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Defective Infants and Their Impact on Families: Ethical and Legal Considerations

Published online by Cambridge University Press:  27 April 2021

Carson Strong
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Type
Commentary
Information
Law, Medicine and Healthcare , Volume 11 , Issue 4 , September 1983 , pp. 168 - 181
Copyright
Copyright © American Society of Law, Medicine and Ethics 1983

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References

Nondiscrimination on the Basis of Handicap Relating to Health Care for Handicappped Infants, 48 Fed. Reg, 30846 (July 5, 1983).Google Scholar
Interim Final Rule, Nondiscrimination on the Basis of Handicap, 48 Fed. Reg. 9630 (March 7, 1983) (to be codified at 45 C.F.R. Part 84).Google Scholar
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See, e.g., Holroyd, J. Guthrie, D., Stress in Families of Children with Neuromuscular Disease, Journal of Clinical Psychology 35(4): 734 (October 1979); Mandelbaum, A. Wheeler, M.E., The Meaning of a Defective Child to Parents, Social Casework 41(7): 360 (1960); Hunt, G.M., Implications of the Treatment of Myelomeningocele for the Child and his Family, Lancet 2(7841): 1308 (December 8, 1973); Tew, B. Laurence, K.M., Mothers, Brothers and Sisters of Patients with Spina Bifida, Developmental Medicine and Child Neurology 15(Supp. 29): 69 (1973); Walker, J.H. Thomas, M. Russell, I.T., Spina Bifida — and the Parents, Developmental Medicine and Child Neurology 13(4): 462 (1971).Google ScholarPubMed
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An example of such research would be the use of ultrasound to detect the presence and magnitude of cerebral hemorrhages. See, e.g., Partridge, J.D., Optimal Timing for Diagnostic Cranial Ultrasound in Low-Birth-Weight Infants: Detection of Intracranial Hemorrhage and Ventricular Dilation, Journal of Pediatrics 102: 281 (February 1983).Google ScholarPubMed
See, e.g., Taub, S., Withholding Treatment from Defective Newborns, Law, Medicine & Health Care 10(1): 4, 10 (February 1982); Jonsen, A.R., Critical Issues in Newborn Intensive Care: A Conference Report and Policy Proposal, Pediatrics 55(6): 756, 763–64 (June 1975); Robertson, J.A., Dilemma in Danville, Hastings Center Report 11(5): 5 (October 1981).Google ScholarPubMed
Deciding to Forego Life-Sustaining Treatment, supra note 33, at 215.Google Scholar
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