (2), 107125.Google Scholar
Wooldridge, J. M. (2010). Econometric analysis of cross section and panel data (2nd ed.). Cambridge, MA: MIT Press.Google Scholar
Yeshua-Katz, D., & Martins, N. (2013). Communicating stigma: The pro-ana paradox. Health Communication, 28 (5), 499508.Google Scholar