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Quality of Life and Non-Treatment Decisions for Incompetent Patients: A Critique of the Orthodox Approach

Published online by Cambridge University Press:  29 April 2021

Extract

Since the Quinlan decision in 1976, courts and legislatures have made substantial progress in defining rules to govern nontreatment of dying and debilitated patients. For example, the right of the competent patient to refuse necessary care is now widely established, and the legality of withdrawing respirators and even nutrition and hydration from permanently unconscious patients is increasingly recognized.

More difficult questions arise, however, when the patient is neither competent nor permanently unconscious, but instead is in a conscious, severely demented and debilitated state, with experiences that appear quite limited. Thousands of patients in this condition are cared for in private homes, hospitals, and nursing homes, the victims of stroke, senility, Alzheimer's disease, and other illnesses. Even though they usually require only low-tech, minimally supportive care, such patients can impose great stress on their families and high financial costs on the health care system.

Type
Article
Copyright
Copyright © American Society of Law, Medicine and Ethics 1989

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References

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See note 2 supra. In reaching this decision the court showed that the most rigorous reading of the substituted judgment merges with a best interests approach, since the incompetent patient, if competent and able to tell what he would want, would want whatever his current interests are to be protected, which is the outcome that would be achieved directly under the current interests test. See Robertson, , note 23 supra.Google Scholar
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Preserving life at all costs, even in such extreme states, may be a moral or personal position that some persons adopt, but it does not follow that all persons, including families and doctors, must also adopt it. Given the reasonableness of differing views on the subject and the heterogeneity with which they are held, such a strict view should be left to individual discretion.Google Scholar
It is significant that the orthodox approach may exclude such patients from treatment at the behest of proxy decisionmakers, as the cases of Spring and Hier show. In both cases the courts used the substituted judgment test to find that if these patients were competent, they would have chosen not to be treated. On the other hand, the New York courts have required such a high degree of certainty of what the patient would have chosen that withdrawing treatment except when there is an explicit prior directive becomes impossible. The current interests test would reduce greatly the chance that unjustified overtreatment or undertreatment would occur.Google Scholar